This is the first ime i have written anything about my son mason i have been visiting this site for 4 years now and the stories and experiences and suggestions have helped me immensly. My son is now 14 and only five years ago was he dx with autistic spectrum disorder. My son was born at 27 weeks he is developmentally delayed deaf and has cerebral palsy and also dandy walker syndrome. My best freind has a child masons age who has apsbergers so early on i knew mason may have some type of autism I lived Superior Wi. and continually they said because of his other deficits they did not to give him any testing to see if some was up. I fought them tooth and nail. Finally when my son turned 12 he was in crisis with his episodes And of course so was I. The Docs and school district no one would help my son since none of hi s behaviors were exhibited at school. As a single mother i was outraged i went to social services and got no help. Finally mason came home off the school bus accompannied by the driver he was crying uncosoleble i called the school and they said they did not know why witch seemed incredulous to me as mason had a one to one for safety reasons. From then on i could not get him to go to school without him going into a full blown episode. The school social services everyone that would listen i had warned that mason was not getting his needs met and only a matter of time before this would happen. I dont know what happened at school that day or do i care at this point. But when the school charge by developmentally delayed son with truancy i was outrage. I showed up at court and they were incredulous that that they would charge with this They then gave him a guardian en light She said that i should move to Mn because they have services there for my son and got the court to order psch testing thus the final dx of autism was added to the list. I found it incredible that thes so called professionals would not help me find help for my son the autism specialist at his school said she an autism screening with mason twice on my inssitance and each time said she did not find anything that would warrent further investigation. I had enough I sold my house and moved to Duluth Mn. Since the year i have lived here mason attends MSAD the school for the deaf is in a program for special needs kids like my son called the nest program he is thriving, I forgot to tell you that Wis does not serve special needs deaf children at their Deaf school I wrote my congressman my governer and my mayor and to the powers that be at the school how incredulous i found it that they do not have services for my deaf son just because of his other special needs. And the advice i got from social services when mason became beyond my control with his episodes was to to call the police or put him in the psch ward can you beleive that. A ddd child in a psych ward youve got to be kidding. I am one of the lucky ones that i could move. Though i had to sell my home the only one mason ever knew The services he now recieves are wonderful and i am watching him blossom and i see the depression gone from him and also the episodes diminishing to a level we both can manage them. Well i guess ive gone on long enough again the stories i have read here have helped me incredibly given new stregth ideas and insights. THANK YOU FOR ALL YOUR STRENGHT AND TRUTHS
I had a meeting with the hospital and now I know Sebastian has PTSD,several mood disorders,and the spoiled kids syndrome lol so far so good I guess! lol
