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I was talking to another autistic mom in my forum the other day and she asked me a question that I honestly could not answer.
She asked me if there was a cure for autism, a magical pill or something, that would make all my son's autistic traits just disapear, would I give it to him?
I could not answer for the simple fact that we have lived with Gage's autism since he was a baby. Autism is a part of who he is and what makes him GAGE. I love my son as he is. What if the cure made him...not Gage anymore?
Of course, I would love for him to live a normal life. I would love for him to be able to drive a car, go on dates, participate in school activities, all the things that NT kids do. However, I don't know if I would be able to take the chance of having a different child from the one I have now.
What would you do?
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Good Question...and at first I felt the same way that you did about not wanting to change richie's personality.....But after giving it a lot of thought. I would do it in a Heart Beat!
Because I truly don't think that Autism is who Richie is...or His Personality...but its his personality that makes him who he is...and with out the autism...I just wonder how much more of his personality would he actually be able to express. So my answer is Yes...I would do anything...to cure my son's autism.
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I guess I would feel guilty in a way because I would always have the nagging doubt that a part of me would do it to make things easier...for me. Of course, I would really be doing it for Gage, but there would always be that feeling that God made Gage this way for a reason. But, yes, I am sure I would do it, too.
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Oh heck yeah! By son is suffering! I would take away his seizures, his motor issues, his apraxia! Plus all the health issues! He would still be brilliant anyway! He is MY kid! LOL! My daughter, no. She is fine. Well right now anyway. She is strong enough to battle what could come along!
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In a heartbeat. She is going to need someone to help her with living a simple life, much less doing anything complicated. Who will be there for her when I'm gone (the gramma), when her daddy is gone (he will need help himself in the future as he is dealing with Parkinson's), and when her mommy is gone? That's a big burden to put on the shoulder's of her sister who has strong ADHD and it may interfere with her making a life of her own.
If she could become someone who could manage all the everyday tasks that neuro-typical folks don't even think twice about there wouldn't be any choice at all for me. I would want that for her. It would open up a whole world of choices that it doesn't look like she will be able to avial herself of as a person with Autism.
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Yes, Sherry, I think that is a fear that all of us have. Who will take care of our kids when we are gone? It is something that my husband and I are thinking about very seriously right now. Money is not an issue as Gage's grandparents opened a trust for him when he was born. However, how do you find the right person????
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I might get stoned for this reply, but ABSOLUTELY!!!! I would give that pill in a second.
My son was not born with Autism. He was a typically developing child who regressed at the age of 17 months. His personality was already there for us to enjoy. That same laid back, loving and silly boy is still visable, but complicated by the brain/body changes from Autism.
His Autistic traits are not 'him'. I hope that makes sense.
Granted, it would be another adjustment, but I don't think I'd miss the slow processing speed, anxiety, language delays, GI distress and bug phobia one bit! THAT is our Autism.
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I asked my son Nate that question awhile back and he said no. That he is comfortable in his skin, Autism and all and he likes himself just the way he is and he likes it that we like him "in spite" of the Autism. He said this is the only way he's lived his life and doesn't want it to change. I agree, all three of my boys have been this way our entire lives. I wouldn't know what to do with something different now. I don't love him any less and respect him and his feelings about Autism...I live with them but they live WITH Autism.
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We love Benjamin's quirky "weirdness" and would never want anything to take that away (we are also quirky and weird) BUT I also know that Benjamin is so often frustrated and miserable because of how his disability affects his life. We have always stressed to him that he needs to be proud of who he is but that he also should understand that he has a disability that can make many things difficult for him so that he can hopefully have a better understanding of why he is so often frustrated. It would be wonderful if there were something that could ease some of that frustration and give him (and yes, the people he loves) some peace. OK...BUT...I have read Flowers for Algernon too many times to not be very aware that there is no easy answer and the results of "miracle" interventions can result in worse nightmares!
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I wish there were such a pill! My son has autism-the autism is not who he is. He was not born this way and this is not the life he was meant to live. He should be talking and playing with his friends and siblings. He should be able to get live on his own, have a job, get married and have kids. Autism has stolen this all way form him.
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I feel all of you have covered ever point I have thought about.
I do know that for my other two boys , it's hard . I feel they are going to grow up
resenting Sammy. My oldest wants to be a scientist to make the "pill"
he has always wanted to just play with his brother. I feel I would be doing it for selfish
reasons.I love so many things about Sammy he has Autism but Austim is NOT HIM I don't want o change him. I think about it this way. If he had a broken arm I would want to fix it, not leave it there hanging. I want Sammy to be the best Sammy he can be inside and out.I have learned alot from him .
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My son Christopher has been moderately autistic since four months old. He is five now and still cant hold a complete conversation verbally. He says more for his speech therapist than anyone else. I would love to cure his autism and see the real Christopher. I cry myself to sleep a lot because i would love to have a real conversation with him and see what is on his mind. I can tell he is really smart and he understands what i say to him. He has trouble communicating back verbally and i have never seen a more lovable child.
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After reading everyone else's posts and thinking about it for awhile...I'm still torn..There's a part of me that wishes that Nolan was "normal" and there's a part of me that wouldn't change him for the world. There are days (more than i'd like to admit) that I'm very frustrated because of all the repeating and the meltdowns.
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Liv Regressed & turned into a totally diff. person. I first hand watched Liv change into a different person. And, I witnessed her suffer through the change. I know for a fact that she tried to fight the change to the best of her ability. I watch her get frustrated all the time with symptoms she suffers.... She is aware & I know she fights the symptoms everyday. So, if there was a magic pill or magic bean.. I would give it to her & I know she would want that.
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