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autism guide for help Posted By: recoveringwishes
Posted On: 04/02/2008
Sunday, November 04, 2007

national guide for autism helps- for a road to recovery!!
Current mood: hopeful


***IMPORTANT WEBSITES FOR MORE INFO***



Autism Research Institute- Defeat Autism Now! (DAN!) project to train physicians and other healthcare professionals how to implement advanced DAN! approaches to the diagnosis and successful treatment of autism. There are now several hundred DAN! physicians worldwide and thousands of children - many of them the sons and daughters of DAN! physicians -- who are no longer diagnosed as autistic and have been mainstreamed into their school systems.


For information on DAN! go to
http://www.autism.com/

To find a DAN! Dr. go to
http://www.autismwebsite.com/practitioners/danus.html


The Parents' Ratings scale of interventions' data are available online at http://www.autism.com/treatable/biomed/ARI_TreatmentRatings_Form34QR_February2007.pdf


webcast presentations from the Defeat Autism Now! (DAN!) conference. There is no charge to view.

Alexandria - April 2007- http://www.autism.com/danwebcast/2007alexandria.htm

Seattle - October 5-8, 2006- http://www.autism.com/danwebcast/2006seattle.htm

Defeat Autism Now! Webcast Topics
Recovery is Possible
Triggers of Autism
Vaccinations
Diets
Chelation
Nutritional Supplements
Viral and Immune Issues
Naturopathic Treatments
ABA and Other Therapies
Future Pregnancies
Environmental Toxins
Biochemistry
Gut Pathology and Treatment
Methylation
Research



Watch this video of these recovered kids.
Autism, is treatable

http://www.autism-recoveredchildren.com/


www.danasview.net- most complete guide to autism I have found- she has several kids on the spectrum most

of which are now recovered. You can read up on her whole journey with all of them on her site







SUPPLIMENT INFO AND RESOURCES


http://www.danasview.net/supps.htm has info on what supplements do what


www.kirkmangroup.com 1-800-kirkman for hyperallergenic supplements for autistic kids (one of the most recommended sites by DAN dr's)


www.houstonni.com most recommended site by DAN Dr's for enzymes


Prothera- company designing supplements for autistic kids (also called Klaire labs.) mention Dr McCandless name and get 20% off their items. (discount for spectrum kids) They have some of the most potent probiotics on the market, also hyper-allergenic and milk free. The number is 888-488-2488. they have catalogs they can send to you to know what they have available.


http://www.biogro.us/wateroz.html - place to by liquid vitamins for those kids who hate pills


www.BestPriceVitamines.com -place for discounted supplements


www.allergyresearchgroup.com - site for supplements for those with many allergies or intollences


www.needs.com – place to order supplements from many of the recommended companies in one place


www.asdmarket.com –another place you can get many vendors stuff in one place

www.nationalautismassociation.org is carrying some supplements and giving the best price they can, profits go into research and helping needy families with scholarships.


www.Iherb.com is free shipping over $20

www.beyond-a-century.com is good if you are looking for a single pure item (like one amino acid with no fillers etc)


www.froogle.com and you can enter any supplement and find the cheapest internet price.

www.vrp.com use the following PIN 211032 you get a 10% discount


http://www.vitacost.com : Flat rate $4.95, but very low costs, use 5% off code WE56A6


www.IllnessIsOptional.com carries some things at a 20%discount.


www.clickwell.com (guaranteed content, generic herbs and nutrients at lowest price)



COMMONLY USED PHARMACIES FOR COMPOUNDED MEDS OR SUPPLIEMENTS

Hopewell-800/792-6670
Coastal: 912/354-5188
Lee Silsby: 800/918-8831 http://www.leesilsby.com/

Wellness: 800/227-2627




COMMONLY USED DAN DR. LABS

www.greatplainslaboratory.com GREAT PLAINS LAB

http://www.gsdl.com/home/ GREAT SMOKIES LAB

http://www.doctorsdata.com/ DR'S DATA LAB

http://www.immuno-sci-lab.com/index2.html IMMUNO SCIENCE LAB




Here is also a link to Direct Labs if parents are having problems getting tests ordered from their primary

care physician. www.directlabs.com




BOOKS RECOMMENED FOR MORE INFO AND EXPLINATION ON SUBJECTS ON HOW TO HELP YOUR CHILD


1 read in explaining the autism reversal- Children with Starving Brains, by Dr. McCandless


Biological Treatments for Autism and PDD, By Dr William Shaw.


