Govenor Palin once again stuck her sigh expensive shoes in her mouth at a speech the other day. Hey the goverment is spending money on silly reasearch projects that are costing tax payers millions of dollar. Silly research such as Fruit Flies sigh. Well guess what I can see Alaska from my house we as parents of kids with special needs need the pesky little jokers.
Memo To Palin: Fruit Fly Research Has Led To Advances In Understanding Autism
This morning, Gov. Sarah Palin (R-AK) gave her first policy speech urging the federal government to fully fund the Individuals with Disabilities Education Act (IDEA), “a law ensuring services to children with disabilities throughout the nation.” In the speech, Palin cited the need to do more for children with disabilities such as autism:
For many parents of children with disabilities, the most valuable thing of all is information. Early identification of a cognitive or other disorder, especially autism, can make a life-changing difference.
Palin claimed that the amount that Congress spends on earmarks “is more than the shortfall to fully fund IDEA.” She then ridiculed some of the projects — such as “fruit fly research” — saying they have little or no value:
Where does a lot of that earmark money end up anyway? […] You’ve heard about some of these pet projects they really don’t make a whole lot of sense and sometimes these dollars go to projects that have little or nothing to do with the public good. Things like fruit fly research in Paris, France. I kid you not.
Watch it:
Palin did not specify what fruit fly research earmark she was referring to (presumably a grant for olive fruit fly research), but she is apparently unaware that scientific research with fruit flies has led to valuable discoveries that have boosted autism research, as a study at the University of North Carolina demonstrated last year:
[S]cientists at the University of North Carolina at Chapel Hill School of Medicine have shown that a protein called neurexin is required for..nerve cell connections to form and function correctly.
The discovery, made in Drosophila fruit flies may lead to advances in understanding autism spectrum disorders, as recently, human neurexins have been identified as a genetic risk factor for autism.
The study of fruit flies has also been used for other autism research and “revolutionize[d]” the study of birth defects.
Today I found out that my neighbor that lives next door has a young daughter who is 4 and was diagnosed with Autism. Now we got on this subject after a huge neighbor dispute (not involving her or myself lol) I was just saying how I dont have time for gossip when I have my kids to deal with especiall Eric who has Autism. She stated so does her daughter so we began to talk, now she explained to me that when they gave her the diagnosed they only gave her a two page letter about autism and sent her on her way, now those who know me know I was hotter then fish grease so I went inside and grabbed my laptop and we went over all the symptons, etc. So then I asked her about her daughters IEP she stated she had one but was not sure about. I stated rule no one
1. Dont ever sigh anything you dont understand.
So I said bring me all of what you have let me go over it and she did. So I grabbed my sons IEP and called my best friend Debbie and she grabbed her son's IEP and we began to compare notes.
My neighbors daughter was DIAGNOSED with Autism by a specialist along with behavioral issues.
But on her IEP they put down the team does not beleive she has AUTISM which means she is being limited to services and according to Educational Code 56320 the following considerations have been made regarding the procedures and materials used during this evaluation to ensure compliane with state and federal regulations.
The reason for the referral
the child was referred for and assessment due to parents concerns and she has been diagnosed with AUTISM. Current results will be used to determine eligibiity for SPECIAL EDUCATION SERVICES.
Now we turn to her IEP REPORT SIGH
Special Education Eligibility Statement
Student eligible for Special Education under the condition of
Speech/language Impariment
and the little cirlce next to Autism was not colored it. Even though she has two reports by two different specialist that state this child has Autism.
So my friend Debbie and I made a list of all the things we sugges she does
1. Request and Emergency IEP Meeting
(Q. What is an expedited due process hearing?
A. An expedited due process hearing is a hearing before an administrative law judge on disciplinary matters.
Q. What is an emergency relief hearing?
A. An emergency relief hearing is a due process hearing that is held quickly and without the opportunity for mediation.
Q. What issues are considered an "emergency"?
A. Some issues may be considered an "emergency" if it is determined that the petitioner will suffer irreparable harm unless an immediate decision is granted.
Q. How do I request an emergency relief hearing?
A. In addition to the information required for requesting a due process hearing or an expedited due process hearing, requests for emergency relief hearing must be supported by an affidavit or notarized statement specifying the basis for the request.
