D Louvel, M Delvaux, A Felez, J Fioramonti, L Bueno, Y Lazorthes, J Frexinos
Laboratory of Digestive Motility, Gastroenterology Unit, CHU Rangueil, Toulouse, France.
AIM: The effects of oxytocin on colonic perception of intraluminal distension were evaluated in 26 patients with irritable bowel syndrome (IBS), using a flaccid bag placed in the descending colon and connected to a computerised barostat. METHOD: Symptomatic responses (first sensation and pain) were evaluated during isobaric distensions (4 mm Hg increments, five minute duration, five minute interval with return to zero pressure between each step),.........
Read more at: http://gut.bmj.com/cgi/content/abstract/39/5/741
Today was our first day of swim lessons. It was a class of four students. When we walked in I noticed none of the other parents had on their suits and the children where nicely lined up sitting on the edge of the pool. I told the instructor I had to get in with him because he has Autism. Well he didn't understand the whole concept of Swim class, he just wanted to swim. It was an indoor pool so sound ECHOS very loudly. The instructor worked with each child one at a time so he had to wait his turn, ugh. He did well when it was his turn but in between was a nightmare for me. He was pulling my hair, kicking me, and screaming. I felt badly for the people having to listen to this and they probably thought I should have removed him but I thought to myself " I paid for these lessons and we are staying". He did calm down and participate some, he even blew his first water bubbles, yeah! But my spirit is a little crushed and I am worn out. Wish me luck for Thursdays class.
The other day we went to the pool and Seoc stepped right on a bee, ouch. He screamed and flailed while the teenage lifeguard used her stinger remover but after was just fine and ready to swim. Later I gave him some benedryl and put some lanacane on the spot. You can hardly tell where he got stung. Just wanted to pass along when removing a stinger use a credit card edge and scrape it out to avoid the venom sack from bursting. I was amazed!!
Well, I went back to the doctor today to have my foot x-rayed again since that funky fall I had back in May. Goofy me walked around on it for a week before I went to the doctor. Gee, whiz! I honestly thought it was just sprained. You know how we are as women..we don't nor do we allow ourselves to go slower than a kittten's pace. Pain? Define THAT in a mom's dictionary. $75 worth of x-rays later I find the fistibula fracture still alive and NOT kicking. The cast was off 2 weeks ago and now another has taken its' place. Grrrr and pout! Someone PLEASE send me an eHow article on using crutches. I seem to have lost my cordination and wish I could lose that fear of heights. Oh, well.....scoot and shoot. The doctor was chasing behind me screaming: "Keep off that foot!" as I was going; “Weeeeee” out the door in the wheelchair. Now here I sit (which I am sadly forced to do) glaring at my pink toes wiggling from beneath that 20lb fiberglass splint.
My daughter has a special place in her heart for Ice Cream. I understand this and sometimes even indulge it. Especially with a rough day. We had one of those at speech today. So I thought there was no harm in running by McDonalds for a small cone. Oh man! There was white cream all over my car! And she loved every little moment of it! Ok, so I have a bit of cleaning to do, but to give her a moment of being a normal two year old was priceless! I wish there were more of these to go around!
I am writing in response to your recent broadcast, regarding autism and parenting skills.
As a parent of an autistic child, I would like to extend to you a written invitation to my home. I would like for you to be a guest in my house for a week. Keep in mind, it’s only 7 days….My husband and I, would love to see what it is exactly we are doing wrong with our son, and how we can magically cure him of autism. This is the perfect opportunity for you to put your comments in action and show your listeners, that you actually know something about the subject and aren’t like all the other so called talk show hosts that run their mouths with out actually knowing what they are talking about. Oh excuse my manners; I just insulted that talk show host that actually researches their material, before they make false accusations and comments. Please excuse, my ignorance and lack of respect. I sincerely, hope that you will take us up on this offer, to get up close and personal with an autistic child….its the opportunity of a lifetime, and I know I would give anything in the world to be able to have an actual conversation with my son. You see he is 11 years old and nonverbal. But don’t let that discourage you, because if you can’t speak, you have to be able to do something that a lot of normal people can’t do…and that is Problem Solve. My son is very intelligent and just waiting for the day…when he can show the world what he knows and what he can do. You see, Not being able to Speak isn’t the same thing as not having something to Say. Who knows, maybe one day, he will be able to grow up and become a Talk Show Host, just like you. As for the subject of Autism, If my son could Speak…This is what he would love to tell you and all of your listeners about autism.
Autism ~ from the Autistic Mind of a Child
Nobody can see my disability. I look just like every other kid-attractive,
walking, making sounds. They can't see how my neurons are scrambled in my
brain. They can't see the misconnections between the left and right brain.
Nobody can see I have autism.
