Hi, we are new here and I thought I'd share a quick funny with you. My wife called me at work the other day all excited. She said there are 2 little boys at the door They want to know if L (our son) could come out and play. This has never happened before and she had no idea what to do. Our son is 8 years old and has never interacted with any of the kids in our neighborhood yet. I chuckled and said to her "here's an idea, let him go out and play!" so she did and they had fun kicking his soccer ball around and running around the house. I guess they enjoyed his company as well because they came back looking for him several more times that week. Well that's my story for today. I love to blog so you'll hear from me again soon. PEACE! BR1AN

Harrison and I went to the neighborhood Fall Festival today. It was held in the grassy area behind the community pool. We went because they had cotton candy and a bouncy house, two of Harrison’s favorites. As we got near the pool we could hear the screaming kids from across the parking lot. In the past this might have been enough to send Harrison home, despite the promise of cotton candy and bouncing. Instead, he walked a bit faster as the big inflatable house came into view. Not only was there a pit for jumping, but it also had a slide area. There were a few teenagers stationed around inside to supervise, but it was still mostly just kid chaos. Harrison climbed in eagerly and after a bit of tamer bouncing, decided to try the slide. It was a fairly narrow area for climbing up and at a very steep incline. There was no such thing as waiting your turn in line and kids pushed past each other and clambered as fast as they could to get to the top for the slide down. Harrison really wanted to do the slide, but because it was so steep, with not much in the way of hand-holds, he was having a tough time getting all the way to the top. He’d get most of the way and then lose his grip near the top where the slope was the steepest. I’ve been really trying to be more and more hands-off in these situations, especially when other kids are involved, although it isn’t always easy. I hang around just in case, but try to just allow events to unfold without my interference. It’s a lesson for me in forbearance and in letting Harrison make his own way in the world. My heart would start pounding as he’d get near the top, hoping that this time he would make it all the way up. The whole edifice was swaying with the weight of other kids trying to climb up and the ones who were sliding down. It seemed almost impossible to get anywhere under those conditions, but the other kids clambered monkey-like to the top with out any apparent effort. For the first 30 minutes he repeatedly tried to make it to the top, without success, but with a big smile on his face. He’d get to the steepest part near the top and then slip back down. I told myself that I shouldn’t feel bad for him when he was clearly having such a good time, but it was hard to watch him struggle with so much determination. Other Mom’s stood in loose groups under the picnic shelters and chatted to each other while their kids raced around somewhere in the background. I stood by myself next to the bouncy house biting my tongue and silently rooting for Harrison to make it all the way up. At last it looked like he was getting very near the top and that he was finally going to make it, but two other boys had taken up residency at the top of the slide and were blocking his way. I couldn’t hold it in any more and finally barked, “Slide on down so other people can go!” Fortunately, children are conditioned to obey adults and they moved out of the way just as Harrison achieved apogee and began his descent. I gave him a big thumbs up as he smiled at me through the netting and walked around to try again. He tried again for another 20 minutes or so and I was starting to get to the point where I didn’t know if I could stand watching this for too much longer. Just then one of the teen-aged girls who had been supervising earlier came by and looked in at the melee. She asked me if Harrison had made it up yet and I told her he had. She smiled and asked me how old he was. “He’s 10,” I said. “I’m glad he got to slide” she answered, and walked away. It is one of those unwritten rules of the Universe that we may never know how much our kind words mean to others. At that point I stopped feeling sorry for myself and stopped feeling bad for Harrison and his struggle and all the other struggles he will make in his life and started enjoying the afternoon. I still stood vigilantly outside the bouncy house, but I shared in Harrison’s fun instead of worrying about what he wasn’t able to accomplish. He made it to the top one more time and then got out, tired and happy, to eat some cotton candy.

JUst checking out what I can do.

Greetings--Bill Davis, author of "Breaking Autism's Barriers A Father's Story" & "Dangerous Encounters Avoiding Perilous Situations with Autism." My new book, "Autism Tomorrow" will be released in March 2009. Please take advantage of this wonderful offer. The writings are warm, informative and helpful. The authors are a veritable "who's who' in the world of Autism, including myself, Steven Shore, Karen Simmons, Val Paradiz, Thomas A. McKean, William Stillman & Donna Williams. Please pass this along on your E-mail list and when asked who told you about this amazing journal, just mention my name. Inquire about back issues as well. Take care of your children and keep up the good fight. Warmest regards, Bill Davis My link to sign up is http://autismtoday.com/cmd.asp?af=837976 Included in the subscription: 1. A monthly Autism@Home SeriesTM Publication. Each issue is at least 20 packed pages, and usually more. It’s like a New Autism Today Conference in print...every month. All of the hand-picked expert contributors are very knowledgeable in various different subjects under the vast umbrella of the autism spectrum. Each issue includes up-to-date information in subjects such as: Parenting & Family Dynamics, Diet & Nutrition, Fitness & Exercise, Interventions, Biomedical & Clinical Issues, Music Therapy, Social Communication & Language Issues, Safety Advocacy, Educational Programs & Alternatives, Self Advocacy & Understanding Autism from the “Inside Out”, and much more. 2. A monthly Autism@Home SeriesTM Audio CD Interview. These are exclusive interviews with autism experts in various fields. Topics include social skills, inclusion, music therapy, methodologies, safety, parenting and mapping transitions to the future. We ask the questions, and get practical, hands-on advice, ideas and tips from them. Use these CD’s to turn commuting hours into power thinking hours, where you can listen and learn at the same time. 3. At Least a 20%DISCOUNT OFF All Future Paid Autism Today Conferences. Every year we hold several autism conferences that cost up to $395 to attend. As a Conference@Home SeriesTM subscriber you will get additional savings if you wish to attend the conference - at least 20% off the regular attendance. 4. Discounted Pricing on Our Top Products ALL The Time. As you may recall, we sell a variety of different products and programs on our website to assist with developing the skills of children on the spectrum. As a Conference@Home SeriesTM subscriber you will have access to some of our most popular products at a discounted rate. 5. Autism@Home SeriesTM Teleconferences. 3-4 times a year we hold a teleconference for Autism@Home SeriesTM subscribers. You are sent a call-in number, date, time and access code in advance. On the call, Karen will either personally teach on a topic of interest, or co-present with one of our experts. And the best part of it all is that you can ask any questions you may have and they will answer them on the spot. 6. As this program is brand new, other exciting benefits will evolve as enrollment grows. As a Autism@Home Member, your membership price is locked in AND you will receive all New Autism@Home SeriesTM benefits as they are added to the program. 2008 New Subscription monthly rate: $29.95 To sign up for a 1 Year, RISK-FREE Trial of the Autism Today Autism@Home SeriesTM, go to http://www.autismseries.com today. If at any time you are not 100% convinced that the program is right for you, give us a call, and we will give you a full refund. No questions asked. If you are not completely satisfied, we want you to cancel your subscription

This is the voice I heard today as I took Eric for his blood work. Blood work that comes from having Absence Seizures which comes from him having Autism. The little voice that rears his head when I look into the eyes of my young prince as he tried to hold back the tears and I tried to explain to him why once again they have to stick a needle in his arm which he hates to much to draw his blood to put into the tube. Hey Bridget are you there its me Autism knocking and tugging at your heart strings as I hold back the tears and I listen to him say mommy why are they doing this to your baby your only son. Even the nurse Carmen who loves him so much and the Dr's brother how calls him his best friend have to look away to keep from crying as I say to him its a part of the Autism honey, but dont worry I am here to hold you before during and after I will never leave your side and seemed to cancel the fears and he told Carmen to go ahead and take the blood he is a big boy now. Hey Autism I know you are here, you have been since 1998 a constant reminder that you will always try to find ways to keep him and other boys and girls whose lives you have enterned from acheiving their God given goals in life. But Hey Autism its me Bridget and guess what you cant have our kids, we will fight you till the bitter end, you can not take over their minds, hearts and souls. We stand over a Million Strong, we are fighters, we are mothers, fathers, brothers, aunts, uncles, siblings, grandparents. Hey Autism its me Bridget and guess what our kids may have you BUT YOU DONT HAVE THEM.

