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Mb12

Hey everybody! I just got some mb12 that you are supposed to put under the childs tongue to let it disolve. Someone told me this helps the child with behavior? I tried to get him to put it under his mouth and he threw a fit and wouldn't open his mouth at all. Does anybody have any suggestions on or if I can give this to him any other way with the same outcome?

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Posted By : kgirl2004 on 27th Feb 2009
 
A big step back

After a miraculous start to the year and even a decrease in services we have bottomed out. Aaron went from being tested for gifted to non-compliant and failing. Most of his time in class is spent hanging under his desk and picking lint off his jacket. The principal asked to call a meeting to change his IEP. Poor guy's gone from 1 hour of resource to 12 including adult escort--he disappeared for the first hour of school two days in a row! I have been told that we are on our way toward a self contained classroom! GRRRRR! I feel so frustrated especially because we had been doing SOOOOO well. One good thing came from it. Our county's autism specialist just shrugged her shoulders and said "He's been through tough times before and gotten through them and it will be the same this time." I have to admit, he is happier now than he has been in a long time. I can't complain about that. I guess I'd rather have a happy kiddo, even in a self contained classroom that a depressed kid in a regular classroom.

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Tags: regression
Posted By : Aaronsmom on 25th Feb 2009
 
Tantrum Over Color Pencils 2/24/09

Just got home from the second interview with Tri Counties and M is acting up. He wants to color, but only wants to use J's B-Day pencils and not the ones that he has. Father tells M that those are J's and that he can use the others. I try to tell him that he's are better since there are 50 colors and that he can use them and not J's. He then follows Father through the house trying to grab the J pencils from Father. I stopped him by garbing his arms and it began. He full on screamed, tantrum, kicked, tried to knock thing over for about 40 min. He would not talk to me. I would ask him why, that he needed to settle down, then he can color. When he is like this he doesn't communicate at all besides by crying, screaming, or making noises. I tried to get him to settle, but it took a long time. Then when it was all said and done, he was able to color with his pencils and talk to me. He was calm during his coloring like nothing happened. He talked to me about his art and other things calmly and asked me to come close to tell me (whispered) he loved me. We video tapped this. I was hoping that this would help Tri Counties or others to see what he is like at home and give us some advice to what to do. I am feeling like I am running out of options in my playbook and new new tools.

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Tags: tantrums, behavior help
Posted By : tmalone on 25th Feb 2009
 
Diagnosis Trouble

Nightmare at the moment my daughter can not get diagnosed over here for asd, everybody else can see she fits the triad apart from the paediatrician at hospital so wont even put her on the nadar scale. My son is going through diagnosis last time he saw the psychiatrist she told him that all his problems are because he was born by caesarian section and that he should start behaving like a normal boy. We see this lady again in 2 weeks but next time im taking back up in the form of the director of autism jersey. Parents should not have to fight so hard to get their children diagnosed. Without a diagnosis you can't get any help or support with education. FRUSTRATED MUM

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Posted By : JERSEYNIKKI on 25th Feb 2009
 
Home-Based ABA Programs

Just wanted to let you know that the new issue of Positively Autism's newsletter has been published. The topic is home-based ABA programs. http://www.positivelyautism.com/volume4issue1/

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Posted By : PositivelyAutism.com on 24th Feb 2009
 
IMT is Working

Since early September we've been doing a therapy with Harrison called IMT (Integrative Manual Therapy). It is not autism-specific, but they do have an autism program. There are IMT centers all around the US and a few in foreign countries. We drive 2 hours to Asheville, NC about once a month for Harrison's eval. and to get some clinic time. In the interim we do a home program, which consists of about 20 minutes a night of "hands on" time while he plays on the computer. Longer is better, but that seems to be all we can handle on a consistent basis. A friend told us about IMT and the great results that she had for her own health. Another friend is taking her daughter, who had a severe head injury in a car accident several years back and seeing good results. The first main areas that we targeted were the limbic system and also the liver. Within a few weeks of starting up Harrison started going to bed a lot more easily. We used to have to run up and down the stairs half the evening trying to keep him in his room and I was worried that he wasn't getting enough rest. Now he stays in bed and goes right to sleep almost every night. I think before, he just couldn't unwind enough to settle in until he was exhausted, despite a warm bath and body brushing. Another thing we've been working on is his gait. He is a tall 10.5 and still has a kind of gangly puppy look about him. We went to Target the other day, and not only did he do a great job in the store - not hanging on the cart or trying to crawl in it, but I also noticed how much better his walk is now. He's still a bit gangly, but it is noticeably better. After the last trip to Asheville we started to focus on speech centers. He has been more vocal (still very apraxic and not speaking) and has been spending time every night screaming at the top of his lungs. I really need to visit all my neighbors and assure them that we are not torturing him, because it sounds that way at times. In part, he is re-enacting a funny scene from Monsters, Inc., which he's been watching a lot lately, but I also think he is just enjoying using his voice. He wasn't able to scream until about 8 months ago and now he's just going to town with it. This is a long process, but I have to say, it is the most impactfull thing we've done with him so far. I'm so grateful that I learned about it and that we have a center that is accessible, if not nearby.

