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What I want people to know about Autism
by Seth McKinley
i would like to tell people that autism is hard on
everyone in a family
you try to breach the silence barrier
to let people get to know you but its awful hard to
act sedate when you panic inside
i mostly want to tell people that we are apparently healthy
but maybe we are really sick and desperate for someone
to decipher all our symptoms and give us a treatment
that will ascertain our recovery and give us a chance to
bolt away from autism and be who we were born to be
we are autistic and sad to say real behaviorally challenged
we are normal in our minds and we are dominated by autism
we totally understand all that is said
highly autistic is actually not lost in autism
though autistic people seem lost
they are just trapped
like fog in the morning
it is trapped between places
mist and water
autism is like that
trapped between what we are and
what we are supposed to be
hard to look typical when we give bad impressions to others
we try peoples patience but we dont mean to
families just hope that others wont notice
but they do
desperate to say help and afraid at the same time
the second you get comfortable autism stares you in the face
and saw that you were somewhat typical then
slams you back into reality
totally happy to say that i do talk in my mind and one
day it will just leak out of my mouth and all will be amazed
glory to god
i will sing his praises loudly with my voice
i welcome any thoughts or questions
seth
god loving friend with autism
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Thanks. Sometimes I want to bust open Caleb to get him out or see what he is thinking. He cannot communicate basics that I want to know-hurt, sad, embarrassed, angry. My daughter too. I just hope that someday they can speak their minds. I can get around other things if I know how they feel. I love them dearly as I am sure your parents do too.
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Hi Seth-
Thank you for sharing so openly. I can only imagine your frustration--and my son's as well. He can talk, but doesn't verbalize with the same maturity that you write with. I wish that I could ease my son's anxiety, turn down the engine that revs inside him, so that he could feel better.
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You are very articulate and your words are wonderful. Thank you for sharing. It's incredible to have your insight.
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i have autism it like being stuck behind glass wall sometimes
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That was excellent. We often wonder what is going on in my granddaughter's mind that she isn't able to express. If we had known sooner that she wasn't "just a late talker" we would have started teaching her sign language earlier. Has anyone else here used sign language for their autists who have trouble using words?
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Thanks Seth it helps us parents to gain more insight into our children...and helps us to communicate better with them too!
BTW....I think Your Awesome and a great Gift to all of us.
Lisa
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Seth, I would like to send this to our local newspaper in Lexington, NC We have an autism society here, but I feel folks need to know what it's like to be Autistic. Your talent is amazing and I am in awe of it as many are. I feel the public needs to read what you have written. laurie Cleary
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