If he didnt have seziures I wouldnt need you Today was Eric's three month check up with his Neurologist Dr Charles Neisen at Cedars Sini. Eric was recommended to him at the age of 10 when we found out he was having Asbence Seizures. They first put him on Zorontin but it didnt take as well, so hey put him on Depokote tablets 4 pills three times a day. Now the issue with these seizures they are hard to catch why you may ask. Absence seizures mainly happen in childhood. During an absence seizure, the child appears to be daydreaming or switching off. However, in an absence seizure, the child cannot be woken up. They are very briefly unconscious and unaware of what is happening around themBecause most children tend to daydream at times, absences can be very hard to spot. In some cases, children can be having hundreds of absence seizures a day. This prevents them from learning and fully taking part in school or family activities. These children are missing out on tiny pieces of information. For example, they might hear the first part of a sentence but not the end. They may hear the instruction to go out and play, but not when to be back. Because they might then not do what is expected of them, this may be mistaken for poor behaviour. Parents and teachers may lose patience with children if they don’t realise that they are in fact having a seizure. This is a scary thing for us a parents like all seizures are scary for parents. Well the dr has asked me to keep track of when he has these spells and like stated above it's hard to tell but I have kinda trained myself more to listen to watch. My son Eric is very active meaning always talking, singing, dancing, talking to himself out loud or everytime he hears the somebody car keys moveing he has to ask "where you going lol" So this time I wrote down he had two one in July, August and two in September in full detail of what happened during and after. Well he looks at me as if not to beleive in what I am saying, he is like well you need to get a watch with a second had so you can tell how many seconds go by during the seizure. I had to explain to him in a calm voice look, when this happends I dont think about time I just want my baby back. I know you are probaly use to parents who want their kids on meds but I am not one of them trust me you know how hard it was to make this decision to put him on meds. I had to ask my trusted friends on what to do, called my mom, my sister before we made this decision. With that being said he mellowed out. So now I have to take him back to our regular dr for more blood work to test the level of medication in his system yippee that is gonna be heck a fun sigh. This is one of those things I hate about Autism sigh

Govenor Palin once again stuck her sigh expensive shoes in her mouth at a speech the other day. Hey the goverment is spending money on silly reasearch projects that are costing tax payers millions of dollar. Silly research such as Fruit Flies sigh. Well guess what I can see Alaska from my house we as parents of kids with special needs need the pesky little jokers. Memo To Palin: Fruit Fly Research Has Led To Advances In Understanding Autism This morning, Gov. Sarah Palin (R-AK) gave her first policy speech urging the federal government to fully fund the Individuals with Disabilities Education Act (IDEA), “a law ensuring services to children with disabilities throughout the nation.” In the speech, Palin cited the need to do more for children with disabilities such as autism: For many parents of children with disabilities, the most valuable thing of all is information. Early identification of a cognitive or other disorder, especially autism, can make a life-changing difference. Palin claimed that the amount that Congress spends on earmarks “is more than the shortfall to fully fund IDEA.” She then ridiculed some of the projects — such as “fruit fly research” — saying they have little or no value: Where does a lot of that earmark money end up anyway? […] You’ve heard about some of these pet projects they really don’t make a whole lot of sense and sometimes these dollars go to projects that have little or nothing to do with the public good. Things like fruit fly research in Paris, France. I kid you not. Watch it: Palin did not specify what fruit fly research earmark she was referring to (presumably a grant for olive fruit fly research), but she is apparently unaware that scientific research with fruit flies has led to valuable discoveries that have boosted autism research, as a study at the University of North Carolina demonstrated last year: [S]cientists at the University of North Carolina at Chapel Hill School of Medicine have shown that a protein called neurexin is required for..nerve cell connections to form and function correctly. The discovery, made in Drosophila fruit flies may lead to advances in understanding autism spectrum disorders, as recently, human neurexins have been identified as a genetic risk factor for autism. The study of fruit flies has also been used for other autism research and “revolutionize[d]” the study of birth defects. palin-fruit-flies Sigh what do you think