The Puzzle of Autism (explains how RNA plays into autism) by Dr. Amy Yasko


What Your Dr May Not tell You About Childhood Vaccinations, by Dr. Caves


Evendence of Harm, by David Kirby



A Drug Free Approach to Asperger Syndrome and Autism. By Judyth Reichember-Ullman, ND LCSW.,Robert Ullman, ND and Ian Lueker, ND. It has every single behavior and how to get treat it!


Autism: Effective Biomedical Treatments, by Jon B. Pangborn, Ph.D. and Sidney M. Baker, M.D


Recovering Autistic Children, edited by Stephen M. Edelson, Ph.D. and Bernard Rimland, Ph.D.


Facing Autism: Giving Parents Reason for Hope and Guidance for Help, by Lynn M. Hamilton


Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research and Recovery, by Karyn Seroussi. A fascinating account of a determined mother and her scientist husband's success in bringing their son out of autism


Healing the New Childhood Epidemics. Autism, ADHD, Asthma & Allergy by Dr. Kenneth Bock


Changing the Course of Autism by Bryan Jepson







********************************SUPPORT GROUPS AND DISCRIPTIONS************************


Biomedical DAN (Defeat Autism Now) Protical Support Group.

http://health.groups.yahoo.com/group/chelatingkids2/ THIS LIST IS FOR PARENTS OR FAMILY MEMBERS OF CHILDREN WHO ARE ACTIVELY CHELATING WITH A DOCTOR , OR WHO HAVE AN APPOINTMENT PENDING TO BEGIN CHELATION. THIS IS NOT AN INFORMATION ONLY SITE. If you are just starting this journey and looking for information, then below are some links that we hope will be of some help to you:



MAINE BIOMEDICAL AUTISM SUPPORT GROUP

http://groups.yahoo.com/group/Autismbiomedicalsupportmaine


This group is here to support Maine residence whose lives include and are effected or affected by those with ASD. (Autism Spectrum disorder, including but not limited to Autism, ADD, ADHD, Aspergers, PDD, PDD-NOS ect.) We are here to help in the pursuit of "recovering" or bettering their child's quality of life and to achieve a healthy full functioning future. Information on many biomedical treatments such as DAN(Defeat Autism Now)protocol, special diets, (GFCF, SCD, LOD) supplements (Minerals, Amino Acids, Vitamins, EFA's), chelation (DMSA- TD, suppository and oral, DMPS- TD, suppository, and oral, NDF+ ect), secretin, allergy reduction, both IGG and IGE avoidance and elimination, as well as rotation helps can be found here. We are also here to help support the families emotional needs with all we go through while caring for our family members with special needs.

support monitor, Christel King, christelking1@verizon.net, 207-318-3951


Autism Mercury Support Group

http://health.groups.yahoo.com/group/Autism-Mercury/

To discuss current issues related to the increasing incidence of autism the potential link between excessive mercury exposure. Topics include: mercury detoxification ("chelation"), mercury-related issues/news, and vaccination-related issues/news. Most members are parents of children with autism, aspergers, ADD, ADHD, PDD, PDD-NOS, SID, oppositional defiance disorder, apraxia, speech disorders, and/or other related symptoms. In addition to mercury, we also discuss other heavy metals (for example: arsenic, antimony, lead). Also welcome: mercury poisoned adults; other disorders/issues related to mercury poisoning; other biomedical treatments for ASD.



Autism Biomedical Discussion group

http://health.groups.yahoo.com/group/abmd/

The Autism Biomedical Discussion group has been created for the discussion of research and biomedical interventions as they apply to the investigation and treatment of autistic spectrum disorders. The ultimate purpose for this group is to empower parents and physicians to make informed decisions on biomedical treatments for the children in their care.

Topics of discussion include immunology, endocrinology, gastrointestinal issues, allergies, metabolic and mitochondrial issues, genetics, exposure to neurotoxins, possible vaccine injury, dietary and nutritional protocols, pharmaceutical and nutraceutical interventions. All topics of discussion need to be specific to addressing diagnostic and treatment protocols for individuals with autism.

Please be advised that group discussions can involve technical, scientific and/or medical terminology. Parents, physicians and researchers are encouraged to participate. Anyone with an interest in solving the mystery of autism is welcome.

