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Yesterday was our evaluation. Posted By: minnakay
Posted On: 06/27/2008
Well, its official, my son is Autistic. Down on paper makes it so real. I've known for a few months now but to have it written down on one of those diagnosis sheets.....Autism (diagnosis code 299.00). I asked the neurologist, so this is official, and he said yes, if you need it in writing I can take care of it. I guess for the deeming waiver.?.
I have decided their is not a word for this emotion.
I'll start back with the hope tomorrow...
       
MyEverest wrote this reply on 06/27/2008
I knew all along too,but once it was on paper I had a 3 month adjustment period. It was really hard.

Motherof4 wrote this reply on 06/27/2008
Even when you know already, it's still a wallop to get the diagnosis. I felt the same way. I felt like the world had turned inside out, everything felt... heavy, I guess. Later, the feeling lifted, but the first days are just plain hard.

mercurymom wrote this reply on 06/27/2008
((((HUGS)))) nope..there is no word for this...

shannonj wrote this reply on 06/27/2008
I remember feeling like I was leaving the planet and everything I knew behind....It felt like my world was going in slow motion and everyone else's life kept the normal pace. I didn't understand how the sun could rise the next day when everything seemed to shift with this new diagnosis. You're right, there isn't a word for it. But there is hope, and that is what will wake you up tomorrow, and energize you for the days ahead...

saveseraphine wrote this reply on 06/27/2008
I remember when I was pregnant and we decided to name our daughter Seraphine. I was proud of that name. I would practice spelling and seeing how beautiful it was on paper. I never imagined seeing her name on a diagnosis sheet for autism. It's still painful to look at, but not as painful as the first day. Seeing it on paper for the first time makes it so real, forcing you out of the little bit of hope inside us that all of this was a phase that would go away. If I had to put this in a word it was like death. The mom I was and the child I thought I had all died that day. I allowed myself to mourn as long as I needed to. But because of my faith I new that with death comes a new life. Our lives our very different, but still beautiful.We're all here for you.

zacksmum wrote this reply on 06/27/2008
Having not had a formal diagnosis, I can't fully relate to that, but it did really hit home for me last year when the preschool refused to accept Zack because he wasn't talking....they seemed to think that because he didn't speak.. he didn't think... I have a lot of educating to do around here...I subsequently enrolled Zack in a Montessori preschool, where he is doing really well.There are still days when I wonder who in this universe decided that I was up for this challenge... I never did want to be a teacher... but here I am seriously considering the prospect of having to home school my child and/or seriously educate the educators about autism!

KevinLivsDad wrote this reply on 06/27/2008
We where wallop'd by the dx as we went from NT to ASD in 60 seconds... But, in those 60 seconds I was pretty sure that is what we had. Anyway, I think all of here know what you are going through

NeverStop wrote this reply on 06/28/2008
Hugs to you. Even when you KNOW, deep down you are hoping to hear, "Oh no! That's not what it is, not autism." Then when you hear it and see it on paper it is almost like, Where is my child, the one I came in with? But we will hope FOR you until you feel better!

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