Today I found out that my neighbor that lives next door has a young daughter who is 4 and was diagnosed with Autism. Now we got on this subject after a huge neighbor dispute (not involving her or myself lol) I was just saying how I dont have time for gossip when I have my kids to deal with especiall Eric who has Autism. She stated so does her daughter so we began to talk, now she explained to me that when they gave her the diagnosed they only gave her a two page letter about autism and sent her on her way, now those who know me know I was hotter then fish grease so I went inside and grabbed my laptop and we went over all the symptons, etc. So then I asked her about her daughters IEP she stated she had one but was not sure about. I stated rule no one 1. Dont ever sigh anything you dont understand. So I said bring me all of what you have let me go over it and she did. So I grabbed my sons IEP and called my best friend Debbie and she grabbed her son's IEP and we began to compare notes. My neighbors daughter was DIAGNOSED with Autism by a specialist along with behavioral issues. But on her IEP they put down the team does not beleive she has AUTISM which means she is being limited to services and according to Educational Code 56320 the following considerations have been made regarding the procedures and materials used during this evaluation to ensure compliane with state and federal regulations. The reason for the referral the child was referred for and assessment due to parents concerns and she has been diagnosed with AUTISM. Current results will be used to determine eligibiity for SPECIAL EDUCATION SERVICES. Now we turn to her IEP REPORT SIGH Special Education Eligibility Statement Student eligible for Special Education under the condition of Speech/language Impariment and the little cirlce next to Autism was not colored it. Even though she has two reports by two different specialist that state this child has Autism. So my friend Debbie and I made a list of all the things we sugges she does 1. Request and Emergency IEP Meeting (Q. What is an expedited due process hearing? A. An expedited due process hearing is a hearing before an administrative law judge on disciplinary matters. Q. What is an emergency relief hearing? A. An emergency relief hearing is a due process hearing that is held quickly and without the opportunity for mediation. Q. What issues are considered an "emergency"? A. Some issues may be considered an "emergency" if it is determined that the petitioner will suffer irreparable harm unless an immediate decision is granted. Q. How do I request an emergency relief hearing? A. In addition to the information required for requesting a due process hearing or an expedited due process hearing, requests for emergency relief hearing must be supported by an affidavit or notarized statement specifying the basis for the request. 2. They have to follow through with the diagnose of AUTISM as reported on the orginal report not just supply her with speech and language. This way she will be entitled to all of the Special Educational Services. If you have concerns about your child, please read this information from First Signs. Ask your school system in writing for an evaluation of your child. They are required to provide it, at no cost to you. The purpose of an evaluation is to find out why your child is not meeting their developmental milestones. A team of professionals will work with you to evaluate your child. If they do not find a problem, you can ask the school system to pay for an Independent Educational Evaluation (IEE). There are strict rules about this, so you may not get it. You can also have your child tested again privately, and pay for it yourself. But check with your school district first to make sure they will accept the private test results. By law, the school system must consider the results of the second evaluation when deciding if your child can get special services. 3. Ask for increased Behavior Services 30 mins a month is not enough for this little girl 4. OT evalutation and possible OT services depending on the outcome of the evulation 5. Visual support and visual schedule 6. PECS 7. Candian Yeast ( the child has many upset stomachs and headaches) The Candida Yeast-Autism Connection Written by Stephen M. Edelson, Ph.D. Center for the Study of Autism, Salem, Oregon There is a great deal of evidence that a form of yeast, Candida (rhymes with "Canada") albicans, may cause autism and may exacerbate many behavior and health problems in autistic individuals, especially those with late-onset autism. Scenario. Candida albicans belongs to the yeast family and is a single-cell fungus. This form of yeast is located in various parts of the body including the digestive tract. Generally speaking, benign microbes limit the amount of yeast in the intestinal tract, and thus, keep the yeast under control. However, exposure to antibiotics, especially repeated exposure, can destroy these microbes. This can result in an overgrowth of Candida albicans. When the yeast multiplies, it releases toxins in the body; and these toxins are known to impair the central nervous system and the immune system. Some of the behavior problems which have been linked to an overgrowth of Candida albicans include: confusion, hyperactivity, short attention span, lethargy, irritability, and aggression. Health problems can include: headaches, stomachaches, constipation, gas pains, fatigue, and depression. These problems are often worse during damp and/or muggy days and in moldy places. Additionally, exposure to perfumes and insecticides can worsen the condition. Dr. William Shaw has been conducting important research on yeast and its effects on autistic individuals. He recently discovered unusual microbial metabolites in the urine of autistic children who responded remarkably well to anti-fungal treatments. Dr. Shaw and his colleagues observed a decrease in urinary organic acids as well as decreases in hyperactivity and self-stimulatory, stereotyped behavior; and increases in eye contact, vocalization, and concentration. There are many safe methods to treat yeast overgrowth, such as taking nutritional supplements which replenish the intestinal tract with 'good' microbes (e.g., acidophilus) and/or taking anti-fungal medications (e.g., Nystatin, Ketoconosal, Diflucan). It is also recommended that the person be placed on a special diet, low in sugar and other foods on which yeasts thrive. Interestingly, if the Candida albicans is causing health and behavior problems, a person will often become quite ill for a few days after receiving a treatment to kill the excess yeast. The yeast is destroyed and the debris is circulated through the body until it is excreted. Thus, a person who displays negative behaviors soon after receiving treatment for Candida albicans (the Herxheimer reaction) is likely to have a good prognosis. Please note: treatment for Candida albicans infrequently results in a cure for autism. However, if the person is suffering from this problem, his/her health and behavior should improve following the therapy. To learn more about yeast and Candida albicans, visit the Autism Research Institute's web site. The Institute's publication list contains an extensive information packet and books on this subject. In addition, William G. Crook, M.D. has written several excellent books on yeast, including the classic The Yeast Connection (1986), The Yeast Connection and the Woman (1995), and more recently, The Yeast Connection Handbook (1996). Dr. William Shaw also provides organic acid testing as well as additional testing. He can be contacted at: The Great Plains Laboratory for Health, Nutrition, and Metabolism, 9335 West 75th Street, Overland Park, KS 66204, U.S.A; telephone: (913) 341-8949; and fax: (913) 341-6207. 8 CF/CF Diet( will help with regression) What is the gluten-free, casein-free (GF/CF) diet? This is a dietary intervention to lessen the digestive and bowel issues sometimes found in children with autism spectrum disorder (ASD). Recent research indicates that there are children with a genetic predisposition to the disorder which is then triggered by some as yet undetermined event – a vaccine, environmental toxin, or virus – which can cause a "leaky gut” (sometimes evidenced by resulting chronic loose stools as the child cannot properly digest these proteins.) If this happens, wheat and dairy are then metabolized as opiates. It is believed that by eliminating gluten (wheat) and milk protein (casein), the gut will begin to heal and the child's overall condition will improve somewhat. Sometimes additional factors are in play and must be addressed as well before positive change is seen (such as yeast overgrowth, as an example). Because the diet is considered an "alternative" therapy, school administrators, medical personnel, and others often view it with skepticism. But, for some children, eliminating gluten and casein helps lessen self-stimulating behaviors, increases focus, and resolves gastro-intestinal distress. That’s why many parents swear by it. The diet is not a cure for autism nor is it a substitute for traditional one-on-one intervention. Rather, by making the child more comfortable, the child becomes more receptive to learning (not to mention the potential positive impact in the child’s overall health, demeanor, and possible reduction in negative behaviors). What do the children eat? Children can eat a wide variety of meat, chicken, eggs, fruits, vegetables – anything that does not contain wheat gluten or milk protein (both proteins are very similar in molecular structure, and it is estimated that as high as 80% of children with autism who follow the GF/CF diet can benefit). However, some children may have additional food intolerances/sensitivities as well (including soy, corn, rice, potatoes, peanuts, beans, etc.), and parents may request other foods be eliminated. Furthermore, gluten is also found in oats, barley, rye, and most processed foods. Gluten is in even in Play-Doh, adhesive on stamps and stickers, and many hygiene products (and can be absorbed through the skin – does not need to be ingested to negatively affect a gluten-sensitive child). Milk protein or casein is found in every dairy product imaginable, and is even used as a binder in canned tuna fish. Many children who are on the diet will react to the slightest bit of wheat gluten or milk protein. A single bite of a goldfish cracker may cause a week of bad stools, aggressive and disruptive behavior, rashes, etc. A child who "gets into" regular Play-Doh may become non-compliant, withdrawn, and regress. One bite of a graham cracker could result in severe tantrumming, head-banging, and unusually strong, aggressive behaviors, sometimes lasting several days. How is the GF/CF diet implemented at school? The Individualized Education Plan (IEP) team will need to document that a dietary intervention is being used in conjunction with traditional interventions. Generally, the parents are responsible for providing GF/CF supplies for their child to use in the classroom as well as any snacks, lunches, or "special treats." Teachers and aides must make sure that the child uses only the GF/CF supplies provided and that food is not shared during snack or lunch times. Students in upper grades and beyond should be encouraged to learn about the diet and the consequences of cheating (i.e., painful diarrhea, loss of emotional control. etc.). What about non-food items like Play-Doh? Play-Doh contains wheat. There is some debate as to whether gluten molecules can be absorbed through the skin; however, there is no doubt that younger children will put their hands in their mouth or even eat Play-Doh. Crayola Model Magic is used as a Play-Doh substitute. Other non-food items that may include wheat are paints, markers, glue, glue sticks, paste, tape, makeup or face paints, sunscreens, some bandaids, glue on envelopes, stickers, hand stamps, lotions, etc. (As an example, a shopping trip to Trader Joes ended up with their roll of stickers that were handed out to children in the store stuck all over a child’s legs and arms, and the child’s resulting aggressive behavior was all the proof parents needed to ensure stickers were not used on skin in the future.) The safest way to handle this is to provide parents with a list of items needed, and only use products sent from home. If the child becomes sunburned because the parent failed to send in GF/CF sunscreen, that is the parent's fault, not yours. If you do crafts involving pasta, make sure that the parent supplies you with rice or corn pasta in the necessary shapes and quantities – give them plenty of notice. What about materials used in speech therapy, occupational therapy, and physical therapy? Toothettes and lemon flavored cotton swabs used by speech therapists are GF/CF. Parents can provide lollipops, Jet brand marshmallows, candy reinforcers, etc. as part of their "school supplies." Colgate shaving cream is acceptable for OT use, as are beans and rice used in sensory integration bins. Beeswax, Model Magic or Silly Putty can be used for molding clays to improve hand strength. However, some substances—Nickelodeon Floam or Goop—are notGF/CF. Lotions and powders used in physical therapy or for sensory integration should be provided by the parent after consultation with the therapist. (Again, realize that not all products used for the general class will be GF/CF. When in doubt, ask the parent to confirm GF/CF status, or to provide a suitable substitute to be reserved solely for their child’s use.) What happens when we have special treats for birthdays or holidays? Teachers must give the parent at least a few days notice to provide similar "special treats." Parents who are using the GF/CF diet cannot run to the store and buy cupcakes for the next day—these cupcakes have to be made from scratch using a combination of special flours that can be hard to find. Given enough notice, though, most parents can come up with substitutes. Try to make birthdays and holidays less food-oriented; substitute crafts, carnival or piñata type toys, music or movement activities instead of cookies and cupcakes. If you have a freezer on-site, you might request the parent to provide a few cupcakes and cookies to freeze for unplanned celebrations, so that the child need not feel left out. We have many hands-on activities that involve food--how should we handle this? Give the parent at least several days notice – the more the better – and start planning some alternate activities that do not involve food. Example: if the class is going to make a loaf of bread from scratch, ask the GF/CF parent to supply the flours for the dough. Parents doing the GF/CF diet may be happy to do this once in a while, but if their child must be excluded because of weekly pizza parties or daily snack preparation as a class, you may hear complaints. What should I do if the child eats or gets into something they shouldn't? Call the parents as soon as possible for instructions – be prepared to tell them what the food was, the quantity, and the time that the incident occurred. Do not wait – even though it is not a medical emergency, in a parent's mind, it may be. Some parents will come and pick up the child to give them digestive enzymes and over-the-counter medications. They may wish to rush the child home to soak in an Epsom salt bath to possibly help minimize the potential damage. Other parents will do nothing and then yell at you and blame you for a week's worth of sleepless nights. The important thing is to inform the parents as soon as possible and try not to let it happen again. Anything else? It is critical to keep the lines of communication open. The GF/CF diet is extremely stressful on a family – and it is not going to be easy to maintain in the classroom, either. If parents and teachers work together, though, the improvements in the child's health, language, social engagement, and behavior can make this a win-win situation across the board. No one says the diet cures autism – but it just may make traditional interventions go more smoothly for everyone concerned. Where can I learn more on my own? An excellent website, www.gfcfdiet.com contains information, resources, recipes, support for parents, teachers, and physicians. COMMON GF/CF SCHOOL PRODUCTS/MATERIALS: Chalk – Crayola Crayons – Crayola Foam / Shaving cream – Colgate Shaving Cream is GF/CF (non-mentholated, white cream preferred) Glue (liquid) – Elmer’s washable glue Glue Stick - ??? (No suitable replacement found – recommend Elmer’s) Markers – Crayola (including Color Wonder as well) Paints (w/ brush) Palmer paint products; Crayola Oil Pastels, powder paint, and water soluble oil pastels; Prism Brand paints Paints (finger paints) – Crayola Paints (powder) - Crayola Play Clay – Crayola Model Magic (NO Crayola Clay – that contains gluten) Silly Putty - Crayola Stickers – Most contain gluten – If a sticker is placed on clothes or paper, parent may allow it as acceptable. However, it is to be taken away from the child if the child insists on putting any stickers on skin….the adhesive is transferring gluten directly through the skin. Sunscreen – Banana Boat Lip balm – Burt’s Bees Including GFCF Diet into the IEP Goals & Objectives Here are some suggested goals & objectives to include into your IEP (Individual Education Plan) by a super mom – Moira. GOAL 1: Child will deny offer of foods that are not brought from home Incremental objective #1 related to the goal: When adult asks child if he can eat food not brought from home, he will answer "No" 70% of the time. Incremental objective #2 related to the goal: When adult asks child if he can eat food not brought from home, he will answer "No" 80% of the time. GOAL 2: Will self monitor the consumption of safe foods and non-edible items Incremental objective #1 related to the goal: Will be able to decline offers of unsafe foods that look similar to his by asking "Am I allergic to this?" 2 out of 5 opportunities. Incremental objective #2 related to the goal: Will refrain from eating non-edible items (such as rocks, plastic and wood) at all times independently or by asking an adult 4 out of 5 opportunities. GOAL 3: Will self-monitor safe food consumption (gluten and casein free diet) Incremental objective #1 related to the goal: Will be able to only consume foods provided for him from home. Incremental objective #2 related to the goal: Will be able to decline offers of unsafe foods. SPECIAL NOTE: These are sample goals. Please be sure to work with your team of professionals in making a goal list that is unique to your child’s needs. 9 Try Melantiomin(as always talk to your dr first) Melatonin Melatonin is an important hormone secreted by the pineal gland in the brain. Since its identification in 1958, studies have shown that melatonin actually regulates many of the other hormones in the body. These hormones control our circadian rhythm, the 24-hour patterns that our bodies respond to every day. The release of melatonin is stimulated by darkness and suppressed by light, so it helps control when we sleep and when we wake. Melatonin also controls the timing and release of female reproductive hormones, affecting menstrual cycles, menarche, and menopause. Overall levels of melatonin in the body also respond to the process of aging. Children have the highest levels of nocturnal melatonin; as adults age, their nocturnal melatonin levels get lower and lower, which means they go to sleep and wake up earlier, and may suffer from disrupted sleep patterns. Uses Jet lag. Melatonin is used to restore sleeping patterns and fatigue caused by cross time-zone travel. Insomnia. Melatonin can restore more regular sleep patterns in those who suffer from insomnia as a result of low melatonin levels (that is, older people and some children with sleep disorders that may be caused by autism, epilepsy, Down syndrome, or cerebral palsy). Cancer. Melatonin can help prevent and treat some cancers, particularly those that are related to hormones (for example, breast cancer, prostate cancer) and non–small cell lung cancer. It also greatly increases the effectiveness and lowers the side effects of some cancer drugs (for example, interferon and interleukin 2). Depression. Melatonin may be beneficial in treating depression related to low melatonin levels (for example, seasonal affective disorder) Preliminary studies show melatonin may be useful in treating multiple sclerosis, coronary heart disease, epilepsy, and post-menopausal osteoporosis; and in preventing sudden infant death syndrome. Dietary Sources N/A Other Forms Melatonin is available as tablets, capsules, and sublingual tablets. How to Take It There is no official dosage range for melatonin supplements. Different people will be more sensitive or less sensitive to melatonin. For those especially sensitive to it, lower dosages may work as effectively as the standard amount, while taking the standard amount or higher dosage could cause anxiety and irritability. To treat insomnia, one dose of 3 mg an hour before bedtime is usually effective, although dosages as low as 0.1 to 0.3 mg may improve sleep for some people. If 3 mg a night is not effective after three days, try 6 mg one hour before bedtime. An individually effective dose should produce restful sleep with no daytime irritability or fatigue. For treatment of jet lag, take 5 mg of melatonin one hour before bedtime upon arrival at your destination, and take it for the first five days. Dosages for anticancer treatment may be much higher (10 to 50 mg per day). Do not take melatonin supplements long term without consulting your health care provider. Precautions There are no known serious side effects to supervised melatonin use. Lack of sleep and insufficient exposure to darkness may suppress your body's natural production of melatonin. Some people may experience vivid dreams or nightmares when they take melatonin. Overuse or incorrect use of melatonin could disrupt circadian rhythms. Melatonin can cause drowsiness if taken during the day. If you experience morning drowsiness after taking melatonin at night, take less of it. It may not be good for you to take melatonin if you have an autoimmune disorder, such as lupus or rheumatoid arthritis, or an immune system cancer, such as lymphoma or leukemia. If you are taking melatonin for depression, make sure you do so under your health care provider's care and advice. In some cases, melatonin can actually worsen the symptoms of depression instead of making them better. If you take corticosteroids for anti-inflammatory or immune suppressive purposes (for example, you have had a transplant), use melatonin cautiously, and always under the supervision of your health care provider. Melatonin could interfere with fertility. Do not take it if you are pregnant or nursing. Possible Interactions Vitamin B12 changes the level of production of melatonin. If you have low levels of melatonin, you will often have low vitamin B12 levels as well. Taking vitamin B12 (1.5 mg of methylcobalamin per day) can help sleeping disorders because it increases melatonin production. Protein, vitamin B6, niacinamide, and acetyl carnitine all help your body produce melatonin. Nonsteroidal anti-inflammatory drugs (NSAIDs), such as aspirin and ibuprofen, reduce melatonin production levels in the body, so it is best not to take these right before bedtime. Beta blockers also keep melatonin levels from rising naturally at night. Some antidepressants increase the levels of brain melatonin. Benzodiazepines, like Xanax and Valium, interfere with melatonin production. Alcohol and caffeine can also interfere with melatonin production, as can diuretics and calcium channel blockers. This document contains information relating to general principles of medical care that should not in any event be construed as specific instructions for individual patients. The reader is advised to check product information (including package inserts) for changes and new information regarding dosage, precautions, and contraindications before administering any drug. No claim or endorsements are made for any drug or compound currently in investigative use. No responsibility is assumed by the publisher for any injury and/or damage to any person or property as a matter of product liability, negligence, or otherwise, or from any use or operation of any methods, products, instructions, or ideas contained in any material herein. This web site is intended for your own informational purposes only. No person or entity associated with this web site purports to be engaging in the practice of medicine through this medium. The information you receive is not intended as a substitute for the advice of a physician or other health care professional. If you have an illness or medical problem, contact your health care provider. You should consult your health care provider with any questions about the nature or effect of products you purchase here. Be sure to read all directions, warnings and other information accompanying any product before using it. Dietary supplements are not intended to treat, cure, or prevent any disease or illness, and the information regarding these products has not been evaluated by the U.S. Food and Drug Administration. All in all parents please make sure you know your rights so your son or daughter will get all they are entitled to. For what you dont know the some schools are not likely to share with you. Why MONEY. Well she went in and did as we suggested, now the school wants to take away the diagnose of Autism and put the label in of Aspergers and want her to pay for the retesting sign. And they want to suspend all of her daughters services, time to put into place plan b