This list is NOT for discussion of behavioral or educational interventions, or for the discussion of occupational and speech therapies. It is requested that you refrain from these topics during discussions on this list.


http://www.generationrescue.org/


..> ..> Generation Rescue is a parent-founded, parent-funded, and parent-led organization. Our mission is to share the truth with parents about the cause of their child's developmental disabilities so they can focus on treatment.

..:namespace prefix = v ns = "urn:schemas-microsoft-com:vml" />

Generation Rescue believes that childhood neurological disorders such as autism, Asperger's, ADHD/ADD, speech delay, sensory integration disorder, and many other developmental delays are all misdiagnoses for mercury poisoning.

..>..>


http://health.groups.yahoo.com/group/autismbiomed/.com

This is a support group for parents, professionals, friends and family interested in meeting and discussing caring for people with autism and related disorders. Our group will have online support as well as regular local meetings. Particular topics of interest are DAN! protocol, chelation, diets, and various other biomedical topics. All topics are welcome including school issues, district placement, therapies etc.




Autism_LDN@yahoogroups.com a group for those using LDN (low dose naltrexone).


http://health.groups.yahoo.com/group/HBOTherapyforAutism/ for more info on HBOT and support- there is also an online manual located at: www.hbotmanual.com

To find providers for hbot you can go to: www.hbotproviders.com


csb-autism-rx-subscribe@yahoogroups.com
The CSB Autism Council was created for Dr. McCandless' patients and consultees as well as those who want to support her ability to conduct non-funded clinical research studies. More than 20,000 copies of her book have been sold from many sources; only purchasing a book (for yourself or to donate) from will admit you to the group.



http://health.groups.yahoo.com/group/ASD_Kids/

This is an informational group geared to help you raise your Child(ren) affected with Autsim Spectrum Disorders. Autism Spectrum Disorders include, but are not limited to: Autism, Aspergers, PDD-NOS, Rett Syndrome, and ADHD. This is a list with loads of up to date research, facts, theories, and information regarding all aspects of Autism Spectrum Disorders. This group will not give you information on "THE treatment" to help your child, but rather will try to provide its members with information on ALL known treatments, both mainstream and alternate, for ASD children. From this wealth of information it is hoped that our members will be able to pick and chose those nuggests that will help their child(ren). Every child with ASD is different thus the "magic bullet" for one family may or may not be the magic bullet for another.

Online Asperger's Syndrome Information and Support (OASIS) site:
http://www.udel.edu/bkirby/asperger/


..> ..>
PASS

If no meeting is posted below for your area we suggest visiting ANDI (Autism Network for Dietary Intervention) www.autismndi.com. "The PASS List" (Parent Support System), managed by Karyn Seroussi and Lisa Lewis, consists of over 150 volunteers in 30 states and 11 countries. These parents have offered to provide support to other local parents "doing the diet". Many of them have founded, or belong to local support groups for dietary intervention.
Note: asterisks next to individual names indicate local GFCF Support Group Meetings

cthomas@bates.edu

jweagles@midmaine.com

recoveringwishes@verizon.net

Christelking1verizon.net

For MAINE residents

Contact the above. All others look on the national site

..>..>

FURTHER DIET INFO


GFCF resources:

www.AutismNDI.com (tips and online support group, and local parent volunteers)

www.gfcfdiet.com (food lists and online support group)


NOT ALLOWED ON THIS DIET- gluten (wheat, barley rye and oats) casein (milk protein) and often recommended soy as well

These things can be found also in school supplies and cuase issues for example


NO NO's most don't think about

Crayola washable magic markers (contain soy- regular ones are fine however) finger paints (contain gluten and soy) colored pencils (all of them have soy) play doe (contains gluten) all color wonder products (contains soy) Palmer Paints (all contain soy) Rose Art crayons (contain soy) stickers back (contain gluten always call company first), bandaids (can contain gluten call company to check), medical tape (woven tape can contain gluten), sunscreen (contain soy)


http://health.groups.yahoo.com/group/GFCFrecipes/ Recipe group for cooking a gluten-free, casein-free diet, especially for chidren. Parents needing cooking support, food questions and want to swap recipes for all kinds of GFCF cooking. Plain and Fancy, Snacks and Family dinners


http://www.missroben.com/ this is BY FAR the most comprehensive place to order allergen free of foods from MANY companies. They have a "free of" area where you can fill out what you can't have and it brings up ONLY items you CAN do from many companies make it easier to find what you are needing