Nobody can see that my body is sick. No one can see that my stomach is in
knots from my digestive system not working. No one can that my body and mind
are starving because my cells don't make the right enzymes to digest food.
No one see that I suffer from low blood sugar because I can't properly
metabolize nourishment.
No one can see that my body is attacking its own nerve cells from
auto-immune dysfunction. No one can see that mercury lead and arsenic cannot
be excreted from my body, so it keeps building up in my brain. No one
understands that my body cannot tolerate normal enjoyments for children, like
bright, vivid colors and loud noises. I desperately want to be a kid and
enjoy these things, but my body just won't let me.
But everyone can see how inappropriate my behavior can be when I am out in
public. Everyone can see how immature I can be compared to other kids my
age. Everyone sees the 2-year old tantrums when things have been too
overwhelming for me. Everyone sees my frustration from trying to cope.
Everyone sees my screaming and fighting. Everyone just assumes I'm being
bad, not that my body hurts, my eyes are in pain from colors, my ears ring
with loud noises not heard by others.
Everyone sees my tantrums when I don't get my way. No one sees that I can't
explain my fear when I think I'm not being understood. Everyone may see my
screams when my mom takes something away from me. No one can see that having
something of comfort can keep my fears under control for me, and taking it
away makes my nerves explodes in anxiety.
No one understands how hard I have to work to keep my behaviors from
reacting to the chemical imbalances in my body that makes me feel horrible.
No one can see that, no matter how hard I try, sometimes I cannot control
it. No one can see the shame I feel after I've had a meltdown from my body's
problems.
What they don't see I am a person. I have feelings and want to be loved and
accepted like everyone else. What they don't see is that, when they look at
me like I need a good spanking; I understand that I'm not capable of
controlling my body. What they don't see is that I scream because I don't
know how to say "HELP ME"
What they don't see is that I hear every ugly word they say, but for the
life of me, I can't make my mouth say what I'm feeling. But they don't see
that as a disability. They say I am unmanageable. They say I am a problem.
But I am not a problem. I HAVE AUTISM. My mom has taken me to more doctors
and specialist than you can ever imagine. She's read more books and done
more research on my disease than a parent would ever want. She has tried
special diet, supplements, drugs and various metabolic therapies. She has
PRAYED for GUIDANCE and asked for discernment on how to help my body. And
behaviors, OH YES, has she tried everything to help my behavior.
Stop telling her all I need is a spanking. If spanking would stop all this,
my mom would gladly exchange my disability for a spanking. She knows better
than all of you what I need to help me, and what we both need is your
understanding, not ignorance.
I just want to be accepted and understood. No blamed and ashamed, I want to
be appreciated for my gifts. I do have some if you look more closely. I want
to be cared for as a person. I want you to care, even when I act like I
don't.
I want to be respected, just like you do. I want you to respect my mom and
dad for all the hard work they have done to help me try to lead a normal a
life as possible. I want you to respect my family and all the struggles we
have to endure because of our love for each other.
I want to be LOVED like any other child. And need you to role model
respectful behavior for me so I can be respectful too. I want you to love me
just like JESUS would.
Love,
(Author unknown)
Mr. Savage, Again, anytime you want to see what it’s really like to raise a child with autism…you are always welcome to visit our home. Maybe you could also do a story about all the parents that have been sent overseas, to serve their country and protect the freedom of the press...while you exploit and insult their Families and Parenting Skills. Or the families that are surviving on one income....because they dont qualify for Welfare or Financial Assistance...I think you might be suprised at the number of Autistic Families that fall in these Categories!
So I have been signing with my daughter since a couple months old. Before her illness that I believe led to the diagnosis, she was signing a lot back. We started using the Signing Time series with her at about a year and she is addicted! We ended up buying the first three after extensively using the library copies. I finally got our library cards and reserved three more and upon getting in the car with them she stole them from me and refused to let go for an hour. I had to pry one from her to put it on! I am in love with this series. It is so easy to use and kids love them! I am even refreshing my signs. And my mom, who I have been trying to teach sign to since I was 3, is picking it up! I can not praise this stuff enough. My daughter is finally trying to sign back to us again and I love it! Next step is saying "I love you Mom" verbally or sign, doesn't matter!
I think I mentioned having health issues of my own in the past, so I will just say that this week I have been dealing with a morton's neuroms in my left foot (think thickened nerve with burning and swelling) and have barely been able to walk. So my mom said she would come help with the lesson this week. Yay!
Haley was great. She got dressed easily, only fussed a second as I put in her earplugs and waited for us to be ready too. We were able to get right in and I started in thinking maybe mom would just hand her off to me, but the teacher told her to get right in, besides Haley was already half way down the steps and up to her chest. So we all did the lesson together! I was shocked. Haley got in the pool pulling us behind her and immediately wanted to go all over the places barely enabling us to hold on.
