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#1 2008-04-25 22:32:05

socalsan
New member
Posts: 7

New Here - Wife and Mom of Aspies

I am so excited to have found you all!

I actually discovered foggyrock, mentioned on Celebrtiy Baby Blog, in a thread from their Autism Awareness special posts.

I am a 48 yr old mom of 3 kids.
My daughter is NT and 25 yrs old - living on her own with her fiance.
My oldest son is 16 yrs old - dxed with Aspergers in the 3rd grade and our youngest son is 4 and is currently in the process of being evaluated/dxed by his school district.
My husband is also 48 and with our eldest sons dx - he and I both are totally convinced, that he is also an Aspie.
Our family therapist of the past 6 yrs is also in agreeance.

I couldn't have found this board at a better time.
While I am struggling trying to grasp a ASD dx for my youngest son, due to him being polar opposite of his older brother - I am also desperate to help my older son with his social issues in high school.
He is mainstreamed and went from 4th grade to 8th - with the same one on one aide who was a huge blessing in our lives and is still considered a friend.
Now in high school, he has an aide for only a few classes.
His social circle has finally grown to include a few friends - his homeroom, believe it or not - is a group of ASD young men!

Our 4 yr old is alot like his brother, to a certain degree, at school.
He attends a state funded preschool located at a public school - where children with disbilities are also mainstreamed with those who have not.
He has had speech issues and around 2 yrs - discipline issues.
He has been doing well up to about last fall where he has slowly been regressing back to the types of discipline issues that he had at age 2 - but that are all the more frightening at almost 5.
His teacher has concerns with his compliance and lack of verbal participation/communication at school.
At home I have concerns with his temper tantrums, anger and lack of appropriate response at times.

My husband and I have been married for 17 years.
At least 85% of this time - we have been in one form of counseling or another.
Communication is a HUGE part of my life.
My husband still cannot understand why his first marriage ended and has a hard time trying to discuss his feelings or recall the situation.
When we met he had been working at the same job with no bene's - for 15 years.
Now, for the past 15 years - he has been content to work as a cashier in a club store - a job that my best friend pretty much 'gave him', because he wasn't open to the change and actually fought the opportunity.
He has been offered chances to promote and supervisory positions.
He tried once and didn't like dealing with certain responsibilities and returned to cashiering.
Even though this has meant financial disaster for our family.

When my oldest boy was dxed 7 yrs ago - that same month, I was dxed with Systemic Lupus Erythematosus (SLE), after a year of seeing many specialists.
I often wonder about our two illnesses and would love to know if anyone on here has noticed a correlation to auto immune illness and autism/ASD's.

Where we live in Southern California - the closest Asperger Support Group is almost 2 hours away - and for our lifestyle and schedules - it may as well be a day's drive.
While both my husbands and my parents have long passed, our siblings are either too far across the states or non-supportive.
Our extended family consists of friends that I have made over the years - some that I grew up with.
They all have received much education from us in ASD's and have helped make our boys as successful as they are so far - and will continue to help.

Here, I seek experiences and understanding that is so hard to get when families of NT's say - oh 'that's normal' or that's 'just a phase'.
Their words - though said with the best of intentions, bring forth a sigh of resignation from me, as I think - is it a good thing or a bad thing, that you will never know what an understatement you just made?...

I look forward to learning, sharing and growing with everyone!

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#2 2008-04-26 04:51:31

frogfoot1969
Member
Posts: 131

Re: New Here - Wife and Mom of Aspies

Hi, welcome to the group! We think my hubby is undiagnosed Aspie. I know what you mean about the communication. I have a 15 yo NT from a previous marriage and a 3yo w/ ASD and numerous other diagnosis. I have Multiple Sclerosis and Graves disease. I think it is very common for persons with Autoimmune disease to have a child w/ ASD. I had recently said that MS and Autism both are neurological disorder, both have a genetic predispostion and both have a environmental trigger be it toxins or viral.

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#3 2008-04-29 22:45:57

curlygal
New member
Posts: 1

Re: New Here - Wife and Mom of Aspies

Hello SoCalsan, I enjoyed reading your post.  I have a son who will soon be 13 who was dx with Aspergers almost three years ago.  Knock on wood but neither my husband nor myself have ever been diagnosed with any type autoimmune diseases as of yet.  I am 45 yoa and he is 38.  We only have one child.  I love him more than life but as you know it has never been easy raising a child with ASD.  He gets sad sometimes because he is ostracized socially in middle school.  I hired a professional advocate to address his middle school earlier in the year so it has helped in many ways....other ways not so well.  I wish there was a social skills class in our area of GA he could attend during the summer. He's been in counseling many times but I have never noticed any benefits.  I wish he had a best friend.  I could go on and on about him but I would fill up pages.  I will be glad to share my experiences if you have questions.

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#4 2008-05-03 09:54:30

socalsan
New member
Posts: 7

Re: New Here - Wife and Mom of Aspies

thanks for replying!

Frogfoot1969 - I find the connections just fascinating.
I know, I sound like a nerd - but I can't help myself - I can read bout this stuff for hours!

curlygal - our son had the same one on one aide from 3rd to 8th grade!
What an amazing blessing! She was so like me on how she dealt with him, that it was perfect - the consistency and how he knew what he could NOT get away with - ANYWHERE!
He was bullied and teased usually by a specific kid in elementary school, then in middle school. But really, it wasn't as bad as it could have been.
His teachers were awesome about explaining to the class, about the difficulties he had - when he wasn't around - and how to help him and what would bother him.
The other kids were awesome! Especially the girls! They would mother him and watch out for him.
In middle school it became tougher - but still not too bad.
In high school he has truly blossomed.
The one kid who was bothering him, has actually become a friend.
And  yes - I got a lump in my throat when I read your comment about how you wish your son had a best friend.
So many times my heart would break, watching him come out of school and never stop to talk to anyone.
People would see him around and always say hi - but he could not look them in the eye and half the time would ignore them - the other half not even hear them.

He now has a handful of friends, as a sophomore that are all aspies, too!
And for the first time I saw him walking home with a nt kid he knew since middle school.
I live for those moments that I took so for granted with my nt daughter.

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#5 2008-05-08 23:29:41

momo3auts
Member
Posts: 88

Re: New Here - Wife and Mom of Aspies

WOW~
I have been diagnosed with a Connective Tissue Disease for years now. They say it could be Lupus....I could be headed towards MS. I have another friend who also has an auto immune issue and we both have children with Autism. Makes me wonder too! Mary

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