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#1 2008-05-26 07:20:06

Autism Mom
Member
Posts: 28

Does Your Child(ren) Know???

...that they are autistic?  We have never come out and said to Gage, "You have autism".  I am sure he knows he is different, but we didn't want him to think of himself as "different" from others because of autism. 
He is 10 now and I am wondering if now is the time to explain all this to him?  If so, any ideas on HOW?  Gage is high functioning in most areas, but socially he is not on his level.  Also, Gage has lots of fine and gross motor problems, too.  He is also over-weight because of the foods that he DOES and WILL NOT eat.  Any feedback is appreciated!!!!

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#2 2008-05-26 22:28:43

LisaAutismAdvocate
Member
Posts: 111

Re: Does Your Child(ren) Know???

Ya know, it wasnt until I watched the cnn special...Finding Amanda...that I realized that Richie does Know that he is Different...He just cant express it, because he is Non Verbal. But when the Reporter asked Amanda when she knew she was different or had autism....She said when she went to school and realized that all the other kids were talking and she Couldnt...that she realized that she was different. I was Like Wow...because I had never really thought about it before. It really did hit home...and somedays I would so love to be a fly on the wall of his brain...just to know what he is thinking and feeling. I have alot of hope though, because he is gaining more language...so I do hope that one day he can express himself and let me know what he is thinking more.
As for the Diet thing....that is where Richie is most Sensory Affected, he wont even take medication of any kind....and it is very hard. I have been hoping to get a behavior therapist in..which we have been approved for by the state, but they cant seem to find one for him. So we are still working on that one.
My oldest son has alot of fine and gross motor problems due to another health issue, not autism. I was given alot of good things from the OT to work with him on.
Does Gage get OT at school? Some good things to work on the fine motors...would be, Sand, Clay, Rice...put things in a bucket of rice and have him find them. They have this Vibrating Pen...pencil grips, Tracing things....cutting coupons, buttons.....Velcro, Map paths...where they start and have to end at a place. These are just a few things I can think of off the top of my head...I will see if I can find some other things too.
Hugs,
Lisa

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#3 2008-05-27 07:42:24

Jake9068
Member
Posts: 78

Re: Does Your Child(ren) Know???

Michael has always known.  Maybe it is because his sister is 6 years older.  I have always told her if he does something embarrassing just explain to people he has autism.  Also we travel across country to see our DAN doctor and Dr. Krigsman.  Every time we get on a plane I explain we would like early boarding because my son is autistic.  For us it hasn't been a big deal.  It is just something that is.  It is a fact.  Of course, the service dog is an indicator.
One time we were at a friend's house whose son is autistic.  My kids started a game of chase/tag with her kids.   The  kids said "its the autistic kids against the non-autistic kids".  My friend just looked at me and said they must have gotten that from you.  We don't talk about it.

There are some books out there explain it to kids.  I don't know the names.  A social story might work.  I would probably present it as everyone is different in different ways.

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#4 2008-05-27 11:10:07

tc
Member
Posts: 22

Re: Does Your Child(ren) Know???

I think around the age of 8 or 9 my boys started asking questions, but I think they have always known.

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#5 2008-05-27 17:34:21

momo3auts
Member
Posts: 88

Re: Does Your Child(ren) Know???

Our youngest was diagnosed first so we kinda went backwards. We never made it a secret and talked openly about Autism in our home. When our oldest was diagnosed he was headed into 4th grade and had already known Autism by his brothers. Finally I did tell him that he too was Autistic, and the look on his face....
He said "you mean everything you do for Brian and Stephan you're doing for me too?" He was so....happy....I know that's weird but he was. He told me he knew something was different and felt better having a name for it than wondering endlessly what was wrong with him. Over the years he has come to realize where his strengths and weaknesses are with Autism. When he tries to use it as an excuse I tell him that society isn't going to cut him any slack because he has Autism and I won't either. He may have to work harder than some but the rewards will be just sweeter when he accomplishes his goals.
Because other kids were aware when he was in 3rd grade that he and his brothers were different his teacher invited me in to explain it. I brought in a phone and explained that Autism is like a phone. The connection is stronger in some kids and they can talk and understand and may just have a glitch here and there with their Autism. Other kids with Autism are not as well connected and so they may not be able to talk or respond like regular kids do. Seeing it helped them understand it better, and it helped Nate too. He really "got" it then.
Everyone is different and you have to do what makes you comfortable. But that's how I did it and it worked out for us!

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#6 2008-05-27 22:26:10

Autism Mom
Member
Posts: 28

Re: Does Your Child(ren) Know???

Gage knows he is different, but I think it would help him to know WHY he is different.  He has gotten to the point where he calls himself "stupid" and a "dunce" when he can't do what other kids his age can.  I think the time has come to explain that he is different because he has autism and that there are some things he can't help because of it.  Gage's OT was cut off as of next year because the school says he can't get it anymore unless his motor problems are causing him not to be able to funtion in a classroom setting!!!  What they don't get is that it is affecting him socially, not so much physically!  When he goes outside for P.E. and he can't run like the other kids, or play the games like they can, THAT affects him!  I tried to get them to understand, but they don't care.