This lesson included some time with the swim bubbles and letting go of her to get her used to doing it alone. She never even noticed. Grated she kept drinking the water, but she had a ball pushing us away and then grabbing our fingers! She even interacted with the other kids (sorta) playing ball. (more like pushing it back to the teacher but it wasn't straight so the kids got it and she watched them) She loved it, my mom had a blast taking turns on the activities and then Haley got out easily this time for her. (I had to drag myself out with a throbbing foot as in the water you have to use toes to balance and walk. ) She even was patient enough to let us all dress with the minor exception for her new game of throwing everything in any open toilet, like her sippy cup. (and a pool toy from class) Oh well.. trade off one thing for something minor anyday! Yay for understanding swim teachers and helping grammie's!
Ran into my son's first occupational therapist yesterday. We've had two since her. She asked how he was doing and I felt so sad thinking; "All I can say is his language's improved and it's been what almost three years since we saw her" "Gosh, are we moving slow or what?" I've got to go on that scripture verse all about pressing on towards the prize and not looking back, but forward. I can either get sad that we have'nt gone far or I can say I now know more what works for him and we'll go forward from here. God has truely blessed me. Though my son has a severe processing problem one of my friend's is a special ed. teacher whose going to help me design his school plan today. You see I homeschool my son due to several things; the school system just letting him sit and stare, not wanting to meet his needs, and the fact that he picks up any behaviors or words he's around with his extreme echolalia. I have to lot at my blessings, the devil wants me to be discouraged and think discouraging thoughts. I won't let him win, with me or my son.
Am I the only one who feel this extreme weariness that hangs over me like a cloud? Do you guys feel kinda numb and tired or is it just me? Am I just feeling sorry for myself now? I feel I not only need a vacation but a vacation from my mind? Do you guys know what I mean? A vacation from all the thoughts of therapies, getting my son better, what the future holds? I sleep but I wake up thinking again, researching again. This war again Autism is exhausting. How do you guys make it through, other than extreme prayer; which I'm doing. I thought I knew what weariness was before with all normal functioning kids but I did'nt. I pray to walk and not be weary and yet I'm so tired mentally. Maybe I need a vitamin of some kind. I don't know what I need. The care of our chldren is so constant, so mind consuming and time consuming. I don't want to be admired by people who say they admire me, I just want to be. Are all ya's days hard or somedays easier? Do you just accept the craziness of it all or do you constantly fight to change it?
Subject: Tell McCain: Viagra is not more important than birth control.
Dear Friend,
Last week a reporter asked Sen. John McCain whether he thinks it's fair for insurance companies to cover Viagra for men, but not birth control for women.
To tell you his reply simply doesn't do it justice. Watch this video to learn his response. Then take action.
I just signed a petition calling on Senator McCain to stand up for affordable birth control -- I hope you will too.
Well, the day has finally arrived and even though I have expected it, it is a strange feeling. Today, Corvus' psychologist handed me to copies of the "Gilliam Asperger's Disorder Scal" and asked my husband and I to each fill one out as regards Corvus. I feel like this is a good and necessary step - but it is still weird to be in this place. I'll let you all know the results. Deb
Somedays I am very grateful to be a single parrent, to have no one to argue parenting style or changing of rules or to coordinate schedules. But then again... I have no one to to argue parenting style or changing of rules or to coordinate schedules........ Haley has been challanging lately. Not because she has changed anything other than her sensitivity to sounds, but because I have developed an inflammed nerve in my foot making it near impossible to walk, not to mention carry and rock an upset or overtired toddler. These are the days i can admit I am a little jealous of you married folk. Not only would I have someone there to support Haley with me, but to support me as well. And of course the all important tag team care. It is not my favorite thing, being on 100% of the time. But I think I would hate it if I weren't. I guess when it comes down to it there is something for being an only parent, but there is something more to being a family team.
Yesterday Rick and I decided to take Nicolas to StoryLand. That's a storybook themed fun park in Glen,NH.
Planning any outing with Nicolas can be somewhat stressful, as we never know how he is going to react to large crowds and lots of activity.
As we were leaving, I tossed a little orange cap in the van. I knew it was going to be a warm, sunny day at StoryLand and I was hoping that I could get Nicolas to wear it.( He doesn't like things on his head.)
On our way to StoryLand, Nicolas kept handing the hat to Rick to put on. Rick would put it on and Nicolas would clap and laugh and indicate with a little grin that he liked to see that hat on daddy's head.
I must admit, Rick looked pretty goofy with it on, but being a good dad, he did what he knew would make Nicolas happy and eventually left the hat on.
He kept that silly orange cap on all day.
