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Library Categories > Advocacy > Autism Collaboration presents The A+ Research Initiative

 
Library Item Name:

Autism Collaboration presents The A+ Research Initiative 		   
Summary Statement:

Statement of Problem

* Parents are feeling disenfranchised with regard to the glacial pace of autism research
* Their efforts raise millions of dollars annually for research, but parents have little or no say as to where and how the money is spent
* Those decisions are typically made by a scientific advisory board whose members often lack knowledge of the real issues encountered by the autism community
* Parents and their children should be considered stakeholders with regard to autism research and therefore deserve a voice in determining the direction of autism research

What Parents Bring to the Table

* Contribute unique personal and community experiences adding passion and urgency to the discussion
* Ensures that the human dimensions of disease are incorporated into scientific considerations, investment strategy and research focus
* Provide a critical and informed panel of consumers of autism science who have the capacity to integrate multiple disciplines and identify a research path which will help the most children the quickest

Opportunities and Models for Partnership

* The Autism Collaboration creates the perfect opportunity and structure for embracing and executing a parent driven research agenda
* The Department of Defense, Congressionally Directed Medical Research Program provides the necessary framework for such a collaborative initiative

Autism Collaboration A+

* Autism Collaboration brings together the most experienced autism advocacy organizations in the country
* The autism community needs a new research paradigm that embraces the knowledge and expertise of parents who live with this disease on a daily basis
* The A+ Research Initiative would serve to inform, solicit, review and fund autism research initiatives following the guiding principal of helping the most kids the most quickly!
Submission Date:

11/26/2007by: shannonj
Current rating:


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