FoggyRock General Forum

You are not logged in.

#1 2008-05-25 06:54:47

lisadianne
Member
Posts: 39

"warning" label

I'm sure that many who read this post may be unhappy with what I write.  One of the things that we struggle with whenever we're around others who don't know us well ( and of course, strangers) is how "normal" Benjamin appears. We've seen it over and over.  People seem to expect much more from him because there doesn't seem to be anything "wrong".  When he begins exhibiting many of his unusual, really quite weird behaviors, others are appalled and seem outraged, as if they've been tricked.  I've talked with friends whose children have Downs Syndrome and they agree that others are much more tolerant immediately in response to their child's appearance.  We have been talking about putting a sticker or tag on Benjamin that will let others know as soon as they begin interacting that he has autism.  This is the other thing that we have noticed over and over.  Once we have explained to others that Benjamin is behaving "strangely" because he has autism, they become much more tolerant even if they don't really understand what we mean.  I know it sounds horrible to think that we want our child to walk about with a big label (literally) but it does seem that the initial understanding that he'll gain will be worth it.  Any opinions out there about this issue?????

Offline

 

#2 2008-05-25 15:45:39

shannonj
Member
Posts: 308

Re: "warning" label

I can totally relate.  Especially after around the age of 5 or so when my son's tantrums didn't seem so typical anymore.  I have found it tremendously helpful to have my son wear some kind of awareness t-shirt, so that anyone looking on would be able to give him the benefit of the doubt.  These days, my 13 year old son still likes to hold my hand in public, which brings alot of strange looks, so it seems as if the looks will continue for quite a while.

Offline

 

#3 2008-05-25 20:30:44

frogfoot1969
Member
Posts: 132

Re: "warning" label

Yes, a lot of people have their child wear an Autism T-shirt. Mine is still young so most just think he is acting typical until they talk to him and he totally ignores them and I have to answer for him. It is an uncomfortable feeling.

Offline

 

#4 2008-05-25 20:43:12

Sherry
Member
Posts: 47

Re: "warning" label

I'd like to ask where you guys bought your Autism Awareness t-shirts? That seems like a good idea - maybe not for everyday, but especially when going into new situations.

When my granddaughter was little and we'd get out and go places with her, she would often walk up to strangers and start a conversation (in her own babble language usually), but if strangers tried to talk to her first she would shut down and come stand beside or behind me. Just looked like she was being shy. That's not such a clear-cut issue now that she has two years of school under her belt (Pre-K and Kindergarten).

In the last year or so we have noticed more of reaction to crowds and loud noises. She is used to going along to her sister's TaeKwanDo class, but when we attended the Belt Ceremony there were way more people and it was way noisier and she sat on my lap for most of the evening instead of heading off to the play room as usual.

The night they invited family members to give TaeKwanDo a try out, she watched her mom join her sister in the dojo, and after awhile she joined them. But as soon as the group began doing 'keops' which is a loud shout, she ran back to me and got onto my lap. She went back and forth a couple more times during the class, depending on the noise level in the dojo.

We had wondered whether enrolling her in the Tiny Tigers class would be a good idea, whether she would get much out of the class, apparently we'd have to talk to the instructors about letting her come back to us when the class gets loud. Wonder if they'd let her wear an Autism Awareness t-shirt for class instead of their ATA shirt?

Last edited by Sherry (2008-05-25 20:45:07)

Offline

 

#5 2008-05-26 07:16:20

Autism Mom
Member
Posts: 28

Re: "warning" label

I think the T-Shirt is a great idea!  Gage is 10 and he still hugs me and kisses me in public and will often hold my hand, too.
On one hand, I don't want him to feel uncomfortable about wearing a "label", but on the other, I don't want people staring at him and possibly making rude comments.

Offline

 

#6 2008-05-28 07:09:12

EmilyL
Member
Posts: 22

Re: "warning" label

You can get autism awareness t-shirts from the Autism Society of America, and one of our Foggyrock members, Seymoursheep, makes some of her own, which she sells online.  Go to her page and ask her about it.  Or, you could just go to your local t-shirt shop and have them print one for you with your own message...  I find that once people know there's something different about a child, they cut the kid (and parents) some slack.

Offline

 

#7 2008-05-28 07:40:56

Sherry
Member
Posts: 47

Re: "warning" label

Thanks, I just took a peek at Seymoursheep's t-shirts. Nevermind my granddaughter, I want one for me. *lol* The one that says I have ADHD, "I march to the beat of a different drummer... every 5 minutes." I have ADHD and I belong to a local drum circle. Wish I could afford one, that's perfect.

I also like the one that says, "I have Autism. That's my problem. What's yours?"

Hm, maybe I could buy a plain t-shirt and some fabric paint and create our own shirts? Sounds like something fun for the kids and me to do this summer while school is out.

Offline

 

#8 2008-05-28 20:32:16

Autism Mom
Member
Posts: 28

Re: "warning" label

I agree, Sherry!  That would be a great project to do with the kids!  Thanks for the idea!!!

Offline

 

#9 2008-06-15 09:41:15

lisadianne
Member
Posts: 39

Re: "warning" label

Hi, thanks for the support everyone!  We just bought a medical alert bracelet for our son but we're also going to go ahead and look for something more obvious for him to wear when we go places (t-shirt or stickers).  Take care, lisadianne2

Offline

 

#10 2008-06-21 05:22:20

Sherry
Member
Posts: 47

Re: "warning" label

Interesting development, even a t-shirt isn't going to help with everyone. We have a neighbor who nearly always has grandkids staying with her. One day at the swimming pool her granddaughter asked if Nove'Mber can swim yet, because her sister is "six years old too and she can swim." So I explained that her sister doesn't have Autism but that Nove'Mber does have Autism.

A couple of weeks later the grandmother attended a family therapy session for her grandson - the same therapist we see as it's a small town - and mentioned to the therapist that her grandson had told her that he had seen our family at his office. Thinking this was a good chance to see what impression other people have of our little one, he asked the grandmother what she thought. Well, she said she'd heard me tell her granddaughter that Nove'Mber has Autism, but she doesn't think that's right.

So the therapist asked her to describe what she had seen when our girls have been playing in her yard with her grandkids, and she pretty much went right down the list from the Manual of Diagnostics. I guess she was thinking that Autism is the same thing as a Savant or a Rain Man.

So even putting a t-shirt or a med-alert bracelet isn't going to help when people have the wrong idea about what Autism really is.

Last edited by Sherry (2008-06-21 05:24:27)

Offline

 

#11 2008-06-21 08:01:49

slhh130
Member
Posts: 123

Re: "warning" label

Most of the people we meet have no idea. They just nod their heads and walk away.

Offline

 

#12 2008-06-21 15:59:52

striving
Member
Posts: 36

Re: "warning" label

I've made up cards to hand out, so I don't always have to explain or talk about my child in front of him. They say his condition and asks them understand. They're business card size. Pray, your heart will tell you what ot say on the cards.

Offline

 

#13 2008-06-22 00:33:13

Sherry
Member
Posts: 47

Re: "warning" label

I thought about making up some business size cards, but don't really know what to put on them - maybe a link to a forum like this one? Of course, I wouldn't have had the cards with me at the swimming pool, and don't know whether to hand them out to kids who are asking questions.

Offline

 

#14 2008-06-22 06:09:12

wktb
Member
Posts: 31

Re: "warning" label

I think I am going to get one of those Autism t-shirts for my son.  When we were out yesterday and he was having a major meltdown- I kept wishing I had one on him to explain the situation!  I don't want people thinking he is just a bad kid.

Offline

 

Board footer

Powered by PunBB

Our Supporters