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Because he is none-verbal? I had an IEP for Mickie on the 29TH of January and asked for
more speech and was denied and the 10 minutes a week he had since
December were taken off too. The speech therapist had been replaced
over the holidays with the old speech therapist.
I was told by the speech therapist that since he is ten the window of
opportunity was permanently closed and speech was pointless and that
she was going to implement a pecs program for him instead.
My problem with pecs is that we have been trying to teach him pecs since he was three and he is just not interested.
She repeated that the window was closed several time until I had to
finally tell her to stop and not say another word, because I don't
tolerate that kind of negative talk about Mickie. I wanted to jump
across the table and strangle her, but instead tears ran down my face.
She put the teacher and me down several times. What an arrogant bi.....
She says that she based her decision on the psychologist report from a year
ago. What kind of report could he come up with if he can't talk?
Also Mickie's regional center worker told me that she doesn't think the
psychologist used a proper method of testing for a student like Mickie who
is none verbal and goes out of his way to ignore you.
The county principal suggested that a communication device be ordered
for Mickie so that he can push on the icon of the activity he wants
and a recorded voice will say what it is, giving him an opportunity to
hear spoken language along with the pecs and the speech therapist,
said no to that too and proceeded to spew her negative crap and that's
when I told her to stop. She tried to shut me up again and I told to stop, because she does not have to live with this.
The principal said she would provide Mickie's teacher with the device anyway.
Can they do this? Being none-verbal is grounds for denial of speech?
I posted to other support groups and everyone seems to agree that they
can't.
I have seen Mickie regress in the last 4 years.
I wrote the principal a letter and she answered with another meeting we are to have on the 19th of this month.
Any ideas on what to do for this next meeting?
Zurama
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Technically, you team makes the decisions for special education. If you do not agree with your team, then you need to do as you are doing now, figure out how to put forth a case in support of appropriate services for your child. Each state has a parent information center geared around special education. You can call the Deptartment of education for your state and ask them what agency that is. Also, check out www.wrightslaw.com, there you will find information and support to help you understand the law, help you communicate better with your team, etc.
Your team cannot discontinue the speech on your IEP without an evaluation to determine his progress. Since he hasn't made any progress, I would have a hard time figuring out how they can justify no speech. If the did an evaluation, you should write the school and let them know you disagree with their evaluation and would like an independent evaluation. Contact your insurance company as a back up to see what they would cover. It sounds like you might also benefit from asking for more evaluations that are appropriate for children on the spectrum. This isn't to be used to suggest he is limited and any doors are closed, it's to determine an appropriate plan. In your letter, write that you are concerned about his regression over the past 4 years and want to put in place an IEP that will provide an appropriate education for your child.
It also sounds like you school needs more education on autism. You can talk to your local autism society and find out resources and who does these trainings. Ask your school if they would consider hosting a training.
There are so many ways to advocate, the most important being, get more involved. Attend school board meetings, always appear positive, but share your story and concerns for this epidemic and that you just hope that your school can prepare itself to address the needs of children like yours. Offer to help in any way you can. Offering help and appearing to be concerned for the masses works more effectively then raising your individual concerns.
Feel free to email me directly for more support. Your child deserves an appropriate education, you should be able to work with your team to determine what that is, overall, regression isn't a part of the plan. State and Federal laws support progress, but resources, education and community support need to be there too.
Check out wrightslaw under the evaluation section, start there. It's going to take a bit of time.
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Have you resolved this matter? If not, I may be able to help.
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Not sure if this helps at all as I live in the Uk and we have something launched by the Autistic society here. Every child matters and make school make sense campaign which has seriously made schools and Education as a whole sit up and listen.
My son has a fully loaded statement which basically pays for all of his support in his school. This is reviewed once a year and any changes from both sides can be added and deleted but ultimately the agreement is via both the family and education.
If I have any problems then we contact the GP and the Paediatrician who will send a report for the review meeting and then if of course funds are available Tom is given the provision.
Don't let this woman to speak to you like this. Quite frankly the report is out of date and needs updating now. No professional with a decent knowledge would turn to something so dated. Ask for a new report and indeed the speech therapy. We communicate through speech the fact that your son is not yet able to access this form of communication does not mean he should be denied the teaching and help. Don't be pushed about. Good luck ![]()
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What happened?? I want to know also. The previous poster katiesmom said everything I would say. PLus I might accept the device in addition. They need to be doing everything they possibly can to get him a FAPE! They are responsible for doing this.