Here is a link to the third party presidential debate full video. http://www.youtube.com/watch?v=dmZpSCMBy4k

Everyone knows my daughter, Haley, is on the spectrum, but what most people do not know is that our family struggles daily to just keep afloat. Two years ago I started having pain after working at my first real job since college for only 2 months. That pain grew and spread and more problems arose, and I fought with all I have to make sure she stayed the focus. Friday I recieved a letter from Social Security (after filing 15 months ago for myself) saying that they had determined I too was disabled. That struck me in so many ways. Great, no more state help cause we will both be on SSI..... but more than that it was a confirmation that I am infact disabled. That the jobs out there fashioned to suit my limitations are next to nihl. And the work I picked up to do at home, well... long story short may be a huge mistake health wise. I have been worse this past week than ever in my life. That letter was almost permission to give up. And I hate the idea, but am struggling soo hard and getting no where that it almost seems necessary. Maybe the 8 or so appointments between us per week is enough work. Maybe using every ounce I have in energy to attempt keeping up with Haley is more than enough work. As a single mother, I believed I have to work to make our family work. As a person in daily pain and additional laments, I just want to stay home and hug my daughter, between rampages, as cleaning up after her is all I can seem to handle anymore. And yet, not working I feel so unfulfilled, bored, and depressed. Its a huge catch 22 in my life and I have no idea where to look.

Harrison is a big 10 year old. Most people think he is 12. For many years he has had a tough time shopping in stores, due to SPD issues. It's easier for him if he can be in the shopping cart, which of course, has gotten more problematic as he's gotten older and bigger. We've had some rude remarks from strangers about it, and one cute one from an old man who asked "What aisle did you get that on?" We've been really encouraging him to walk in stores, but let him get into the cart if he really needs to, even if it means we shop with two carts - one for him and one for the shopping. The last few times we've gone to a store, he hasn't even asked to get into the cart, or only asked because he was tired of walking and took "no, you are too big for that now" as an acceptable answer. We usually only do one store at a time, but he was doing so great today that we went to Target for a big shopping and then on to the grocery store, with a short stop for lunch. Eating in restaurants is a hurdle we are still jumping, but he loves the cilantro rice at Qdoba and they have a little outdoor patio. Since he was really hungry and it was a sunny day, we were able to eat out there and then went on to do some grocery shopping. I was doing a little happy dance inside as we cruised around the grocery store and had to go bring him back over to where we were at one point because he was wondering off to look at something. This is a horse of a different color for us, but I'll take that issue any day over the kid who couldn't handle stores. I was beginning to wonder what on earth we were going to do when he was 13 or 14 and still wanted to ride in the cart. I don't think we need to worry about that now. It is such a joy to see him more able to function in the world and it makes all the long drives to therapy and the hiding of supplements in his juice worthwhile.

This Tuesday Chris will undergo surgery on his knee. The MRI showed that it is a bone chip and it had floated back into place but the surgeon needs to go in and reattach it so he won't have problems down the road. The surgery is a two hour procedure and we have prepared Chris as best as we can. God is in control and He is good.

Brendan has said a ton of new words lately, some include: picture, animal, I LOVE YOU, hug, hand, feet, page, easy, busy, and I think he said his name (Brendan)! Also, the day before yesterday, he actually sat through a haircut! At the beginning, he freaked out some, but then he was just fine. He is becoming a different kid. I've gotten all sorts of compliments lately, like he seems so calm and more focused!

