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Autism walk Posted By: Agpuz18
Posted On: 08/18/2008
       

4th Maine Autism Resource Fair Posted By: MAEProject
Posted On: 08/17/2008
I wanted to get the word out about a fair that I put on. The Maine Autism Resource Fair will be held October 11, 2008 at the Augusta Civic Center. The fair is from 8:00 a.m. to 5:00 p.m. There is no cost to attend. Keynote Speaker is Dr. Vincent Carbone from the Carbone Clinic in New York. There are workshops and exhibitors. CEU's will be given. Please go to my website, www.maeproject.org for more information.

Please, help pass this information along to family, friends, teachers, therapists, daycare providers, respite providers, anyone you think might be interested.
Tags:  autism,  education,  fair,  parents,  teachers,  conference,  carbone,  maine,  augusta, 
     

My hard work is paying off Posted By: Caliboo818
Posted On: 08/16/2008
Everyone that knows me can say that when I am not talking about normal mom issues, basketball season or the MIL lol my next topic is Autism. I have been trying to get a group for parents set up in my city but the good ole school district has been fighting me on it tooth and nail, They dont want me to talk to parents or show them that they have choices when it comes to their kids rights it scares them to know that we as parents can do better by our kids and live by the old fashion ways they want to try to set in front of us. Well last month I got to meet Eric's new worker from the Pomona Regional Center and she got to meet Eric and fell in love with him instantly. So I began to tell her about the issues he had from the first week of school up until the last day, how they had to restruct their whole special needs program with the things I told them about Eric and how each child is different. Just because they have Autism dosent mean they are all the same, Oh I had a lot of ideas that she loves. So the following week I got a phone call stating she had told the people on the board of directors about me and what I could bring to the table, and they said they would love to have me sit on the board of directors at the regional center. I was in shocked, I have to sit on the committe for about a month to get a feel of how it works and then I move up from there. Oh I am so excited about this being able to go to conferences and bring back ideas to share with my family and friends talk to people who can offer me suggestions and vice versa. This has truly been a blessing for me to think I can finally be of more help to mom's like us
God is good aint he lol
     

Autistic Kids' Outburts Posted By: momof2boyz
Posted On: 08/14/2008
Here's the link from msnbc.com on parents who have been affected by the public outbursts of their autistic children.

http://www.msnbc.msn.com/id/26182016/
Tags:  Autism,  Behaviorial problems,  outbursts
     

School schedules Posted By: Motherof4
Posted On: 08/12/2008
We're picking up schedules today, one at the High School and one at the Junior High, for my two oldest. I can't believe Daniel will be in 11th grade this year! Sometimes, it's so hard to see the changes, seems like we're making no progress, and then something will come. A bolt out of the blue. In this case, it's a schedule. Time passes, life goes on, ready or not.

The big questions that were there before are still there: will he get a job? Will he be (mostly) self-supporting? I know that the brain, any brain, keeps changing and maturing through adulthood. I'm told that the autistic brain does, too. Still, I look at my 16-year-old kid and wonder how independant he's going to get. Frankly, I look at my 13-year-old and wonder the same thing, sometimes, but it's at a different level. For Catherine it's "Will she ever remember to pick up her clothes and put them in the laundry? Will she ever remember to put the milk away?" For Daniel it's all that and, "Will he ever remember, on a regular basis, to look both ways before crossing the street?"

It's a big job. In some ways, it just keeps getting bigger.
Tags:  ch-ch-ch-ch-changes
     

RANT....Sigh Posted By: wildchild2007
Posted On: 08/11/2008
I came seeking....support, help, companionship in a sea I feel like I am drowning in. This THING, Autism. I have dealt with for 10 years. It doesnt get any easier as they get older. A new set of issues, behaviors, penalties, rewards, consequences.

But what enrages me is his peers behavior. Okay I get that they are 10. I get that they think its funny to teach him inappropriate words and then sit back with evil grins and watch him use them. The parents who turn thier heads and snicker, too.

The parents who dont teach thier children tolerance. And just say "well they dont want to play with him right now." Even in my own family.