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Posted By : LifeCoachLaura on 23rd Feb 2009
 
PANDAS

February 23, 2009 There is a health condition recognized in the biomedical field for autism and related disorders called PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections). This is a condition caused by an immune reaction triggered by the presence of Group A Beta-Hemolytic Streptococcal infection. Various strep bacteria produce toxins as part of their infectious nature. The immune system responds in an attempt to neutralize and eradicate the toxins. However, this immune-toxin (aka. antibody-antigen complex) reaction creates immune complexes which are deposited in various tissues of the body. If these immune complexes land in the kidneys there is an immune reaction called post-streptococcal glomerulonephritis, in the heart it is called rheumatic fever, and in the brain PANDAS can ensue. This autoimmune reaction (self-directed immune reaction to body tissue) in PANDAS is directed to the Basal Ganglia area in the brain. This area has been associated with disorders such as obsessive-compulsiveness (OCD), strange body posturing/movements called chorea, and the typical TIC movements (quick jerking or vocal tics) associated with Tourette's Syndrome. With obsessive-compulsive behavior anxiety is usually a major problem. Some individuals on the autism-spectrum suffer with extreme anxiety, but without obsessive-compulsive behavior, while in others the OCD is severe. Even though PANDAS remains a controversial topic in medicine it is reported that PANDAS can cause or exacerbate Tics, Tourettes, and Obsessive-Compulsive Disorder. Approximately, 25% of individuals who have one or more of these conditions have what appears to be PANDAS. Unfortunately, treatment options are limited, although certain biomedical autism treatments such as low dose naltrexone, dietary intervention such as the gluten and casein-free diet, and various supplements that support normal immune function such as Transfer Factor can be helpful in reducing the overall reactivity of the immune system, PANDAS remains a difficult condition to treat. Some individuals respond quite well to antibiotics. I have seen in cases where a short course of antibiotics, such as 10 to 14 days of Keflex, Penicillin or Zithromax definitely helps, particularly with the OCD behaviors. In other situations more advanced biomedical therapies such as intravenous immunoglobulins (IVIG) are needed to short-circuit the autoimmune response. Plasmapheresis, which is a blood cleansing process performed to help diminish the immune-toxin reactions, has shown benefit for some individuals. Unfortunately, no treatment is 100% effective for everyone, and some people remain symptomatic even after medical intervention.

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Posted By : 4muskateers on 23rd Feb 2009
 
Summer Day Camp Proposal

I met with Easter Seals today regarding setting up a summer day camp at Gunstock Inn & Fitness Center. I am doing a mini market analysis to see if any of you are this area, are you looking for a day camp, what is the age of the child you are trying to place, and what would you be willing to pay per child for a one week session. Any input and suggestions are helpful

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Posted By : 4thekidz on 20th Feb 2009
 
A Visit to Regal Rajasthan – Experience of Lifetime

Come; experience Rajasthan – the land of kings. Explore regal landscapes drenched into different hues and rich history. Explore a land which depicts true essence of India. Explore a magical land which echoes its age-old culture and tradition in each and every aspect.

Rajasthan – the largest state of India – enfolds in its laps of diverse attractions to offer its visitors. Ranging form shimmering sands of vast Thar Desert to lovely landscapes of Mount Abu and Udaipur, Rajasthan is a diverse landscape. Its diversity has made it one of globally famous tourism destinations of India.

And diversity of the royal Indian state of Rajasthan can be seen in its each and every aspect. Cultural diversity and geographical diversity are mesmerizing features of the state – plus points to boom in tourism in the state. Whatever parts of the state tourists move in, they find something new and something extra on their every step. They find different culture and tradition. They find people wear different costumes and more.