2. They have to follow through with the diagnose of AUTISM as reported on the orginal report not just supply her with speech and language. This way she will be entitled to all of the Special Educational Services.
If you have concerns about your child, please read this information from First Signs.
Ask your school system in writing for an evaluation of your child. They are required to provide it, at no cost to you. The purpose of an evaluation is to find out why your child is not meeting their developmental milestones. A team of professionals will work with you to evaluate your child. If they do not find a problem, you can ask the school system to pay for an Independent Educational Evaluation (IEE). There are strict rules about this, so you may not get it. You can also have your child tested again privately, and pay for it yourself. But check with your school district first to make sure they will accept the private test results. By law, the school system must consider the results of the second evaluation when deciding if your child can get special services.
3. Ask for increased Behavior Services 30 mins a month is not enough for this little girl
4. OT evalutation and possible OT services depending on the outcome of the evulation
5. Visual support and visual schedule
6. PECS
7. Candian Yeast ( the child has many upset stomachs and headaches)
The Candida Yeast-Autism Connection
Written by Stephen M. Edelson, Ph.D.
Center for the Study of Autism, Salem, Oregon
There is a great deal of evidence that a form of yeast, Candida (rhymes with "Canada") albicans, may cause autism and may exacerbate many behavior and health problems in autistic individuals, especially those with late-onset autism.
Scenario. Candida albicans belongs to the yeast family and is a single-cell fungus. This form of yeast is located in various parts of the body including the digestive tract. Generally speaking, benign microbes limit the amount of yeast in the intestinal tract, and thus, keep the yeast under control. However, exposure to antibiotics, especially repeated exposure, can destroy these microbes. This can result in an overgrowth of Candida albicans. When the yeast multiplies, it releases toxins in the body; and these toxins are known to impair the central nervous system and the immune system.
Some of the behavior problems which have been linked to an overgrowth of Candida albicans include: confusion, hyperactivity, short attention span, lethargy, irritability, and aggression. Health problems can include: headaches, stomachaches, constipation, gas pains, fatigue, and depression. These problems are often worse during damp and/or muggy days and in moldy places. Additionally, exposure to perfumes and insecticides can worsen the condition.
Dr. William Shaw has been conducting important research on yeast and its effects on autistic individuals. He recently discovered unusual microbial metabolites in the urine of autistic children who responded remarkably well to anti-fungal treatments. Dr. Shaw and his colleagues observed a decrease in urinary organic acids as well as decreases in hyperactivity and self-stimulatory, stereotyped behavior; and increases in eye contact, vocalization, and concentration.
There are many safe methods to treat yeast overgrowth, such as taking nutritional supplements which replenish the intestinal tract with 'good' microbes (e.g., acidophilus) and/or taking anti-fungal medications (e.g., Nystatin, Ketoconosal, Diflucan). It is also recommended that the person be placed on a special diet, low in sugar and other foods on which yeasts thrive. Interestingly, if the Candida albicans is causing health and behavior problems, a person will often become quite ill for a few days after receiving a treatment to kill the excess yeast. The yeast is destroyed and the debris is circulated through the body until it is excreted. Thus, a person who displays negative behaviors soon after receiving treatment for Candida albicans (the Herxheimer reaction) is likely to have a good prognosis.
Please note: treatment for Candida albicans infrequently results in a cure for autism. However, if the person is suffering from this problem, his/her health and behavior should improve following the therapy.
To learn more about yeast and Candida albicans, visit the Autism Research Institute's web site. The Institute's publication list contains an extensive information packet and books on this subject. In addition, William G. Crook, M.D. has written several excellent books on yeast, including the classic The Yeast Connection (1986), The Yeast Connection and the Woman (1995), and more recently, The Yeast Connection Handbook (1996). Dr. William Shaw also provides organic acid testing as well as additional testing. He can be contacted at: The Great Plains Laboratory for Health, Nutrition, and Metabolism, 9335 West 75th Street, Overland Park, KS 66204, U.S.A; telephone: (913) 341-8949; and fax: (913) 341-6207.
8 CF/CF Diet( will help with regression)
What is the gluten-free, casein-free (GF/CF) diet?