There are days when I just have had enough. Enough with dealing with the smart mouth. Enough with dealing with a baby and a 10 year old who just doesnt GET IT why he shouldnt put his face in his baby sisters face or hold her down for a hug because she will bite him AGAIN.

And the cut in services!! Dont even get me started. They should deal with the declining in clear cut IQ points over the summer. And the isolation from the lack of peer groups causes in self esteem. The sheer bordome and slipping away into the video game brain mush world.

And then comes the sweet sweet smile. The "Mom I am sorry I made you mad. I wont do it again". The tears because he feels no one loves him, even though we tell him a gazillion times a day. And you just want to scream at the world (and to yourself).

What about living in the day of TOLERANCE??

PS. Its very late. I cant sleep. Tomorrow is another day, Scarlett. Tomorrow.
Tags:  Rant
     

newspaper article on autism Posted By: zacharysmom
Posted On: 08/11/2008
My local newspaper featured an article on autism on Sunday, my name was mentioned (they spelled it wrong, but oh well...lol)
read it at
www.grandrapidsmn.com
     

Sounds Of Summer Posted By: 
Posted On: 08/09/2008
Where did it Go??? Seems like Yesterday...school was out....just to start all over again in a couple of weeks.
Boy do I feel Old....lol

Summer is usually our favorite time of year...a time to relax and have fun and catch our breath. Richie has always loved to play outside...and when he can play outside and get physical activity...it really helps him to stay calm and focus.
Well This summer can be summed up with C words....

Caring, Concern, Chaos,Challenges, Coping and My favorites...COURAGE, COMPASSION, CONFIDENCE and CHANGE.

COURAGE to weather the storms of Life.
CONFIDENCE...that no matter what comes our way....God is in CONTROL and his COMPASSION and LOVE is EVERLASTING...as Promised in 1 Peter 5:7 Cast all your anxiety on him because he cares for you.

Although I dont know what the future holds...I do know who is holding the future...my biggest problem is remembering that its not me. When I remember that...things are good...when I forget...well we all know how that turns out.

So the Famous Serenity Prayer...has taken on a whole new meaning for me this summer.

God Grant me the Serenity
To Accept the things I cannot Change.
The Courage to Change the things I Can...and the Wisdom to Know the Difference.

And the final C word that comes to my mind....Content....boy is this one a struggle. Learning to be Content in all Circumstances....well I guess I have all Winter to work on that one! LOL
Thanks for letting me think and reflect out in Text!




       

Britney Spears younger son may be autistic. Posted By: kgirl2004
Posted On: 08/08/2008
     

Riding Therapy (horse) Posted By: Coopers_Troopers
Posted On: 08/08/2008
Does anyone know anything about "Riding Therapy" ? I know there is some connection with it and autism....but I would like more info.
Has/Does anyone use it?
What was the results?

Any information will help...
     

THANKS Posted By: kathy630
Posted On: 08/07/2008
Pop is still touch and go, but he is off of the respirator. I just wanted to thank you for all of the good thoughts. I will let you know how everything goes. Again, Thank you!
     

School Issues Posted By: GrandmaGail
Posted On: 08/07/2008
My son is 11 with low functioning Autism. He had a really bad year last year. I've been telling him school starts in 18 days and he has a meltdown saying he is not going to school. He has been in the same classroom for three years. He says he hates his teacher and it's boring. He is in a self contained class room for the profound disabled.
Does anyone have any suggestions to make it easier for him.
     