Rajasthan is widely famous for its rich culture and tradition. There are several magnificent monuments majestically standing on the desert landscapes, depict rich cultural heritage of India. Fairs & festivals are celebrated in the state with full of mauz and masti, we mean full of zeal and zest. People of all ages participate in colorful and festivals of the state. Girls and women applying Menhadi on their hands, palms, and feet, look beautiful. Fairs & festivals provide visitors to see the rich culture and custom of the state by close.

Majestic monuments are not to be missed attractions of Rajasthan tours & travel. Monuments are asset of Rajasthan. They are asset of incredible India. Majestically standing on the desert landscapes, monuments narrate the saga of heroism and romance of their erstwhile rulers. City Palaces, Lake Palace, Amber Fort Palace, Samode Palace & Haveli, Mehrangarh Fort, Golden Fort, Chittorgarh Fort, Ranthambhore Fort, Pushkar Temples, Ranakpur Jain Temples, Dilwara Jain Temples, Ajmer Dargarh, etc are worth visiting monument attractions of Rajasthan India tours.

Cities like Jaipur – the Capital City (popularly described as the Pink City of India), Udaipur – the City of Lakes, Jodhpur – the Blue City of India, Jaisalmer – the Golden City of India, Bikaner – the Camel City, Mandawa – the City of Frescoed Havelis, Bundi, Kota, etc are worth visiting on Rajasthan tours. These cities provide opportunities to exploring majestic monument attractions of the state. Also these cities provide opportunities to shopping for exquisite handicrafts, beautiful jewelleries, etc. Rajasthani handcrafts are very popular among tourists from all over the world.

The state of Rajasthan is also famous for camel safari to explore its rustic charm. Tourists don’t forget to explore its traditional villages and shimmering sand dunes by camel safari. There also several wildlife sanctuaries and national parks rich in flora and fauna. Ranthambhore, Sariska, Keoladeo Ghana, etc names to few. There are several travel agents and tour operators who offer travel and tours package for Rajasthan to enjoy mesmerizing vacation and tourism. Book your package well in advance from any one of reputed Rajasthan travels agent and get ready to treasure delightful experiences of lifetime.

Author Bio:-

Rajesh kumar is an eminent analyst and writer in Travel & Tourism related topics. He has authored many books on tour guide for Rajasthan car rental services and rajasthan tour. Now he is rendering his services to http://www.rajasthancityguide.com

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Posted By : on 19th Feb 2009
 
'Bad Science' Links Vaccines and Autism, Officials Say

Bitter feuding over a possible link between vaccines and autism won't go away despite a strong rejection of that theory by a special federal court. Thousands of families were hoping to win compensation and vindication through three test cases presented to the court. They contended that a combination of the measles-mumps-rubella vaccine plus other shots triggered autism. Officials with the U.S. Court of Claims said they sympathized with the families, but there was little if any evidence to support claims of a vaccine-autism link. The evidence "is weak, contradictory and unpersuasive," concluded Special Master Denise Vowell. "Sadly, the petitioners in this litigation have been the victims of bad science conducted to support litigation rather than to advance medical and scientific understanding" of autism. Attorneys for the families said an appeal is a distinct possibility. They also noted that the court still must rule on another theory that vaccines once carrying a mercury-containing preservative are to blame. The head of a consumer group that questions vaccine safety said she still felt there were the possibility of a link. "I think it is a mistake to conclude that because these few test cases were denied compensation, that it's been decided vaccines don't play any role in regressive autism," said Barbara Loe Fisher, president of the National Vaccine Information Center. Science years ago concluded there's no connection, but Thursday's rulings in a trio of cases still have far-reaching implications. The move offers reassurance to parents scared about vaccinating their babies because of a small but vocal anti-vaccine movement. Some vaccine-preventable diseases, including measles, are on the rise, and last fall a Minnesota baby who hadn't been vaccinated against meningitis died of that disease. "We need ongoing research into the causes of autism but cannot let unfounded myths keep us from giving our children the proven protection they need against infectious diseases," said Dr. Joseph Heyman, chairman of the American Medical Association. More than 5,500 claims have been filed by families seeking compensation through the government's Vaccine Injury Compensation Program. Thursday's rulings dealt with the first three test cases to settle which if any claims had merit — and unlike in civil court, the U.S. Court of Claims doesn't require the families to prove the inoculations definitely played a role, just that they probably did. "I must decide this case not on sentiment but by analyzing the evidence," said Special Master George Hastings Jr., writing specifically about Michelle Cedillo of Yuma, Ariz., who is disabled with autism, inflammatory bowel disease and other disorders that her parents blame on a measles vaccine given at 15 months. "Unfortunately, the Cedillos have been misled by physicians who are guilty, in my view, of gross medical misjudgment," Hastings concluded. Lawyers for the families said they were disappointed. "There was certainly no scientific proof that vaccines caused autism, but that's not the standard; the standard is likelihood," said Kevin Conway of Boston, who represented the Cedillos. "We thought our evidence was solid." Autism is best known for impairing a child's ability to communicate and interact. Recent data suggest a tenfold increase in autism rates over the past decade, although it's unclear how much of the surge reflects better diagnosis. http://www.foxnews.com/story/0,2933,492204,00.html

