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#1 2007-12-21 04:52:52

joyjoy
New member
Posts: 5

Neurofeedback

Hi All -

I'm new to the site and am the mom of an almost 10-y.o. Aspie.  We've been doing neurofeedback since October and I just wanted to share stories/issues with others doing the same.

Any takers?

Joy

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#2 2007-12-21 11:22:43

Wyndie
Member
Posts: 38

Re: Neurofeedback

Hi Joy.  Two of my children have done/ are doing neurofeedback as well with great results.  How's that going for your child?

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#3 2007-12-21 18:11:33

shannonj
Member
Posts: 298

Re: Neurofeedback

I'd love to learn more...I've posted several positive articles on here in the past few months regarding neurofeedback and I am totally intrigued.   
Do share!
Shannon

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#4 2007-12-22 02:08:54

Wyndie
Member
Posts: 38

Re: Neurofeedback

With my son, we saw an almost immediate reduction in anxiety.  He was HIGHLY anxious anytime outside the house.  His OCD was thru the roof.  He lost anxiety within just a few sessions and his OCD is gone. 

For my daughter, she has a horrific terror of needles.  Probably many on here can relate... the type of terror that causes your eardrums to ache from the screaming, had to be bodily restrained... she actually got scared watching ME give blood.  She is not afraid of anything else, just needles.  That terror is reducing as we do neurofeedback.  She's also thinking more logically and able to convey what she means without going round and round in circles (conversationally)

Their therapist said ADHD kids get calmer and anxious kids lose their anxiety from neurofeedback.  I have seen that to be true here. smile

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#5 2007-12-23 10:48:26

Jake9068
Member
Posts: 78

Re: Neurofeedback

My son is currently participating in a neurofeedback study.  He is calmer and better able to form thoughts.

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#6 2007-12-24 18:08:37

joyjoy
New member
Posts: 5

Re: Neurofeedback

We have found our son to be a "tough nut to crack" with neurofeedback, although I have great faith in its power.  He has had some regression at school, in that he had been working independently and stopped for several weeks which caused his teacher much frustration.  This past week, however, he seems to be coming back up to speed.  The neuro practitioner submitted his qEEG to an Asperger specialist, who agreed that my son's brain was an enigma (of course!) and they had to move very slowly because of his sensitivity to neurofeedback.  Everyone agrees that the sensitivity is a good thing, because the worst case is someone who doesn't respond at all.  I'll keep reporting as changes occur.  Thanks for all your feedback, too.  If you want to give me some specifics, I'd really appreciate it.

Joy

Last edited by joyjoy (2007-12-24 18:10:24)

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#7 2008-02-14 21:17:24

Lori G
New member
Posts: 2

Re: Neurofeedback

What is Neuro feedback?
I am new to this site.
Let me say that I am in Va.
My son is an Aspie he is 10 and we have been working with group Behavioral therapy as well as special tutoring for school subjects that absolutely freak him out. One of his OC issues is TIME, he can't handle the expectation of a time frame on anything. He is a brilliant child and off the charts in IQ scores (as most spectrum kids are) but can not always demonstrate that in his academics. He is in inclusion and has done well up to this year in school. Lots of social issues and lots of anger and frustration isssues, especially w/ his younger sister who is 8 and precocious not spectrum. I also have a teenage daughter who 15 and very much my sons second mother. The dynamics of my family are a challenge to say the least. The 2 girls do not get along, jealousy over the attention that my son gets, anger and constant bickering. Does this all sound familiar ladies.
Any suggestions?

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#8 2008-02-15 19:43:57

Lori G
New member
Posts: 2

Re: Neurofeedback

What is Neurofeedback?

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#9 2008-02-22 18:04:50

joyjoy
New member
Posts: 5

Re: Neurofeedback

Neurofeedback is often referred to as "brain training".  The practitioner will first do a QEEG (Quantitative EEG) on your child personalized program.  Therapy consists of putting electrodes on various areas of the head  and monitoring the child while s/he performs hands-free tasks in a computer program.  For example, my son moved a PacMan-like creature around a maze eating dots, with just his mind.  The program gives you positive feedback in the form of beeps.  With that being said, we've tabled this therapy for now because it wasn't effective for us.  My consultant's opinion is that the failure was due to my son's not being "cleaned up", so now we're on a supplement regimen for yeast, detoxing, etc.  Hopefully, once this has been accomplished, we can go back to neuro and find success.

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#10 2008-02-23 04:08:34

Jake9068
Member
Posts: 78

Re: Neurofeedback

My son is currently doing neurofeedback  through a study.   He has helped tremendously.  He has been "cleaned up" as someone mentioned above.  We have been doing biomed for 9 years now.  We have recently been able to start decreasing supplementation. 

His processing is better with neurofeedback.  He is now able to think before he acts!!!

One difference to aware of....neurofeedback through a study is not necessarily the same thing as through a private/pay program.  A private program can be fine tuned to meet the patients indivdual needs while the study is one size fits all.

Kathy

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#11 2008-02-25 17:36:30

joyjoy
New member
Posts: 5

Re: Neurofeedback

Hi Kathy,

How did you find the neurofeedback study that your son is involved in?

Joy

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#12 2008-02-26 07:59:16

Jake9068
Member
Posts: 78

Re: Neurofeedback

It is at UCSD and I heard about through a parent support group.  It is actually
the 2nd study they have done.  They are studying changes in the brain after neurofeedback.  My son had to have a brain scan prior to starting and will have another
when we are done.

Now that we are on "the list" at UCSD we have done 3 studies. One involving the attention span of the typical siblings and another  involving the ability to color in the lines of typical kids and asd kids.

Kathy

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#13 2008-07-18 20:07:49

Pepperpots
Member
Posts: 11

Re: Neurofeedback

Wow! I would love to try it.  Don't know how. I'll be looking out for it in our area.

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#14 2008-09-26 03:39:20

cinni
New member
Posts: 7

Re: Neurofeedback

Very interesting. I have never heard of this.

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