FoggyRock General Forum

autamom · 2008-06-04 02:24:33

Hi, I'm new here...I will go to the intro forum shortly and post an intro.

My question is about EEGs--do any of you have experience with them? My youngest (4) is scheduled for one this Friday. It is to rule out seizures. I'm having a hard time remembering where I read that it was a good idea to have this done, and some medical personnel aren't sure it's really necessary at this point. My youngest is nonverbal, so it's very difficult to tell whether or not he could be having absence seizures. We have no proof of any type of epileptic activity at this time. He was recently started on medication for extreme activity.

Thanks!

slhh130 · 2008-06-04 05:12:05

My son had one this morning. They do not rule them out completely. My son is having absence (petit mal) seizures. My daughter had one in March. She had something at the end of February. Still not sure what it was.

momo3auts · 2008-06-04 23:03:54

My son recently started Grand Mal Seizures just within the past few months. He had an EEG and it said he was fine. They aren't always reliable. My middle son had EEG's when he was younger. They came out abnormal but they didn't feel it was seizures, they said it was a mental disorder. It wasn't until many years later that he was diagnosed as BiPolar. They don't hurt, so it won't hurt to have it done as long as you know they aren't 100%

shannonj · 2008-06-05 08:25:14

I do think it is probably a good test to have--just to get a baseline if nothing else. Plus, there was recently a report on ABC (I think) that there is a subset of kids on the spectrum with seizure activity that is totally treatable with medication.....Good luck with the procedure. My son was so brave when we had it done years ago....

slhh130 · 2008-06-05 18:34:14

Oh I forgot to share that my son and daughter were both troopers for their EEGs. They are five and two. I did give my son melatonin because it was in the morning and there was no way that he was going to sleep at that time without anything.

LisaAutismAdvocate · 2008-06-05 20:57:37

My son had the eeg done when he was first dxed, because they thought he was having the staring spell seizures...but the eeg didnt find anything. It wasnt till he turned 9 years old that he had his first Grand Mal Seizure. I have to say, he had both the eeg and the mri done and neither test showed anything for him....but I would reccommend trying the test and like someone mentioned...getting a baseline. Because it is very common for our children to have siezure disorders as well.

autamom · 2008-06-10 02:46:07

Thanks, everyone, for the responses! I feel better about having it done! We had to postpone the appointment until July, because he woke up a couple of days before this appointment with pinkeye. Bleah.
Momo3auts, did the EEG show anything that later related to bipolar? They are looking into my youngest possibly being bipolar as well.

Thanks!

Beausmom · 2008-06-11 22:23:08

My son is grown now. But I remember one of the first things done for him was an EEG. Later on he was sent for an all day EEG under camera supervision. Unfortunately we were told he was ADHD. We didn't get a correct diagnosis on him until he was 14. Hang in there, pray pray pray!!!! Things will get better. It just takes a while. See my intro. We don't know what God has planned for our children.

Shirley Butram

lisadianne · 2008-06-15 11:13:11

Hi...My son has had a "sleep deprived" EEG twice. The concern for him was both staring spells and repetitive body movements and verbalizations. He was not diagnosed with any seizure disorders but he has been diagnosed with Tourette's (and of course, autism). I just wanted to share with you the difficulties we had to maybe give you a "heads up". The sleep deprivation part was tricky for us. He was only allowed to have a few hours of sleep the night before the test and because we live in a rural area, we had over an hour to drive the morning of the test. Benjamin is not a cooperative guy and trying to keep him awake on the car ride and then waiting at the dr's office was DIFFICULT. Then we went the room for the test, he was very RELUCTANT to get in the chair and have a stranger put sticky stuff and wires all over his head (he has extreme sensory issues). It was a tough struggle and even with the relaxant that they gave him (which was another struggle), it took a long time for him to actually fall asleep for the test. The test itself lasted a few minutes and then we had to wake him back up and get him out of the testing room! I hope this helps you know what may be in store for you that day (of course, hopefully it will all go smoothly) because even though it was tough, it was really important to both "rule-out" issues and to establish a baseline for future comparisons. Good luck to you!--lisadianne2

alesovoy · 2008-07-05 20:35:40

Jaymes has had a few, they ended up being worthless and he had to deal with a lot for nothing... But it was good to have done it anyway, just in case.

FoggyRock General Forum

#1 2008-06-04 02:24:33

EEG?

#2 2008-06-04 05:12:05

Re: EEG?

#3 2008-06-04 23:03:54

Re: EEG?

#4 2008-06-05 08:25:14

Re: EEG?

#5 2008-06-05 18:34:14

Re: EEG?

#6 2008-06-05 20:57:37

Re: EEG?

#7 2008-06-10 02:46:07

Re: EEG?

#8 2008-06-11 22:23:08

Re: EEG?

#9 2008-06-15 11:13:11

Re: EEG?

#10 2008-07-05 20:35:40

Re: EEG?

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