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In our state we have parent advocates who can help you advocate appropriately for services for your child. They will help naviagate the edcuational laws. Also, as a special education teacher, I have observed administrators fall in line and offer more services when a partent advocate is present. I would also suggest recording the meetings so you have a clear transcript of the meeting to refer back to in the case you decide to take legal action.
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I agree with the information already given you. I do know of cases where children do speak after "the closed window of opportunity." The most important thing right now is that your child have a functional communicative system, whether that be verbal, PECs, or something else. Be encouraged that while PECs was not designed to teach verbal speech, it sometimes has that outcome, so using PECs does not mean that you have given up on your child's possibility of speaking. It may make speech more meaningful to him as it makes it visual. I teach kiddoes with autism ages 3-5 and it is sometimes challenging to get them interested in it. But working together, my educational team has been able to come up with some things for each child. It may be a lot of work, but worth it. It will be even better if used across all his environments. Does he like McDonald's or some other fast food place? You might try using PECs there. I always label the object or use the phrase, "I want ___." to give the child the words to use. One day he may be able to speak, but if not, he will be able to communicate. I wish you and your son the best.
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I would think even with pecs insist on him receiving speech while he does pecs and the communication board you have to enforce all communication while he does this that way he will still be getting speech. I thought also is the testing wasn't done right you had the right to get someone else to test him at the school's expence
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SOmeone told me early on that if the kids dont talk by the time they are 2.6 years, they wont. Ben said his first words at 5=right before his birthday. We also had a slp tell me my son was mentally challenged (at 2 yrs) and I was sooooo mad!!!! SHE was the very first Person I ever told off!!! NEVER EVER EVER let anyone take away your hope and dreams and as long as you keep advocating for your baby He will fulfill all his dreams !!!! Don't Ever let someone tell you NO... KEEP PUSHING> I had one teacher in an IEP meeting I wouldnt even look at and when she tried to talk I put MY hand up in her face and looked away.. Dont even speak..your words mean NOTHING to me....PUSH PUSH PUSH> ..... YOU are all mickie has working for HIM!!!!!.. ask for another SLP even if its from another district.. you can't work with this one. Call SUPT of school system - call SOmeone and Everyone.. There is NO RESEARCH that is qualified and known to be true when it comes to autism .everyone is just learning. They used to say it was caused by COLD MOTHERS!!!!! ... There is NO Research that qualifies some SLP to make those assumptions. Ask herwhen she went to college if she was A student or a D student.... I just want to know your grades... to see what im dealing with before I take your opinion. Im such a WITCH.. have to be.. Ben talks now...!!! Keep fighting till the end!!!! Ben is SOo NOT mentally Challenged!!!!! Keep fighting!!!!!!! These people think they are experts. there is no expert. there isn't...!!!
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I have since then had the Speech put into place, but I feel is an attempt to butter me up. After the new speech evaluation they offered 30 15 minute sessions.
I have found out about a private ABA school in a neighboring city that just opened up last September, and after letting the district know what I wanted for Mickie, they gave me their options for next school year and the classes they offered are not at all appropriate.
He never had ABA therapy and I thought since he has not made significant progress since entering this district that a more intensive approach with a more restrictive environment ,would be most beneficial.
Well, I just came back from the IEP meeting and they don't agree with me and I don't agree with their proposed placement. I signed the IEP as in attendance only. The district manager wrote in for me under my signature that I was only signing that I agree to attend only. I don't know why she did this, since she seemed to be fighting me, but who knows.
I remained calm, for the most part, but I did tell them that I had entrusted them with my son's education for the last four years and that they had flushed it down the toilet and that I was not going to hand him over to them, for another two years. I couldn't help it, I just wanted to scream.
I am not sure where to go from here, but I'm going to fight them, till the end. I feel so sure of this, that if they don't agree to pay for the ABA program, I'll pull out of school and teach my self.
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My husband has a friend whose brother didn't speak until he was twelve. I met the man and he is pefectly verbal now. I don't know how he was when he was younger but he definitley is on the spectrum. He is self sufficient and works harder than most people. He knows someone else whose child didn't speak until they were over 10. For them to see the window of opportunity is closed is BS. ~Kristin
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