Want to start Special Olympics program for adults with Asperger syndrome. Let me know what you would like. Just some suggestions -- table tennis, flag football (new sport), basketball, floor hockey. Get exercise, meet new friends, have fun! marylaresch@gmail.com

Any adults who live in New Jersey? Please contact us with what your interests are, county of residence, if you want to meet with others. We can set up place to meet for lunch? marylaresch@gmail.com

Baseline: 8/24/08: Score: 100/180- 80-89 percentile 1 Week: 9/2/08: Score: 99/180- 80-89 percentile 2 Weeks: 9/9/08: Score: 89/180- 70-79 percentile 3 Weeks: 9/16/08: Score: 84/180- 70-79 percentile (started GF/CF diet) 5 Weeks: 10/1/08: Score: 71/180- 50-59 percentile 6 Weeks: 10/9/08: Score: 65/180-50-59 percentile (1 month on GF/CF diet, Started Supplements) 8 Weeks: 10/23/08: Score: 49/180- 20-29 percentile (1 month and a half on GF/CF diet, 2 Weeks on Supplements)

FOR IMMEDIATE RELEASE Contact: Rebecca Estepp Claudine Liss 858-829-6454 310-970-2485 MilMom2000@... dineliss@... McCain Supports Parental Vaccination Choice and Prioritizes Vaccine Safety Obama Silent Despite Repeated Overtures From Parents Poway, CA, October 23, 2008 - Rebecca Estepp is a military spouse and the mother of two boys, including a vaccine-injured child with autism. Her husband, a Marine, has served three war-time deployments in the past five years. "You would think the war would be the most important issue to me, but it‟s not. The war will be over at some point but the effects of vaccine damage will last for generations." Estepp cites the neurotoxins injected into American babies and expresses deep concern about the injury and damage they may be causing, saying "It weighs heavily on my heart." For these reasons, Estepp made and sent a two-minute video entitled "Vaccine Safety Requests For Our Next Commander-in-Chief" to the two Presidential candidates in May 2008. She made a plea for our next President to issue two Executive Orders within the first one hundred days of entering office; the first, removal all mercury from all vaccines by January 1, 2010, the second, a moratorium on the addition of new vaccines to the recommended list for children until the current vaccine schedule can be proven safe. Says Estepp, "Children deserve to be protected from diseases that can harm or kill them but we need to be sure that in our efforts to prevent disease, we haven‟t created lifelong chronic illness and disabilities." On October 20th, Estepp received a detailed response from Douglas Holtz-Eakin, a senior policy advisor to the McCain campaign. Vaccine safety is officially on the McCain agenda. If elected, McCain said he "will work with all agencies to take all necessary steps in an expedient manner to ensure safe vaccines for every American family." And, significantly, McCain also endorsed parental vaccination choice. In response to the new vaccine moratorium request, McCain offered: "The key to health care reform is to restore control to the patients themselves." The full text is provided in the October 23rd post on Age of Autism (AoA) www.ageofautism.com In contrast, Team Obama has declined to officially clarify its position. Estepp is disappointed: "When asked about vaccine safety, he wrote a general autism position statement and didn‟t even mention the word vaccine." A copy of his letter to Rebecca Estepp is provided in the same AoA post. The words "vaccine safety" are not found in any Obama campaign materials or speeches. Taking matters into her own hands, New Jersey parent Claudine Liss attended an Obama fundraiser with the express intention of getting an answer. Liss explains, "I shook his hand and would not let go until he answered my question. He looked right at me and said, „I am not for selective vaccination. I believe it will bring back deadly diseases, like polio.‟" Liss and many others are declining to vaccinate their children using the CDC-recommended schedule. New Jersey parents are furious about the first-ever mandated flu shot required for day care and preschool. Seven hundred people rallied in Trenton last week in support of vaccination choice. The freedom of choice issue resonates deeply and has made national news, with coverage on Fox News TV, ABC World News Tonight and an Associated Press article that was picked up by dozens of papers across the country. Estepp extends a final plea to Senator Obama to clarify his position: "This is a party-neutral issue and many of our parents are waiting to make up their minds. Senator McCain says parents have the final say in how they vaccinate their children. Senator Obama appears to disagree. I sincerely hope that Senator Obama misspoke that night in New Jersey and he lets us know before November 4th."

My 6 year old, I do believe was born about 40 years to late. He has sits ins....well, some what sit ins. He goes into this one room in the a.m. and plays with his toys. The problem is, he sits with his back to the door. I cannot get in the room to get him ready for school! Maybe I should make some fresh cookies in the a.m. and lure him out with that fresh aroma? I wonder if he knows what he is doing? Part of me thinks he does, then part of me is not sure. I find it amusing.

Some banks weigh use of rescue for buying up other banks.... According to the article,"the primary purpose of the government's $250 BILLION initiative, is to issue new loans". JP Morgan, Chase, BB&T, Zions Bancorporation are considering to make this decision. So maybe they can purchase HBOT's for children with autism?

Sorry, I tried and tried to respond to the Jenny post, but it wouldn't load...here is my take... I am truly sorry you feel as you do towards Jenny. I am one of the original members of Generation Rescue, one of the Mom's who was out there talking, trying to get the press to hear us, working with parents to recover, yes I said it and I mean it, recover their children, helping raise money to pay for the ads Generation Rescue ran. I am nobody, but I did what I could. Then long comes Jenny, we helped her as we do ANYONE that ask for help. It was not just she had the money to recover her son, all the money in the world was not the answer, knowing WHAT to do was! Many people do bio-med on a shoe string, I know, I am one. (BTW, she took out a loan to pay for this, she isn't as rich as you think, then shot a commercial where she faked looking happy and sexy during the takes all while dying inside wanting to be with her son, not at work, but like all of us, she did what she had to do to pay the bills.) When things worked for Evan, rather than crawl in a hole and go enjoy her life with her son, she chose to stand up for me, tell my son's story when she went public. Jenny is not just telling her story, but the stories of many, many of us. Yes, we needed that shot in the arm to get the word out, children ARE recovering, it can be done. She has gotten press where we never could. Thanks to Jenny, I can now walk into any new paper office or tv station with my credentials and people fall over me wanting an interview. How sad it took Jenny to open doors I was banging on for years, but she did it and I just riding her coat tail with pride. I couldn't care less HOW doors opened, or who did it, I just care I can get to the press now. You do need to read Warrior Mother's. You will find that Jenny gave voice to many parents that would never have been heard if not for that book. You will find people just like yourself and like me...the unknowns who fight and make it...and the last story...you will read the courage of a family that lost their child to vaccine damage. We NEED to be heard over vaccines, too many too soon and the results are sick, disabled children. We are being heard too, now, fifteen years after my son was damaged for life. I too had to quit my job, separated from my husband, cope with mounting bills and poor guidance on this walk. That's why I am with GR today...I know this journey and I can cut red tape for parents and I can help couples get therapy to cope and I can help with the money issues with ideas that helped us. That's why Jenny is with GR as well..because she has been there, not to bring glory to herself..but to HELP OTHERS! How many people have helped their child thanks to her?? I don't know..but I do know one recovering right now and the Mom gives Jenny the credit for reaching her. This Mom call ME after reading Jennys book and finding my name on the website and ask for help. I know the impact Jenny had on that family where the standard medical community did nothing for this child. One child is worth all the unkind remarks to me...and to Jenny..just ask her, she is quite open, funny, loving and very caring about autism and our childern. Give yourself a break from her face on the news stands and when you are feeling better, please pick up a copy of Warrior Mothers, and learn about other unknowns out there...in the battle....normal people..ones you will relate to. Blessing in light and love..in the fight... cheryl bailey generation rescue angel

This is my response to a topic in a forum but I really need to share it with others, to me it is that important. I am sorry to admit I do not have time to read everyone's posts, however, I saw "Jenny McCarthy" and that infuriated me enough to post a thought. My opinion of Jenny McCarthy is not a good one. I feel as if Jenny has used her place as a very rich public figure to almost "show off" in some way. Isn't it amazing that someone in the spotlight, with all that money, would be able to help her child on the spectrum "recover". What about the nannies that work for her, do they get credit for helping? What about all of us "regular middle class moms". Those of us who will never be on Oprah or Regis and Kelly telling our story, yet our story is just as important, and possibly just as phenomenal, as Jenny's. Those of us whose lives have been consumed by our fight for our child, while still being a regular loving devoted mom, not only to our "special" child but to our other children also. Some of us, like Jenny AND ME, and MANY OTHERS, have had a failed marriage during all of this also. Some of us, like Jenny, AND ME AND MANY OTHERS, have found an amazing man who, despite all of the extras that come along with our lives, they choose to spend their lives with us, joining our battle. They may not completely understand it yet, but they are there by our side nonetheless. What about all of you fathers out there? How many of you, who are just regular middle class dads, have been in the exact same position as Jenny, me and all of us moms? What a shame it will be when there is a famous dad to do like Jenny has done. She didn't bring more attention to Autism as much as she did to herself. Okay Jenny, pat yourself on the back. But instead of patting myself on the back I will wake up every day to take care of ALL of my children, all of whom are equally important, to me, and to society. I will follow our routine so as to help ALL of my children have a good day. I will drop two of my kids off to school, go to my measly 3.5 hour a day job as a cafeteria aide, since my 40+ hour a week job with the Postal Service just didn't work for David, even when it worked for my other children. My husband will work double shifts as an officer so that we can afford for me to no longer work at the Post Office. All of this I will continue to do with a smile in my heart and on my face. I wouldn't trade my life for any amount of money in the world. I will continue to thank my Lord and Savior for these blessings he has bestowed on me for He thought I was perfect for this job.