This is a dietary intervention to lessen the digestive and bowel issues sometimes found in children with autism spectrum disorder (ASD). Recent research indicates that there are children with a genetic predisposition to the disorder which is then triggered by some as yet undetermined event – a vaccine, environmental toxin, or virus – which can cause a "leaky gut” (sometimes evidenced by resulting chronic loose stools as the child cannot properly digest these proteins.) If this happens, wheat and dairy are then metabolized as opiates. It is believed that by eliminating gluten (wheat) and milk protein (casein), the gut will begin to heal and the child's overall condition will improve somewhat. Sometimes additional factors are in play and must be addressed as well before positive change is seen (such as yeast overgrowth, as an example). Because the diet is considered an "alternative" therapy, school administrators, medical personnel, and others often view it with skepticism. But, for some children, eliminating gluten and casein helps lessen self-stimulating behaviors, increases focus, and resolves gastro-intestinal distress. That’s why many parents swear by it.
The diet is not a cure for autism nor is it a substitute for traditional one-on-one intervention. Rather, by making the child more comfortable, the child becomes more receptive to learning (not to mention the potential positive impact in the child’s overall health, demeanor, and possible reduction in negative behaviors).
What do the children eat?
Children can eat a wide variety of meat, chicken, eggs, fruits, vegetables – anything that does not contain wheat gluten or milk protein (both proteins are very similar in molecular structure, and it is estimated that as high as 80% of children with autism who follow the GF/CF diet can benefit). However, some children may have additional food intolerances/sensitivities as well (including soy, corn, rice, potatoes, peanuts, beans, etc.), and parents may request other foods be eliminated. Furthermore, gluten is also found in oats, barley, rye, and most processed foods. Gluten is in even in Play-Doh, adhesive on stamps and stickers, and many hygiene products (and can be absorbed through the skin – does not need to be ingested to negatively affect a gluten-sensitive child). Milk protein or casein is found in every dairy product imaginable, and is even used as a binder in canned tuna fish.
Many children who are on the diet will react to the slightest bit of wheat gluten or milk protein. A single bite of a goldfish cracker may cause a week of bad stools, aggressive and disruptive behavior, rashes, etc. A child who "gets into" regular Play-Doh may become non-compliant, withdrawn, and regress. One bite of a graham cracker could result in severe tantrumming, head-banging, and unusually strong, aggressive behaviors, sometimes lasting several days.
How is the GF/CF diet implemented at school?
The Individualized Education Plan (IEP) team will need to document that a dietary intervention is being used in conjunction with traditional interventions. Generally, the parents are responsible for providing GF/CF supplies for their child to use in the classroom as well as any snacks, lunches, or "special treats." Teachers and aides must make sure that the child uses only the GF/CF supplies provided and that food is not shared during snack or lunch times. Students in upper grades and beyond should be encouraged to learn about the diet and the consequences of cheating (i.e., painful diarrhea, loss of emotional control. etc.).
What about non-food items like Play-Doh?
Play-Doh contains wheat. There is some debate as to whether gluten molecules can be absorbed through the skin; however, there is no doubt that younger children will put their hands in their mouth or even eat Play-Doh. Crayola Model Magic is used as a Play-Doh substitute. Other non-food items that may include wheat are paints, markers, glue, glue sticks, paste, tape, makeup or face paints, sunscreens, some bandaids, glue on envelopes, stickers, hand stamps, lotions, etc. (As an example, a shopping trip to Trader Joes ended up with their roll of stickers that were handed out to children in the store stuck all over a child’s legs and arms, and the child’s resulting aggressive behavior was all the proof parents needed to ensure stickers were not used on skin in the future.) The safest way to handle this is to provide parents with a list of items needed, and only use products sent from home. If the child becomes sunburned because the parent failed to send in GF/CF sunscreen, that is the parent's fault, not yours. If you do crafts involving pasta, make sure that the parent supplies you with rice or corn pasta in the necessary shapes and quantities – give them plenty of notice.
What about materials used in speech therapy, occupational therapy, and physical therapy?
Toothettes and lemon flavored cotton swabs used by speech therapists are GF/CF. Parents can provide lollipops, Jet brand marshmallows, candy reinforcers, etc. as part of their "school supplies." Colgate shaving cream is acceptable for OT use, as are beans and rice used in sensory integration bins. Beeswax, Model Magic or Silly Putty can be used for molding clays to improve hand strength. However, some substances—Nickelodeon Floam or Goop—are notGF/CF. Lotions and powders used in physical therapy or for sensory integration should be provided by the parent after consultation with the therapist. (Again, realize that not all products used for the general class will be GF/CF. When in doubt, ask the parent to confirm GF/CF status, or to provide a suitable substitute to be reserved solely for their child’s use.)
