FoggyRock General Forum

shannonj · 2008-05-21 08:01:00

I wish they understood how all-consuming it is.....and we haven't intentionally chosen to be so distant, but that we have had to find what works for our son and that often means that we have to choose him over every other person and/or event in our lives.

EmilyL · 2008-05-22 02:56:08

This doesn't go for my whole extended family, just for my mother, unfortunately. I wish she would understand that Daniel HAS a disability, he ISN'T a disability. He needs to be treated as a human being, not as something subhuman. I wish I could get her to understand that people don't have to be perfect to be wonderful, and that although disability limits what you can do and how you do it, it doesn't limit how far you can go. Daniel's a very cool kid, I just wish she could appreciate him as he is.

LivsDad · 2008-05-22 04:03:07

I second that, I am not a flake & don't think I don't care about you, my friends, & extended family. My life is chaotic & dynamic being a single parent of an ASD child. We have melt downs, we have to work around bad days, sick days, & more frequent true emergencies like seizures, falls, slips, etc. We have days where both us & our kids get hardly any sleep. It is VERY difficult parenting & caregiving for a child with ASD. PLEASE understand.

Last edited by LivsDad (2008-05-22 11:13:43)

wktb · 2008-05-22 05:25:58

I wish my family members would ASK about autism and my kids. My daughter is pretty much passin gfor NT if you see her but my son is much more severe. I just wish they would ask me how I was doing and really want to hear the answer!

Kristin

AWETISM · 2008-05-29 11:52:33

I agree with WKTB. My son is important just like my other two. He longs to be a part
i wish that they would see that it hurts me when they don't , or when they don't take him becasue it's too much work. I want them to know him he is a person and has feeling too.That asking questions is ok , and caring goes along way. After all he is there grandchid , nephew, etc... Forgeting his birthday numerous times but rebembering the other ones that one really was hurtful. Laughing at him in a in apporiate way . Education is the key totally.

zanesmom · 2008-05-31 01:27:10

I wish that my family would realize just how hard everyday life is for Zane. And that the things that he does are important too. I have 3 children, not just 2. When my girls play ball or have functions they have a much larger following than he does. Every accomplishment is huge to us!

nolison · 2008-05-31 19:00:16

I also agree with all of you. And I wished my family knew how to talk to my daughter so that she would understand it, like if she isnt doing something she isn't supposed to be doing. They need to talk to her in a way that wont make her mad. Just in a loving way. Not so abrupt.

Jake9068 · 2008-05-31 20:00:08

After reading all of your wishes, I'm happy I don't have any extended family. It is just me, my kids, and my mom.

lisadianne · 2008-06-15 09:54:43

Hi! I know this is a little late in coming but I just go to these posts. My side of the family doesn't really "get it" but they try...my mom can be overwhelming with her advice and her tears/fears and my dad can't handle our son's meltdowns but it is obvious that they care even if they are confused. One of the positive points about getting our son's diagnosis was that people on my husband's side of the family made more of an effort to be understanding rather than always avoiding us. But, the weird thing is that when they do talk with us about Benj. it's to almost argue with us about his diagnosis as if they're trying to convince us that he really is "ok". I do know that his diagnosis and our openness about it has disturbed and actually disappointed many of them. Ah, well...

FoggyRock General Forum

#1 2008-05-21 08:01:00

What I Wish My Extended Family Understood About Autism

#2 2008-05-22 02:56:08

Re: What I Wish My Extended Family Understood About Autism

#3 2008-05-22 04:03:07

Re: What I Wish My Extended Family Understood About Autism

#4 2008-05-22 05:25:58

Re: What I Wish My Extended Family Understood About Autism

#5 2008-05-29 11:52:33

Re: What I Wish My Extended Family Understood About Autism

#6 2008-05-31 01:27:10

Re: What I Wish My Extended Family Understood About Autism

#7 2008-05-31 19:00:16

Re: What I Wish My Extended Family Understood About Autism

#8 2008-05-31 20:00:08

Re: What I Wish My Extended Family Understood About Autism

#9 2008-06-15 09:54:43

Re: What I Wish My Extended Family Understood About Autism

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