SCD resources:
www.pecanbread.com

Book: Breaking the Vicious Cycle
www.breakingtheviciouscycle.info

LOD (Low Oxalate Diet):

Oxalates are a simple type of compound that is similar in structure to sulfate, except that the sulfur atom is replaced by two carbon atoms. Oxalates may be present in excess for those with Autism for several possible reasons. Scientists have shown that in conditions of bowel inflammation, oxalates are absorbed from the food and wind up in circulation in the body, causing mischief. Oxalates are supposed to all leave the body via the stool! Trying_Low_Oxalates-subscribe@yahoogroups.com





YEAST FREE DIET

Feast Without Yeast: Four Stages to Better Health, by Bruce Semon, M.D., Ph.D


http://www.yeastconnection.com/


FEINGOLD DIET

http://www.feingold.org/2englishintro.html

1. What is avoided on this diet?1. Artificial food dye and flavors [petroleum-based additives]

2. BHA, BHT, TBHQ [petroleum-based preservatives]

3. Salicylate-containing foods and non-food products

4. Aspartame (Nutrasweet, an artificial sweetener)

5. Artificial (synthetic) preservatives BHA, BHT, TBHQ


ALLERGY ELIMINATION OR ROTATION DIET

http://health.groups.yahoo.com/group/foodallergyautism/

This group is for parents of children who have severe food allergies and who also have an autism spectrum disorder. There seems to be a subset of children on the autism spectrum who have either severe food allergy and/or multiple food intolerances. The purpose of this group is information sharing.

Body Ecology Diet:
This is a commonly understood principle in alternativemedicine/nutrition. The ideal situation is where the blood is kept slightly on the alkaline side of the normal range (7.4). This is thought to discourage the growth of yeast, viruses, gut bugs, parasites and also discourage the growth and spread of cancer. Acidity also leads to conditions such as chronic fatigue, allergies, and arthirtis. It is suggested that every meal contain 20% acid-forming foods and 80% alkaline-forming foods.

Foods recommended on Body Ecology Diet:
Acid-forming foods (20% of meal):
- animal foods (beef, poultry, eggs, fish, etc.)
- buckwheat
-organiz, unrefined oil
-stevia (sweetening herb)

Akaline-forming foods (80% of meal):
- land vegetables (most)
- ocean vegetables
-millet, quinoa, amaranth
- sea salt
- herbs and herb tea
- seeds 9except sesame)
- mineral water (plain or sparkling)
- lemons, limes, unsweetened cranberries, and black
currants
- cultured foods (raw organic apple cider vinegar, raw
cultured vegetables, kefir)
- soaked and sprouted almonds

Neutrals (not acidic or alkaline):
- butter (raw)
- ghee

Foods NOT recommended on Body Ecology Diet:
Acidic forming foods:
- sugar, candy, soft drinks
- flour products
- beans, soybean products, and tofu
- nuts and nut butter
- wine, beer, alcohol
- saccharin, nutrasweet, equal
- commercial refined vinegar

Alkaline-forming foods:
- fruits (except lemons, limes, unsweetened
cranberries, black currants)

For more info check out:
1) http://www.autismndi.com/news/display.asp?c..News&shownews=20040721140600
2) www.bodyecology.com






Special helps for families


http://www.specialfoods.com/taxdeductions.html

for more info. http://www.danasview.net/taxinfo.htm for everything from equiptment to therapy miles and suppliments


..> ..> Tax Deductions for Allergies
and Chemical Sensitivities

..>..>

..> ..> Section 213 of the Internal Revenue Code applies to persons who itemize their deductions on Schedule A of Form 1040. Total medical expenses, which now include drugs and medicines, are deductible to the extent they exceed 7.5% of adjusted gross income. In addition to the obvious deductions, items such as special filters and air cleaners and the costs of their operation are deductible expenses. Vitamins and supplements, when prescribed by a doctor, are treated as drugs and medicines. All transportation costs for medical care are deductible including bus, taxi, train or airfare as well as out-of-pocket costs for doctor, dental and hospital trips. Auto mileage is deductible at 9 cents per mile. This deduction includes the cost to transport and visit sick dependents. (note: mileage changed- it's 18 cents a mile in 2006..)