What happens when we have special treats for birthdays or holidays?
Teachers must give the parent at least a few days notice to provide similar "special treats." Parents who are using the GF/CF diet cannot run to the store and buy cupcakes for the next day—these cupcakes have to be made from scratch using a combination of special flours that can be hard to find. Given enough notice, though, most parents can come up with substitutes. Try to make birthdays and holidays less food-oriented; substitute crafts, carnival or piñata type toys, music or movement activities instead of cookies and cupcakes. If you have a freezer on-site, you might request the parent to provide a few cupcakes and cookies to freeze for unplanned celebrations, so that the child need not feel left out.
We have many hands-on activities that involve food--how should we handle this?
Give the parent at least several days notice – the more the better – and start planning some alternate activities that do not involve food. Example: if the class is going to make a loaf of bread from scratch, ask the GF/CF parent to supply the flours for the dough. Parents doing the GF/CF diet may be happy to do this once in a while, but if their child must be excluded because of weekly pizza parties or daily snack preparation as a class, you may hear complaints.
What should I do if the child eats or gets into something they shouldn't?
Call the parents as soon as possible for instructions – be prepared to tell them what the food was, the quantity, and the time that the incident occurred. Do not wait – even though it is not a medical emergency, in a parent's mind, it may be. Some parents will come and pick up the child to give them digestive enzymes and over-the-counter medications. They may wish to rush the child home to soak in an Epsom salt bath to possibly help minimize the potential damage. Other parents will do nothing and then yell at you and blame you for a week's worth of sleepless nights. The important thing is to inform the parents as soon as possible and try not to let it happen again.
Anything else?
It is critical to keep the lines of communication open. The GF/CF diet is extremely stressful on a family – and it is not going to be easy to maintain in the classroom, either. If parents and teachers work together, though, the improvements in the child's health, language, social engagement, and behavior can make this a win-win situation across the board.
No one says the diet cures autism – but it just may make traditional interventions go more smoothly for everyone concerned.
Where can I learn more on my own?
An excellent website, www.gfcfdiet.com contains information, resources, recipes, support for parents, teachers, and physicians.
COMMON GF/CF SCHOOL PRODUCTS/MATERIALS:
Chalk – Crayola
Crayons – Crayola
Foam / Shaving cream – Colgate Shaving Cream is GF/CF (non-mentholated, white cream preferred)
Glue (liquid) – Elmer’s washable glue
Glue Stick - ??? (No suitable replacement found – recommend Elmer’s)
Markers – Crayola (including Color Wonder as well)
Paints (w/ brush) Palmer paint products; Crayola Oil Pastels, powder paint, and water soluble oil pastels; Prism Brand paints
Paints (finger paints) – Crayola
Paints (powder) - Crayola
Play Clay – Crayola Model Magic (NO Crayola Clay – that contains gluten)
Silly Putty - Crayola
Stickers – Most contain gluten – If a sticker is placed on clothes or paper, parent may allow it as acceptable. However, it is to be taken away from the child if the child insists on putting any stickers on skin….the adhesive is transferring gluten directly through the skin.
Sunscreen – Banana Boat
Lip balm – Burt’s Bees
Including GFCF Diet into the IEP Goals & Objectives
Here are some suggested goals & objectives to include into your IEP (Individual Education Plan) by a super mom – Moira.
GOAL 1:
Child will deny offer of foods that are not brought from home
Incremental objective #1 related to the goal:
When adult asks child if he can eat food not brought from home, he will answer "No" 70% of the time.
Incremental objective #2 related to the goal:
When adult asks child if he can eat food not brought from home, he will answer "No" 80% of the time.
GOAL 2:
Will self monitor the consumption of safe foods and non-edible items
Incremental objective #1 related to the goal:
Will be able to decline offers of unsafe foods that look similar to his by asking "Am I allergic to this?" 2 out of 5 opportunities.
Incremental objective #2 related to the goal:
Will refrain from eating non-edible items (such as rocks, plastic and wood) at all times independently or by asking an adult 4 out of 5 opportunities.
GOAL 3:
Will self-monitor safe food consumption (gluten and casein free diet)
Incremental objective #1 related to the goal:
Will be able to only consume foods provided for him from home.