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Posted By : momof2boyz on 13th Feb 2009
 
Autism Family Weekend

The time has come again for the Autism Family Weekend at Gunstock Inn & Fitness Center. I am in the planning stages and am asking anyone if they know of any other events occurring in April so as I don't plan for the same weekend. I am also extending out to anyone who would like to come be a vendor, speaker etc. Please contact me with anything.

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Posted By : 4thekidz on 11th Feb 2009
 
school uniform

When all the kids started the new year in september i went out to get all there unifoms. It can get very costly with 4 kids, i went to a place called school kit they do all the uniforms in one place and its the only place were sean can get trousers that fit prob and feel ok for him. But when he got them on he hated them couldnt stand the feel of them all 3 pairs that i got him no so i washed them all but no still didnt like this i went back to the shop and asked them about the trousers they said that a diffrent comp now supply them with their clothes so it might be the mertrail that had changed. So i had to get sean some black jogging bottoms to wear which were fine. I went to the head in sep and told him the prob i had he was fine as at least sean was coming into school in a good mood. Thats fine this went on till now. The head said that sean needs to be wearing the uniform i then reminded him the chat we had in sep! He said that i should shop around to get them i told him i have been everywere so now i have to wait and see if they will exclude him for this!!!! Anyone have the same prob as me with the feeling with clothes and new shoes?

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Posted By : nuttyclare28 on 05th Feb 2009
 
Maine Bills That Will Impact Children With Autism

Please, take a moment and look at the new website I created today. There are two bills in the Maine Legislature that will have a direct impact on our children. All the information is there as well as what we can do to let our united voice be heard. Please email everyone you know about this site. There is no money attached to it, no donations, it's just me, trying to rally people to take notice at what's happening at this very moment at the State House in Augusta Maine. www.autisminmaine.org

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Posted By : MAEProject on 05th Feb 2009
 
Obsessive behaviour

It has been a little while since my last post. Thing here are still a little ify. Preston's ot hasn't been around much and I'm not too sure why, and because of the flu the kids have been home from school most of the week. Preston these last few weeks has been playing this game (mario cart) on our Wii. Don't get me wrong I do put restrictions on it but he has been really obsessive about it. I know that there is something about that game that is stimulating him, but he no longer is interested in any of his other toys, when he isn't playing the Wii he is crying that he wants to play the Wii. I have attempted trying to stimulate him with other games and toys, but he is so focused on the next time he is allowed to play that he just sits and rock on the couch until it is time to play. I am sure if I let him he would play that game all day and night. I have even taken the game away for 2 days to see if I could get him to focus on somthing else. I don't know if I am handling this right or not... any imput would be very helpful.

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Posted By : Karen on 05th Feb 2009
 
update

We have been having a lot of snow days lately which has really thrown my little guy off. Last week I literally had to drag him out of bed while he screamed "No school, no school" Ugh. I kept him home Monday because he was not feeling well. He woke at 5 am this morning and was ready to go, thankfully I didn't have much protest about school and when I picked him up he said "School was so much fun today" his articulation isn't that great but I understand what he says. I am so happy he is using sentences now and he is back to loving school. While we parents were waiting for the kids to get out one of the Mom's was telling me that once she saw my son comforting her daughter when she was crying and she can't believe he has Autism! That is so awesome! Comforting a peer is one of his IEP goals and I had no idea he was doing this.

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Posted By : frogfoot1969 on 03rd Feb 2009
 


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