Most importantly, Special Foods!TM products and food supplements qualify as a medical deduction when they are prescribed by a physician or other health professional for alleviation or treatment of an illness. (The IRS does not grant deductible status when the foods are considered to be for nutritional needs.) A leading case is that of Dr. Theron Randolph (Theron Randolph, 67 TC 481), where the Tax Court held that a deduction was allowable for "the additional cost of chemically uncontaminated foods". Uncontaminated foods require special care in growing, packaging, and transporting that result in a higher retail cost. The benefit received by patients was relief from medical problems. Similarly, costs for unusual foods required because of allergic reactions to foods are deductible expenses, because they are eaten to provide relief from medical problems.

It is important to note the wording, "for alleviation or treatment of an illness". The IRS regularly refuses deductions for substituting foods "for nutritional needs", such as special diabetic diets or self-imposed vitamin and organic food plans. When prescribed by a physician or other health professional for alleviation or treatment of an illness, the added cost of any special foods over that of commercial foods is deductible. In other words, when you cannot eat regular foods, the costs of the special foods above the costs for common foods you are replacing in your diet, are deductible. For example, if you eat fresh malanga tubers, you would deduct the difference between the cost of malanga tubers and the cost of white potatoes, the item the malanga tubers would be replacing. If you eat malanga flour, you would deduct the difference between the cost for malanga flour and the cost of regular wheat flours. When you use malanga noodles, you would deduct the difference in price between malanga noodles and regular wheat noodles.

Other deductible expenses should include: 1) extra shipping costs, and 2) the additional mileage for shopping over that of local grocery trips, at 9 cents per mile. (18 cents in 2006- check IRS for 2004, 2005, etc rates..)

Finally, extensive documentation is essential in case of a tax audit. Keep all receipts and be sure your health care professional gives you a prescription before you incur expenses.

..>..>




WATCH FOR NAA's special helping hands scholarships- http://www.nationalautismassociation.org/helpinghand.php


SOUTHWEST AIRLINES MEDICAL PROGRAM- they will fly the child and parent to the needed Dr. at a highly discounted price. We have used this to send some of our kids/adult friends with autism to see DAN dr's out of state for as a low as 24 dollars for a round trip ticket….. http://www.southwest.com/about_swa/share_the_spirit/medical.pdf


Careforce.- Free Airline tickets from Continental Airline to visit doctor out of
state. You will call Melia Reed at 281-360-5314. All she needs is a note
from a doctor stating that you have an appointment on certain date.
Her fax number is 281-361-7114. You can use this program once a
year. ***NOTE*** This was posted in 2007.


http://www.miracleflights.org/
They work with all these other airline programs and if they can't
get tickets through one of the programs, they buy them for you.
Also, they will fly both parents along with the patient.


Angel flights


AutismLink (www.autismlink.com) has a list of over 7100 providers of service
all over the Country. If you're a parent looking for therapy or support, or
a provider wants to add yourself to our database, we welcome you to visit.
It's all provided free of charge. You can search by zip code to find the
providers closest to where you live. (Speech therapy, Dan doctors, OT, ABA, etc. etc.)

We also have a mentoring program, so if you're new to the diagnosis and you
need some help, we match you up with someone in your area who has
volunteered to be a mentor to help you through the diagnosis and in finding
services.



http://health.groups.yahoo.com/group/AutismForSale/.com – place for buying used therapy equiptment




24 or more hour respites available across the country


We have 12 professional staff members ready to travel to you via bus,
train, plane, etc., to provide 24 or more hour vacation respites for
you and your family. We will either stay with your loved one or
accompany you on your trip. You can visit Professional Education and
Respite Service LLC at www.vacationrespite.com for more information or
call toll free at 888 664 9886. If 16.00 per hour for licenced, fully
insured, experienced Special Educators or Mental Health Professionals
who have worked extensively and provide educational and meaningful
activities with children and adults with a variety of disabilities
works into your budget, check us out. If you want a just a baby
sitter, to watch movies, and eat popcorn with your child, call a
babysitter.

there is a yahoo group dedicated to autism and insurance coverage at http://health.groups.yahoo.com/group/autism_insurance_information

http://youtube.com/watch?v=Bzk9GHD7tRY -it's got some great snack ideas, some cross contamination cautions, some products, recipe tips..etc

New beginnings will begin holding online conferences monthly. Topic
will be different each month. You can register here:
http://www.nbnus.com/NBN_online_conference/preregistration/
       
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