I am a retired/disabled attorney and I raised my grandson for his first 7-years. (He is 9-now). His mother (my daughter) lived with me too, however, she is an alcoholic and had very little to do with him. About a year and a half ago, my daughter became extremely violent, hateful and hurtful to me and I had to get away from her. However, I couldn't leave my grandson with her. So, I contacted his father (who lives in anther state) who dropped everything and came immediately to get him. He has been with his dad, step-mother and half-brother ever since. He is being well taken care of. My problem is that his step-mother doesn't answer the telephone and I rarely get to talk to him. (His dad is in the military and not home all the time). I have never had a problem with his step-mother, so I don't understand why she doesn't let me talk to him. I have visited twice since he has been gone - last summer for 2-weeks and this summer for 5-days. I telephone every week-end and always have to leave a message but never get a return call. I haven't talked to him for over 2-months. He is my "heartbeat" and I miss him terribly. All I want to do is talk to him. I send cards, packages (to his brother, too) and never get a call. I have written his step-mother a letter asking her to call me, but no response. Does ANYONE have any suggestions as to what I can do. I am desperate to talk to him. He is the "Light of my Life". Help! Thanks!

I have been MIA for quite some time. First with the death of my brother in-law. He was a diabetic and on dialysis. He was only 54. I am not particularly close to this sister but went down and spent time with her and attended the funeral. During the middle of all this Chris fractured his knee. He was playing flag football in gym and he said his knee popped. He doesn't think he fell but can't remember. He got off the bus limping and limped the rest of the afternoon. I should have known it really hurt (he tends to play it up when it doesn't really hurt that much) when we went shopping at the outlet mall and he opted to stay in the car. When it was time for bed we started crying and said his knee really hurt. We took him to the ER where the doctor could have been Christina Yang from Grey's Anatomy she was so gruff with him. She looked at his knee, twisted it this way and that, announced it was a sprain and sent us home with instructions to elevate it and ice. We kept him home from school the next day. I headed to my sister's since that night was the visitation and the following day was the funeral. Chris talked Jarl into taking him to the pumpkin farm that night. By Sunday night his knee was swollen and he said it really hurt. We decided to take him to our doctor on Monday. Since Jarl is off he got the job. Our doctor was shocked the ER doctor did not order x-rays so he did. We were very upset when they showed a fracture to his knee. (yes we're going to take some sort of action but not sure what). Our doctor referred us to a orthopedic specialist but wanted Chris not to put any wait on it until we saw the specialist. They wanted him to do crutches but he is definitely my son as he has no coordination and we knew he could hurt something else if he was on crutches. So we went with a wheelchair. Now he can run over people and things instead of falling over them. We saw the specialist on Tues the 7th and he ordered a MRI. We had that done on the 9th. Chris did very well with laying still for them. I was a bit nervous about it, but he amazes me sometimes. THe specialist wanted Chris to stay off of it so he is still using the wheelchair. He has gone back to school and hasn't had much problem getting around. The biggest problem we have is getting him to and from school. Jarl always takes him to school so that was already solved. but he rides the bus home in the afternoon. I was leaving work 45 min early to get him but I knew I could not do that all the time and besides lifting the wheelchair in and out of the van was killing my back (and my chiropractor is out sick herself) Now Jarl just takes a late lunch and picks him up and runs him home. We met again with the specialist yesterday (Thurs the 16th) and he said there is a bone chip. Chris needs surgery to go in and reattach the chip. He will have to be off of his leg for an additional six week. The specialist told us he would be ready for sports in three months which I wanted to say- that surgery is going to be good since he doesn't do sports!! Jarl and I both like this surgeon alot as he is very good with Chris. We gave him a heads up before he met with Chris the first time and asked that he not say anything in front of Chris. He was awesome with Chris and spoke to Jarl in his office while I stayed with Chris. Surgery is scheduled for the 28th so we're in for the long haul. I pray that things go well and that Chris's frustration of being in a wheelchair is mild. I'll keep you posted

Here is a speech Obama gave that is really funny. http://www.youtube.com/watch?v=1cen37qxA7Ey.

My wife's' mom and dad arrived a few days ago to visit for a month! No, I have no complaints about them whatsoever! In fact, they are just so incredible that it makes me jealous that my parents are NOTHING like them! Yes, I kid you not! These people are like...well, how can I describe them???? Incredible! With me being retired/disabled, I do not get the opportunity to meet others, like you would at work. So, I tend to not have friends. Well, my father-in-law is that friend. Really neat guy and manly at that. Loves to hunt, fish, guns, etc. I wish my dad was/is more like him. Is this a normal feeling that I have? I am really happy that they are here! I have not even mentioned that they just LOVE our boys! They watch our kiddos and allow us time away. I mean, wow, these people are just priceless! So, I hope I am not making anyone jealous, seething at the teeth, but seriously folks, they are truly angels for me:) I just wish "MY" family would be as awesome as my wife's'!!!!!!!! I mean you have no idea....no, don't even think about it:)

I swear! If I have to talk about autism for one more, day, hour, minute, I think I'm going to go insane, check myself in to a rehab center for 30+ days & just shut down! I'm one of the lucky moms who doesn't really have behaviorial issues w/my son anymore. But it wasn't always like this. It got so bad at school (due to stress & abuse by teachers/staff) that my son would poop on the public bathroom floor. He'd be mortified if he knew I was writing this here. We took him to Christian-based counseling & thankfully this issue was quickly resolved. I'm just glad that these days are IN THE PAST. We're now beginning the teenage years. Puberty has set in. He's "found" himself & girls...although, thankfully, he's too shy to go up to them & talk to the ones he really likes. Yeah for me, for now. He still wants me to "tuck him in" at night, which I oblige him. Hey, he won't be asking me to do this forever. I realized I'm one of the lucky moms. I don't have to do the special diets. He rides a special ed bus w/no problems...he likes it! He LOVES school and is learning as best he can but doesn't retain much and forgets often. He does do homework pretty independently, although I do check his work and help him correct the mistakes before turning in. He's become increasingly aware that "he's different" from his peers and wants desperately to fit in. He has the sweetest teacher this year who really enjoys his company in the classroom and listening to all his stories, the ones I usually don't want to hear at home. I'm a bit impatient with that lately. They're usually stories based on movies he's seen & he wants to re-tell the story from the movie. Usually I've heard the story about 20x or more. I try to tell him that he's already told me. But there's just no "off" button on him. I let this bother me when I shouldn't. I just see him so borderline between "almost" normal & then definitely autistic. He's repetitive in his speech, which drives me insane. I try not to let it show but I'm afraid he can sense it. He's become pretty good at reading faces, something he never could do before. I just want to see him succeed in this world and be able to live a normal, independently-functioning life where I don't have to worry about him, his finances, career, a family, etc. Well, as I started this blog, I said I was sick of talking autism. I still am. I just had to get these thoughts off my chest and onto this page. I don't get a chance to visit here often because of my work schedule. Just know that I do read all of your stories and experiences & thank God every day for the son he's given me, just as I'm sure you all do. And even though I get sick of talking autism, I think that there's not one more ounce of patience in me, I'm still hopeful that someday my prayers will be answered for a more "normal" life for our family.

Well, when a person decides to move with someone in their life that has autism, you must just be crazy! If you have multiple people in your life that has autism, well that is just plain stupid to move! Well, I do believe what we have here is a failure to communicate! I could probably type this a thousand times a day! Communicating with my boys is insane to say the least at times. I drive, they scream. They scream, I scream. Who is the adult here anyhow? "Honey, can you make him/them stop screaming? I mean come on, what is his problem?" "Don't you think if I knew how to make him stop screaming, I would?" "What is wrong with you?" Does this sound familiar? If it does not, then you do not have autism in your life. You need to go out and adopt one of these cute little buggers, just for the fun of it! Then have a Coke and a smile! By the way, did I tell you that never have a boring day? If your bored, go out and adopt a child with autism, you will NEVER be bored again! Hey, if they do not talk, they get in to EVERYTHING!!!!!!!!!!!! I kid you not. If they talk, they like to say words that you say, like "shut up", "hell" or my favorite word to hear is "sh*t"! You can get lots of exercise, so losing weight will be as easy as them saying 123 or ABC. Go ahead and go for it, adopt that cute little cuddle bug! Lock your doors, windows, and invest heavily in diapers. Forget about having a social life. What is that anyways? You are your best friend. Just call me Hermie the Hermit for short! Yes, at times it is totally insane, but in all honesty, I love my kids and they are awesome! I just hope and pray that one day I can talk to my kids and ask them what they want. Looking forward to spending that huge sum of money to take them to Disney World. "Dad, I want to go to Disney World!" No problem son, thanks for asking, lets go right now! Till next time, take care and love on those little angels in disguise! Dillard