Throughout the day I noticed a few second glances and even observed some snooty looking woman laughing at him, pointing and elbowing her husband to take a look and he laughed at him too. My first reaction was anger, I wanted to smack her upside the head, but then I figured how sad for her.
This woman had no idea how much my husband loves his son, and how he was willing do most anything to put a smile on his face. He loved seeing the smile on Nicolas' face everytime he would look at him and glance up at that silly orange hat on his head.
Yesterday reminded me of how fortunate and blessed I am to have such a wonderful husband that is so sure of himself that he doesn't care what anyone thinks. He loves his family and that is all that matters to him. Rick knew that Nicolas loved to see him wearing that silly orange hat, and nothing else mattered. Nicolas handled the heat, crowds and all the activity very well. Yesterdays outing at StoryLand was a great day.
By the end of the day,that silly orange hat kinda grew on him, and for a split second, I thought my husband looked pretty hot in that orange hat!
Hi all,
I have an All Points Bulletin…
As many of you know, I have begun my certification process in RDI, (Relationship Development Intervention). RDI is a parent- based intervention that addresses the core deficits of autism. (This is particularly exciting to me because of the developmental focus, and especially with the new thoughts put out by Harvard.) During the approximately 18-month training, I work with two supervisory families, assisted by my own supervisor throughout the entire process. I was all set with my families, but unfortunately, the main supervision family is not available at present. So, in short – I’m searching for a new family. I live in central New Hampshire, and am seeking a family with a child who is diagnosed on any part of the autism spectrum, knows just a bit (or more) about RDI, or is willing to learn, and is interested in working with me throughout the next 18 months.
I have all sorts of information about RDI, and would be very willing to talk to you if you would be interested. I know that cost is always a stumbling block, of course. During my Consultant in Training process I am charging families to just cover the rental fee for my church, and the cost of having my family on the RDI operating system, (RDIos). If you are interested in finding out more about RDI, you can check out the RDI website at www.connectionscenter.com, or feel free to contact me.
Went to Charlotte to meet with a educational specialist with Fast Forward for processing disorders. She said my son is just about ready for their basics program, just need to do some practice with him first. I'm excited that he may actually start learning more. He loves to click and drag things.
JACKSON, SC (WIS) - At first, Gail Martin says she wasn't sure who was yelling at her to leave the Buckhead Café in Jackson. It turned out to be Jackson Police Chief Dennis Rushton, asking Gail and her family to leave.
"I didn't know what he was doing," Gail's daughter Lauren said.
The family was just about to order when 4-year-old Alyssa began crying; she suffers from autism.
Gail says Chief Rushton yelled across the restaurant again.
"He said, ‘You need to pick her up and you need to get out of here now,'" Gail said.
Lauren is upset with the chief.
"That was very mean to say -- just very mean," Lauren said.
The embarrassment was too much for Gail and her daughters, who soon left the restaurant.
"I wasn't embarrassed of Alyssa's behavior, I was embarrassed of the way it was handled," Gail said.
Chief Rushton would not make a statement, but he did say he felt Mrs. Martin's daughter was being extremely loud and bothering other customers.
Even though he knew the child was autistic, he said he did ask the Martins to leave.
Gail says she feels like Chief Rushton should have been more understanding about what was going on with her autistic daughter.
"We can't just lock them up, they have every right to be out in public like everyone else," Gail said.
Now Gail hopes her story will bring more awareness about autism.
"If it can happen in a small town in Jackson, it can happen anywhere," Gail said.
Chief Rushton says he is open to going through training through the South Carolina Autism Society to help him better understand the condition.
Rushton also says his police commissioner has invited the Martin family to meet with them at City Hall.
The Martins say they are open to meeting with the commissioner.
As you can imagine, people have had plenty to say about this story.
Viewer Roger said, "The family should have known better than to take an emotionally disturbed child into a restaurant. When customers pay to enjoy a nice meal the last thing they want to endure is an uncontrollable child."
Viewer Amanda wrote, "I know what it's like to have one or both of your autistic children start crying for reasons that other people could not possibly understand. I'm not saying children with autism should get a free pass on their behavior. I'm just saying that people should be more understanding because most of these kids can't communicate their needs verbally."
I cant say I am shocked at the mentality of these people.
Stayed up last night reading some of Seth's entries under Forum-individuals with autism. He's has amazing faith. I made my kids listen to the entries. I think it taught my son a different view on non-verbal autistics and I do think encouraing our kids to have a strong spiritual belief in God is the key to anxiety relief, depression and peace inside; as it is also for us. I am ashamed to say I have not attained to the level of faith that Seth has. I suppose it harder for us to have such total dependence because we are so full of the pride of self. What a wonderful guy!!!! I salute him as well as God who resides inside his spirit.