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#7 2008-05-28 07:18:11

wktb
Member
Posts: 31

Re: Does Your Child(ren) Know???

My son is going to be four this Summer but he already knows he is different.  He knows he has limitations that his sisters do not, even though one of them is also on the spectrum.  He will try to get me to help him with things he sees them do.  He is also nonverbal and he has been aware of that difference for at least a year.  That really held him back until he got the hang of signing.  My daughter doesn't realize she is different from any other kid.  And really, these days she is blending in more and more.  She still has the occasional flap that she will do.  I think she will see it more as she gets older.  But I am really hoping for a full recovery for her-she has come so far recently and I think she will make it!

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#8 2008-05-31 01:55:24

Anamcara
Member
Posts: 17

Re: Does Your Child(ren) Know???

I have four "differently-wired bears", and all of the older ones are aware of their differentness, and the explanations for it.

My oldest daughter is dyslexic, discovered at the high price of a mental breakdown when she was 9 because she kept it so well hidden from everyone.  Her comments were that she's always felt "stupid" because she couldn't make sense out of the letters/words that other children could.  My pre-teen is Aspergers, only determined this past year, but she has always known something was just "off," and I remember her referring to a "black cloud" that would envelope her right before she would rage.  My 9-year old is ADHD, and we've known that since she was 5.  My son is autistic, and there are times when I observe him that I know he is aware of his "differentness" from his peers - you can see it in his body stance and his eyes.

I was raised in a household in which I knew from the beginning I was adopted, and I tend to follow the philosophy my parents had in doing so.  If, by being open with my children regarding their differentness and helping them come to terms with it and accept themselves, then I am arming them with the weapons they need - self esteem, acceptance, confidence and determination - to combat people who would see their "differentness" in a negative light.

Last edited by Anamcara (2008-05-31 01:57:46)

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#9 2008-06-01 21:02:23

Autism Mom
Member
Posts: 28

Re: Does Your Child(ren) Know???

Very well said, Anamcara!!!

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#10 2008-06-06 20:31:16

Autism Mom
Member
Posts: 28

Re: Does Your Child(ren) Know???

Well, I told Gage last nite about his autism.  He took it very well.  In fact, we was relieved to know that there was a reason WHY he was different from other kids in his class!  He told me, "Mom, now I understand what is going on and it helps to know that it is not my fault."
The hardest part was when he asked me would the autism ever go away,
I told him that there is no cure for autism RIGHT NOW, but researchers are working on it everday and maybe one day, there will be.  I also told him that there were many kids with autism and that some kids could not do as much as he could; some could not even talk.  He said, "Wow, I would like to meet them and help them!"

Now, I was wondering if any of you know of some adults with autism that could be role models to my son?  Actors (Gage loves movies), sports figures, whatever.  I want him to know, and I told him, that just because he has autism does not mean he can't do anything he sets his mind to do! 

I bought an autism pendant from FunkyPlanet.net and it came in the mail yesterday.  It is beautiful by the way!  I told Gage what it was and what the puzzle piece on it stood for.  He wants to wear it to promote autism awareness!!!!
God Bless our kids!!!!

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#11 2008-06-07 04:45:38

lisadianne
Member
Posts: 39

Re: Does Your Child(ren) Know???

Hi!  I've read all the great replies and I'm not sure that I have anything new to add but...We have been very open with Benjamin about his disability as soon as we had his diagnosis.  We felt that if we were relieved to have an understanding of why his "world" works the way it does, then it would probably make things easier for him (he is definitely a person who "labels" and "categorizes" so this helped him organize himself and his world).  Also, we have always told B. that everyone is different, everyone has different strengths and weaknesses and everyone has something that makes their life difficult (for instance, my asthma and my husband's ADHD). And, if we weren't matter-of-fact, wouldn't it seem as if it were something that was shameful to us?  We have been helping B. explain to others when he meets them that he has autism.  He seems to face a lot less outrage and rejection that he used to get because of his unexplained, strange behaviors.

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#12 2008-07-28 20:13:28

Pepperpots
Member
Posts: 11

Re: Does Your Child(ren) Know???

Yeah, we told our son.  He has Asperger's.  It helps him to know that he struggles for a reason -- not because he is a dork, like kids all tell him.  We try to explain things without blaming things on autism, if that makes sense.

He prays at night for it to go away, but I don't.  I'd like for him to stay who he is, but function with joy, if that makes sense. We are sure to tell him we "love the squeezin's out of him" with his autism.


Pepper
www.introvertigo.typepad.com/licensetolove/

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#13 2008-10-12 03:24:27

autti34
Member
Posts: 25

Re: Does Your Child(ren) Know???

i was about 13 when i stard to relize i was differnt .maqybe iu did  a litte before that but didnt have any way to ask

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