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When it's no longer autism.. Posted By: mercurymom
Posted On: 08/02/2008
Anyone here reached the point of it's no longer autism, but delays, losses from vaccines,life time of growing up disabled ect. that is what's you childs issues?

I have spent the last month working with autistic kids on many levels and ages..and what I took away from it most of all...John's autism is more of less recovered..what's left...lack of physical skills, lack of speech...that's it. He has eye contact, comprehension, desires, sense of humor, but he is still a disabled person. I do not think he will ever be able to speak again..3 strokes...and he is unable to even make a sound. He knows that, he knows he cannot scream for help, or call out to us, so he stays close to people, he fears being lost. He can sign a bit, but again, the physical skills are holding him back. He longs to do school work and learn..it's as if he cannot get enough from books and we spend hours catching up there. ANYONE?? now what? I feel so lost. I understood stimming and pinching and screaming and hair pulling...now I have a nice calm teen in jeans and a polo shirt..thats as lost as ever..because lack of communication keeps him from peers...so do his physical issues..odd place we have entered here... and I wonder...will he keep recovering..or is this as good as it gets? I can live with that. I lived with a poop covered house didn't I?

Yes, I do still see the autism but its odd, I see it when he is near people who stress him or are unkind or say things about him. He will withdraw at that point and pull back into himself. It is as if it is a form of protection..and we have to coax him back to us when it happens..
Tags:  new phase of autism
       
momof2boyz wrote this reply on 08/14/2008
The autism will always be w/your child. There isn't a cure...but there are things we can do to help them manage the symptoms

momof2boyz wrote this reply on 08/14/2008
...I'm sorry, this website never wants to print my entire comments. I'm really tired of wasting time when this happens all the time to me.

momof2boyz wrote this reply on 08/14/2008
I speak w/some confidence because I was adopted. I located my birth mother a few years back

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