We had such a great time at the US White-water Center yesterday! This is a huge, beautiful center just outside of Charlotte. They have this amazing man-made rafting and kayaking course (US Olympic Kayak team trains there). There are also walking and biking trails and the highest rock-climbing walls east of the Rockies. Harrison's eyes got really big and so did his smile when we walked into the place. We had bought our tickets the day before on the phone and so could just spend time walking around until our group started. He did amazing sitting through the 20 minutes of instructions and even paid attention when they talked about the helmet and personal floatation device. We had prepped him that this would occur, but for a boy this anxious to get out on the river, it was still an achievement. Rapids get classified from 1 (flat water) to 6 (non-navigable, e.g., Niagra Falls) The first segment we went down was mostly class 2 with one class 3 drop at the end. We did this course a couple of times. When you get to the end, there is a conveyor belt that runs your raft back up to the top of the course. We had 7 in our boat, including our guide, Tamara. After getting pretty comfortable on this course, we headed to the competition course, which is all class 3 rapids with one class 4 at the end. All was pretty smooth, if not wet, until we went through the class 4. The boat tipped and I almost fell out. I had one of my feet wedged under the seat in front of me and that was the only thing that kept me in the boat. The other leg was straight up in the air and most of my body was out of the boat, but not yet in the water. Harrison was blasted into the seat behind him and landed in Tamara's lap, where she held on tight to him while Darryl reeled me back in. The second go down the competition run went smoothly, although we did get briefly stuck in an eddy (think flushing toilet) and it took some effort to free ourselves. The third trip down the faster run I was beginning to wonder if anyone had fallen out, because I hadn't seen it happen and they said they always have about 7 or 8 people fall out on any given trip. Well, speak of the devil and he shall appear - as we went through the final big drop, we started to tip again and I went over the side. Darryl was trying to grab me and he went over as well. We were still in pretty choppy water at this point and I was glad that they had given us good instructions about what to do in case this happened. I was mostly concerned that Harrison was still in the boat, but it turned out he was. The little boy in front of me also went over into the drink, but it was his 13th birthday, so maybe it was a special treat to have that happen. As we drifted down into slower water the raft was able to come and retrieve us. I was worried that Harrison would try to hop in since both Darryl and I were in the water, but although I know he thought about it, he listened well and stayed in the boat. They had warned us to bring a change of clothes and towels, so we were prepared, but we would have needed them even if we hadn't gone over the side. Good thing it was 75 and sunny today! Right now I am sitting in the massage chair because my back is not used to that kind of a workout. Harrison just beamed the whole time and I was so proud of him for listening, following instructions and just being a great kid the whole time. We are not a very outdoorsy family, but we would definitely go there again. This time I would sit on the other side of the raft, since it was everyone on the left side who ended up in the drink - LOL. When we get the pictures we bought in the mail I will scan them and post theml We all slept well last night!

In 1995 God graced me with this face you see here my baby boy Eric. In 1996 we almost lost him to Asthma that we didnt know he had but was brought on by a simple ear infection and a bottle of Benydrel. I woke up one morning to get the older girls ready for school and to get his younger sister ready for the day. We lived in Virginia at the time and was about to move back to California the kids and I were in the middle of packing our things and hubby had already left to start his new job. When I went to turn off the alarm I could hear him gasping for air and his little face was blue, I tried not to panic I had my oldest to run down stairs to get the neighbor who was a nurse and called my mom who lived in CT 911 didnt cross my mind but my mom did. You see she is preacher anointed by God and I know I needed to get some reassurence she could hear him gasping for air he was like 7-8 months at the time. She said hang up call 911 we got the prayers on this end and call me back. The neighbor finally arrived and she got the girls ready as the ambulance came, they had to take him to the VA Hospital which was right in back of where we lived, they asked all kinds of questions like what did he eat? What time did it happend I tried to answer them all but them something said "Tell them to check for Asthma" why do you ask well it runs on both sides of the family and that came to my mind. In the mean time I called hubby and told him J as we call him was in the hospital he was having a hard time breathing. Well he was on the next thing smoking back to VA. Well we stayed at the VA hospital for about two hours then they transported us to the childrens hospital where the questions began again, I told them to please check for Asthma but they all looked at me like I was crazy, finally hubby arrived and the world seem calmer. After about 8 hours the results came back ASTHMA my heart sank but I was glad I was right and it wasnt anything worse then that. Two years later my world was rocked again we began to notice something was wrong when he spoke his first sentence at the age of one which was "Hey chuckle head" and from then on nothing more was said except for mommy and daddy, so in speaking to other people they just said that is normal for boys mature slower then girls and not to worry so we didnt. On a normal visit to his see his physician Dr Myrah Kahn she began to notice things in Eric like his speech not talking in full sentences, or when he wanted something he would grab you by the finger and lead you to it and point or just grunt. So she suggested we or when you would ask him a question he would just repeat it so we suggested we take him to have his hearing checked so off to Olive View Medical we went, the hearing test came out fine. Where they gave a series of other test and thats when we were given the news that Eric had Autism and it felt like my world came crumbling down. I mean all I felt was anger, frustration, sadness for about two weeks I was on a fog, but then I had to get it together so I could get Eric the help he needed for we started to see how this was effecting him how he would become frustrated when you could not understand him so he would become angry and fight, his attention span was very short and he would cry for no reason. Well after all of the test and probing he was diagnosed with AUTISM sigh now came the crying, the questioning of "what did I do wrong" What could I have done differently. Then I remembered hubbys cousin has Autism as well but he is lower functioning where as Eric was diagnosed with Autism/ PDD a higher functioning case. So after all of the Occupational, Physical and Speech Therapy, and finding the correct schools the journey began. But as time went by we finally found the proper care from a school like Horaceman especially Brigette. She would keep the parents abreast of the day to day activities of our children via notebook, she would be able to make us see our children steps in a visual way for and example. She made us notice the way Eric walked up the steps using one foot at time she gave us a date by when he would be able to walk the steps like regular kids and my damn if she wasnts on point. Providencia and Miller and all the wonderful teachers and assistants that worked with him. The things that came with it the long IEP's sometimes being put into the wrong classe rooms which still to this day frustrates him to no end. Some teachers that just dont get it, some adults that dont get it as well, dealing with kids who dont know better and dealing with kids that think he is the coolest things since pants with pockets lol and will defend his honor. The potty training which didnt become come successful until he was 6 years old and oh the party we all had lol. The tears that came when he said a full sentence again, to hear his voice again so see him smile again. But then we have the days where the regression comes in, the meltdowns, or the picky eating, the Echoilia or now we deal with the Delayed Echoilia meaing repeating of tv shows, movies, etc. The sensory issues cant stand tags or loud noises even though he is louder then your average megaphone sigh. The over stimulation and the issues it can bring with the kids, teachers. Fighting to get Speech teachers that speak english, fighting for Adpative PE for two years, his arm getting broke at school because he is different, bottle thrown at his head cuz he is different. The school district how had and issue that he could tell me whats wrong with him because kids with Autism are not allowed to be able to communicate so well this is what happends when you live in the stone ages. Just last year the Spanish teacher asked if she could have him in her 7th period class here he normally takes Piano, the reason there is a child in there that will not speak but will communicate with Eric in Spanish, and its funny for when Eric speaks in English he tends to stutter, but when speaking in Spanish it flows out smooth and he has no accent So Eric on his on accord agreeded to change his class so he can help his friend to learn to speak in English. He is taking it again this year his progress report came in three days ago A+ Dealing with parents of kids with Autism how hate you in a way due to the fact you child is high functioning and theirs isnt. Instead of prasing you they bash you, you want to share good news with them but are afraid to. Or tell you omg stop throwing pity parties for your kids when you kid has a bad day. But when they tell you about their autism moments you give support you offer suggestions ect why because in the Autism Community we are all we got. Mom who say aww what you are doing for your child is wrong, try my way not knowing that Autism is not like that tag you see at some stores on a shirt "ONE SIZE FITS ALL" and even that tag can be misleading. What works for your kids may not work for mine, but I will give it a try and if it works fine if not I am not ashamed to say 'UMM HEY WHAT ELSE YOU GOT" Eight years later another blow was dealt sigh Absence seizures and is on medication for this. They tried to put the ADD/ADHD tag on him but we dodged that the test came back negative and no more medication for him. He is 13 now and heaven knows what else is in store for our Prince as the years go by. But all I can say is thank you to all the mommies that helped me during this time. Debbie, Pat, Ali, Ruth, Anissa, Chrissy, the list goes on so if I dont post your name dont mean I forgot you I my fingers are just tired lmbo So yes Autism has his bad times but at times Autism can bring out qualities in our kids we never knew they had I the end always remember but never forget You cant have and Autstic child if they dont have Autism Love always Bridget

Hi there the school my son gose to have decided to exclude sean for 2 days ive stood my ground and said cant have him home as im working so i cant take the time off in one part of the letter said as sean has defiant behaviour and refusing to follow instructions and was very defiant and took him self into the library despite being told not to by the dep head to me i feel that sean took himself to the libray to get away from it all what do you think xx clare:o) ps i have put the letter in a photo on my page if anyone wants to read it

Government regulation and subsidy constitutes a threat to both the quality and availability of patient-oriented health care and treatment. Hospitals, doctors, and other health care providers should be accountable to patients - not to politicians, insurance bureaucrats, or HMO Administrators.. If the supply of medical care is controlled by the federal government, then officers of that government will determine which demand is satisfied. The result will be the rationing of services, higher costs, poorer results - and the power of life and death transferred from caring physicians to unaccountable political overseers.. I support proposals for employee-controlled "family coverage" health insurance plans based on cash value life insurance principles.. The federal government has no Constitutional provision to regulate or restrict the freedom of the people to have access to medical care, supplies or treatments. I, therefore, support the elimination of the federal Food and Drug Administration, as it has been the federal agency primarily responsible for prohibiting beneficial products, treatments, and technologies here in the United States that are freely available in much of the rest of the civilized world.. I condemn and will oppose any legislation designed to secure government subsidies for special interests, such as the HMOs, and/or to protect the artificially high cost to consumers of prescription drugs. A Baldwin Adminstration will work to put an end to corporate welfare in all areas, including the health care industry. I further support the right of patients to seek redress of their grievances through the courts against insurers and/or HMO's.. I also oppose any legislation, such as Homeland Security Bill, H.R. 5005, which seeks to authorize the forced vaccination of American citizens against small pox. The government should not have the power to force people to receive immunizations or vaccinations..