Potty Posted By: kgirl2004
Posted On: 08/07/2008
Brendan went pee pee on the potty all by himself just now! I took him in there and he refused at first, then he kept on getting off the potty and running around and all of a sudden he went and sat on the potty and peed all by himself!!! I'm so proud of him!
Tags:  potty training,  first
     

Owen Posted By: sierrak2137
Posted On: 08/06/2008
My son was admitted to the hospital for he second time in less than a year. We have run the gammet on medications with out any success.
He is on his 3rd medication in the hospital with out much luck of stabilizing him. I am to the point where i dont want to keep giving him these high dose potentialy harmful meds.
We have an MRI scheduled for tomorrow. I dont want us to find anything but yet hope that we do.
Im wondering if maybe there is a stone i have left unturned? we have been on this road for 7yrs now and only just a year ago were able to get the diagnosis of autism. within the last 2 months i was able to get a diagnosis of bipolar. which i had suspected since he was about 3. those are 2 of his diagnosis- he has a whole list.
if anyone out there has any advice im all ears.
thank you to all those who took the time to read this---- sierra
     

Gasping Posted By: kgirl2004
Posted On: 08/05/2008
I noticed my son started gasping yesterday like he is not breathing right at certain times. I was wondering if anybody else was going through this too. Sometimes he also has times at night where he wakes up and is scared like he had a nightmare. I don't know if this is related or anything but I was wondering what everybody else thought
Tags:  sleep,  waking,  nightmares,  gasping
     

Piano lesson Posted By: frogfoot1969
Posted On: 08/04/2008
Today was Seoc's first piano lesson. I thought it went great. Firsts are usually a nightmare so I was expecting the worst, lol. No meltdowns at all. I did some hand over hand and he memorized the notes of c,d,e,f,g. It was a 30 min. lesson. The teacher seems to think he is going to do very well.
Tags:  Piano lesson
     

Detoxing Posted By: striving
Posted On: 08/04/2008
We did a magnetic foot bath the other day to detox of heavy metals and we've seen some good language since, expensive 25.00's a week. How do you know how often is too often to detox them? Does it exhaust them or put them through a lot?
     

When it's no longer autism.. Posted By: mercurymom
Posted On: 08/02/2008
Anyone here reached the point of it's no longer autism, but delays, losses from vaccines,life time of growing up disabled ect. that is what's you childs issues?

I have spent the last month working with autistic kids on many levels and ages..and what I took away from it most of all...John's autism is more of less recovered..what's left...lack of physical skills, lack of speech...that's it. He has eye contact, comprehension, desires, sense of humor, but he is still a disabled person. I do not think he will ever be able to speak again..3 strokes...and he is unable to even make a sound. He knows that, he knows he cannot scream for help, or call out to us, so he stays close to people, he fears being lost. He can sign a bit, but again, the physical skills are holding him back. He longs to do school work and learn..it's as if he cannot get enough from books and we spend hours catching up there. ANYONE?? now what? I feel so lost. I understood stimming and pinching and screaming and hair pulling...now I have a nice calm teen in jeans and a polo shirt..thats as lost as ever..because lack of communication keeps him from peers...so do his physical issues..odd place we have entered here... and I wonder...will he keep recovering..or is this as good as it gets? I can live with that. I lived with a poop covered house didn't I?

Yes, I do still see the autism but its odd, I see it when he is near people who stress him or are unkind or say things about him. He will withdraw at that point and pull back into himself. It is as if it is a form of protection..and we have to coax him back to us when it happens..
Tags:  new phase of autism
     

Detoxing and vitamins Posted By: striving
Posted On: 08/01/2008
So let me get this straight. If you can't get the vitamins in them right, you shouldn't go detoxing, right? Doesn't the vitamins build their systems up for when you detox? Doesn't detoxing put the through a lot? I'm having a hard time getting the powdered vitamins and lemon flavored castor oil. He tastes them and is losing foods. Talked to an O.T. about putting him on a pill swallowing program, did'nt get told much except to try to get him to swallow huge gulps of water and swallow tic tacs first because they have a pleasant taste. Anyone have any more info. on getting them to slowly swallow pills? Anyone done food baths for detoxification? Anyone had great success with it?
     

Video of Presidential candidates views on disability issues. Posted By: frogfoot1969
Posted On: 07/31/2008
http://www.disaboom.com/Community/Organizations/AAPD

Click on archived webcasts link. It is very long you can fast forward to about half way thru Senator Tom Harkin speaks on behalf of Senator Barack Obama's views since he is currently in Afganistan and Senator John McCain gives his views. I found it very interesting.
Tags:  Disability issues,  presidential candidates views
       



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