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How do you deal with the wearyness? Posted By: striving
Posted On: 07/18/2008
Am I the only one who feel this extreme weariness that hangs over me like a cloud? Do you guys feel kinda numb and tired or is it just me? Am I just feeling sorry for myself now? I feel I not only need a vacation but a vacation from my mind? Do you guys know what I mean? A vacation from all the thoughts of therapies, getting my son better, what the future holds? I sleep but I wake up thinking again, researching again. This war again Autism is exhausting. How do you guys make it through, other than extreme prayer; which I'm doing. I thought I knew what weariness was before with all normal functioning kids but I did'nt. I pray to walk and not be weary and yet I'm so tired mentally. Maybe I need a vitamin of some kind. I don't know what I need. The care of our chldren is so constant, so mind consuming and time consuming. I don't want to be admired by people who say they admire me, I just want to be. Are all ya's days hard or somedays easier? Do you just accept the craziness of it all or do you constantly fight to change it?
       
tabaithasteward wrote this reply on 07/18/2008
I'm pretty new at this autism thing my son was dx in Sept. But the stress and physical work was almost always there from age 1 anyways. So yes I believe we all have the same wearyness as you we do and do to get through the day and to find a way to make the autism better or to recover our babys. Thats our jobs and thats the love that we have for them. so to let you know you are not alone. You need to take a time out and summer is the perfect time for it find something you all enjoy and just go do it and while your out take a deep breath and just enjoy no matter what the out come is cause I believe it could be worse LOL

NeverStop wrote this reply on 07/18/2008
First of all, big big hugs to you and please know you are not alone in this! I am tired all the time but I try not to let it get me down too much. I will try to share with you some of the things that help me. I try to take little breaks at scheduled times that are just for me and I guard them carefully. It is my husband's job to read my son stories at night. During this time I read a non autism related fiction book (reading is my number one hobby!)Okay so I only get about 20 minutes, but I look forward to that alot and it is a very relaxing time. I get up at 5 sm and I sit with the computer doing my "autism" stuff and drink my coffee- again, scheduled but very relaxing even if it is at 5 am lol!! I guess it sounds pretty lame, but actually just having those 2 things to look forward to, it helps my mental health. And speaking of the vitamins: Yesterday I was ordering DS supplements and DH's supplements and I thought- how ridiculous that I don't take at least a vitamin! So I ordered some for me. My next "task" for my mental health is finding some time to exercise, but I will let ya know when that happens! Oh and I pray a lot too. That I can wake up each day with a positive outlook ready to take on the world and ready to handle all that I need to. That works better for me than asking God to take it all away. (although I do that too in my weaker moments). Please write anytime if you need a pick me up or encouragement. We are here for you! ELLEN

frogfoot1969 wrote this reply on 07/18/2008
You are not alone!! Even before Autism I use to say "I need a vacation from myself", lol. When I start to feel overwhelmed I step back and take a mental break from it. Because it is very overwhelming and exhausting. Then if a few weeks or months I will start my research back up again. I think it does get better over time (once you've read everything known to man,lol, and you feel you should have your phd on Autism). I do accept the craziness of it all and pray for the strength to handle it. Then I thank God everyday for giving me the strength and providing what we need. A multivitamin is a great place to start because you have to take care of you first before you can care for anyone else. As Mom's we always put ourselves last but when it comes to our health we need to be putting ourselves first because who is going to care for our children if we get sick?? Take a break, do something you love doing, even if it is just being outside for a few minutes (I get refreshed caring for my garden). We are all in this together!

carmel66 wrote this reply on 07/18/2008
Sometimes you need an autism break. Not that you get a break from the stuff you have to do - but a break from the stuff you read/research. DOn't feel bad - you need a break to stay fresh. And I know nighttime is a perfect time to research - but it doesn't lend to good sleeping. I try not to research too much late at night - early after they go to bed, force myself to stop and read soemthing else. You also should look at the vitamins... I take a lot of what my son takes and it helps a lot. Also, you may be a little depressed - can't imagine WHY - don't be ashamed of that. folinic acid helps clear the fog from my brain...I have to run but am sending hugssssssss

Motherof4 wrote this reply on 07/18/2008
I think it's impossible to go through the high-maintenance stages of autism and not feel really weary. I agree with the self-care suggestions here, and would like to add one of my own: Epsom salt baths. They're not just for children with tummy troubles, they're also for weary, stressed-out parents. You might only be able to take one after your son is asleep, but it's worth it.

shannonj wrote this reply on 07/18/2008
Lots of good advice you've been given already....We all get really stressed and that can totally zap energy. I agree that taking a break from autism is so beneficial. Plan a lunch with a girlfriend and talk about everything but autism. Go to be early, when you can. Turn off the computer and turn on some good music. Make sure you feed yourself healthy foods...Give yourself some time and space BEFORE you need it--be preventative and not reactive....And laugh---read funny books, watch comedies...Things that I never thought would be funny just crack me up now because I look for humor in everything--it is survival!

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