Today was Seoc's second day wearing big boy underpants to pre-k (half day) with no accidents. He is still not initiating but will go if you take him regularly. I am soooo happy!!! He has done very well at home with only BM accidents.

Please help me fing fundraising.

I am teaching an Adult Living Skill Class and we are focusing on cooking healthy and using good hygeine. We prepare a meal each class. I was supposed to have funding but by the time the class was going to start the funding evaporated. I received $50.00 in store merchandise from our local department store and our local grocery store. I am paying for all of the food and supplies. Two of my adults are autistic. I work during the day with an Autistic youg man. I would like to continue teaching this class even for next semester but I cannot afford to do so. Any ideas for a grant or sponsor would be so helpful. We are in rural Maine. Thank you, Kitty Markitfindstwo

Here is what he is taking (without the dosages - which would vary with the weight and individual needs of your child. These were decided upon after getting the results of his blood and urine work back and other than fish oil and pro-biotics, I would not recommend any of these without first consulting your child's medical professional): Nordic Naturals Omega 3-6-9 which has borage oil as well as fish oil. We like the lemon flavor because Harrison chews these and they taste pretty lemony rather than fishy. We are trying to teach him to swallow pills, but we aren't there yet. Evening Primrose Oil - tastes like canola oil, but he takes it at the same time as the lemon flavored ones, so he doesn't notice. Dr. Weil's Vitamin D - very small and they don't seem to taste like anything. He just chews them. He takes the above just before bed, so if he gets fish oil on his pajamas at least it is not on clothes he wears around outside. About 7 p.m. he has zinc and a compound of calcium/magnesium/vitamin D mixed into some organic grape juice with a stick blender so it is well integrated into the juice. The calc/magn helps to metabolize the vitamin D. In the morning he has Soloray Reacta-C which has lots of C and some other things in it too. Garden of Life children's pro-biotic. He was on a pro-biotic before, but this one has more types of beneficial bacteria and more organisms per dose. L-glutamine Glutathione Lecithin These get mixed into organic purple grape juice as well. We are still looking for a multi-vitamin. We were having a hard time getting Harrison to eat the one our ped recommended. It needs to have no sugar and no copper. We buy some of this from Whole Foods and some from The Vitamin Shoppe. The calcium/magnesium/D comes from a local compounding pharmacy and is already in a powder form. It's taken a while to find everything in the right doses in a powder form (or capsule that can be opened), but he adjusted better than I expected. I do look forward to the day when he can swallow pills, but a lot of these things are tasteless and could easily be hidden in applesauce. Harrison doesn't eat applesauce, so that's why we went to the grape juice. He is also on a very low sugar diet, with Splenda being the preferred sweetener. He is to have no soda of any kind. Aspartame is really bad for everyone and soda is very acidic so it changes the pH in the body. We are lucky that he drinks lots of water, but we do buy Kirkland brand VitaRain (like Vitamin Water) from Costco. It's sweetened with sucralose, but this is something our doctor said he could have. It's a lot to take in, but I know of some kids who take 20 different things a day, so this isn't too bad. Once he adjusted to the routine, it was OK. We found a diabetic supply place on-line to get lollipops made with Splenda and you can find Splenda Jelly Belly candies and Life Savers now in lots of stores. It's really been good for all of us to get soda out of the house and to cut way down on sugar. He eats whole wheat bread for breakfast but can't be convinced to eat brown rice, so we let him have white. Let me know if you have any questions. Of course, you would probably want to work with your doctor to figure out a program after testing, but anyone (including parents) would benefit from the fish oils and the pro-biotic. 70% of our immune system is housed in our gut and so the probiotic is great on so many fronts - for helping to heal the inflammation he has there and for fending off colds and the like as well. In a couple of weeks we are doing a stool sample to check for yeast, bacteria, etc. I'll keep you updated.

Our new pediatrician had these tests run on Harrison and they revealed an auto-immune condition that we are now treating with vitamins and supplements. I'll post the supplements in another thread. Allergens for zone 3 (I am imagining that has to do with where we live and what kinds of things grow there). He was allergic to just about everything outside as well as mold and mildew. We already knew this and have been treating him for his allergies for 2 years by consulting with a homeopath. He is much improved, but the allergies are still really bad in the Spring. As his auto-immune condition heals, these should improve. Our ped recommended allergy shots but respected our desire to continue treating homeopathically instead. 24 Hour Urine Collection to test for heavy metals. This came back showing none detected, but I know that urine tests are not the best indicator of heavy metals, so we may do a hair test pretty soon. Our ped said we could stop giving the glutathione (a natural chelator) but I will probably finish up the bottle we have and hope to have the hair results back by then. CBC with Differential/Platelet: From what I can tell, this indicates how his immune system is doing and how things like hemoglobin and lymphs are. Harrison had very high eosiniphils, indicating that he has an auto-immune imbalance. Comp. Metabolic Panel: H's creatinine, serum was low. This tests is also for proteins, calcium, potassium, etc. Porphyrins, Qn, Random U: I don't know what these are exactly, but H's coprorphyrins were high. Vitamin B6 Vit D, 25-Hydroxy - H was very low in D t-Transglutaminase (tTG) IgA and (tTG) IgG These are the tests for celiac disease/glutein intolerance. They came back negative for H. I realize that some people believe this test is not a definitive indicator of glutein intolerance but we have confirmed with other specialists that he does not seem to need gf/cf. Copper, serum Immunoblobulin A, Qn, Serum Zinc, Plasma or Serum I hope this will be helpful to others. Harrison has been on the vitamins/supplements for about 6 weeks. Dr. Hunsinger said it might be 90 days before we saw any changes, but we are already noticing some things. We went to a dinosaur exhibit at our local science museum over the weekend and the whole family had a really good time. H was hurrying from room to room to check out all the exhibits and we stayed for over an hour, even doing a brief 15 minute stint in the planetarium. He asked to go into the planetarium, which amazed me, because he has never liked them in the past. He has also started opening the door to let the dog in, totally unasked or unprompted. If Harrison sees Jake waiting at the door or hears him bark, he will go let him in. We are thrilled! We still have a long way to go, but I am pleased with how things are going.

This is by no means complete or all that's out there..just a few off the top of head and I'll try to ad more later. Also this is NOT advise just to pass on what some vitamins or minerals or amino acids are for and why some people choose to use them. PLEASE seek care in giving your child any supplement. Many of these work better in a combined fashion, and are sold as such. Hope this helps, I'll try to ad more as the week goes on and I have more time...Cheryl :) Vitamin A-vision, immune system. Low iron, or magnesium effect A. Biotin- in the b family of vitamins, breaks down carbohydrates, helps support balance in intestinal flora Vitamin C- Boost immune system-antioxidants inhibits growth of candida, aids in wound healing. Vitamin D- promotes calcium absorption in the gut and calcium transfer across cell membranes, aids in absorption of magnesium, iron and zinc helps muscle strength. Cod Liver Oil- Natural source of vitamin a, used for behaviors, awareness and immune system function. Evening prim rose oil- supports prostaglandin in the body, blood clotting and synthesizing cholesterol. 5-HTP- natural mood enhancer, increases brain serotonin levels, regulates moods, appetite, melatonin production. GABA- gamma aminobutyric acid neuro transmitter, blocks nerve impulses L-carnitine- necessary for fatty acid metabolism adn energy production helps with low energy levels and muscular weakness...may help with mental clarity. L-carnosine- antioxidant, neuro transmitter, detoxification, shows promise in helping emotional control, abstract thinking, expressive speech. L-glutation- gastro-intestinal support, immune system support. Lithium- may help with: manic depression, conduct disorders, self abusive behaviors, aggressive behaviors.

At my sons school all they seam to go on about is eye contact he Must do this! Sean has mild ASD as well as other things he gose to a main stream school they start talking very loud at him and then he throws somthing down and walk out of class. Sean dosnt even give me alot of eye contact never has can the school do this? I need some help on this matter i feel the school is bullying him. Sean has been walking out of school and the school says to me we cant "touch" your child so the have to ring me or i find him on the door step after i have droped him off I dont know what to do at the mo :o(

Hi everyone! I hope i have this in the right forum.. I wanted to pass on to all my mainers- we are tryin to get the first licence plate that helps support autism! We still need more pre orders so that this plate can become a reality! please if you know some one who would love to have this on their vehicle pass this onto them.. All that is needed is the person’s full name, address, phone number, e-mail address and current license plate number, along with a check for $35.00 made out to Camp CARD NE. Vanity plates ARE allowed or you can also go to Kennebunk Savings Bank who will be accepting all checks and depositing them into the license plate account. Kennebunk Savings Bank 4A Shapleigh Road Kittery, ME 03904-1402 Phone: (207) 439-9240 FAX: (207) 439-5728 Branch Manager: Julie Perreault when we reach the pre order number and its passed. Then everyone who has preordered the plate will receive a receipt in the mail that can be turned in at their Motor Vehicle Department for the plate. THANK YOU EVERYONE!!!!