Incremental objective #2 related to the goal:
Will be able to decline offers of unsafe foods.
SPECIAL NOTE: These are sample goals. Please be sure to work with your team of professionals in making a goal list that is unique to your child’s needs.
9 Try Melantiomin(as always talk to your dr first)
Melatonin
Melatonin is an important hormone secreted by the pineal gland in the brain. Since its identification in 1958, studies have shown that melatonin actually regulates many of the other hormones in the body. These hormones control our circadian rhythm, the 24-hour patterns that our bodies respond to every day. The release of melatonin is stimulated by darkness and suppressed by light, so it helps control when we sleep and when we wake. Melatonin also controls the timing and release of female reproductive hormones, affecting menstrual cycles, menarche, and menopause. Overall levels of melatonin in the body also respond to the process of aging. Children have the highest levels of nocturnal melatonin; as adults age, their nocturnal melatonin levels get lower and lower, which means they go to sleep and wake up earlier, and may suffer from disrupted sleep patterns.
Uses
Jet lag. Melatonin is used to restore sleeping patterns and fatigue caused by cross time-zone travel.
Insomnia. Melatonin can restore more regular sleep patterns in those who suffer from insomnia as a result of low melatonin levels (that is, older people and some children with sleep disorders that may be caused by autism, epilepsy, Down syndrome, or cerebral palsy).
Cancer. Melatonin can help prevent and treat some cancers, particularly those that are related to hormones (for example, breast cancer, prostate cancer) and non–small cell lung cancer. It also greatly increases the effectiveness and lowers the side effects of some cancer drugs (for example, interferon and interleukin 2).
Depression. Melatonin may be beneficial in treating depression related to low melatonin levels (for example, seasonal affective disorder)
Preliminary studies show melatonin may be useful in treating multiple sclerosis, coronary heart disease, epilepsy, and post-menopausal osteoporosis; and in preventing sudden infant death syndrome.
Dietary Sources
N/A
Other Forms
Melatonin is available as tablets, capsules, and sublingual tablets.
How to Take It
There is no official dosage range for melatonin supplements. Different people will be more sensitive or less sensitive to melatonin. For those especially sensitive to it, lower dosages may work as effectively as the standard amount, while taking the standard amount or higher dosage could cause anxiety and irritability.
To treat insomnia, one dose of 3 mg an hour before bedtime is usually effective, although dosages as low as 0.1 to 0.3 mg may improve sleep for some people. If 3 mg a night is not effective after three days, try 6 mg one hour before bedtime. An individually effective dose should produce restful sleep with no daytime irritability or fatigue. For treatment of jet lag, take 5 mg of melatonin one hour before bedtime upon arrival at your destination, and take it for the first five days. Dosages for anticancer treatment may be much higher (10 to 50 mg per day). Do not take melatonin supplements long term without consulting your health care provider.
Precautions
There are no known serious side effects to supervised melatonin use. Lack of sleep and insufficient exposure to darkness may suppress your body's natural production of melatonin. Some people may experience vivid dreams or nightmares when they take melatonin. Overuse or incorrect use of melatonin could disrupt circadian rhythms. Melatonin can cause drowsiness if taken during the day. If you experience morning drowsiness after taking melatonin at night, take less of it.
It may not be good for you to take melatonin if you have an autoimmune disorder, such as lupus or rheumatoid arthritis, or an immune system cancer, such as lymphoma or leukemia. If you are taking melatonin for depression, make sure you do so under your health care provider's care and advice. In some cases, melatonin can actually worsen the symptoms of depression instead of making them better.
If you take corticosteroids for anti-inflammatory or immune suppressive purposes (for example, you have had a transplant), use melatonin cautiously, and always under the supervision of your health care provider. Melatonin could interfere with fertility. Do not take it if you are pregnant or nursing.
Possible Interactions
Vitamin B12 changes the level of production of melatonin. If you have low levels of melatonin, you will often have low vitamin B12 levels as well. Taking vitamin B12 (1.5 mg of methylcobalamin per day) can help sleeping disorders because it increases melatonin production. Protein, vitamin B6, niacinamide, and acetyl carnitine all help your body produce melatonin. Nonsteroidal anti-inflammatory drugs (NSAIDs), such as aspirin and ibuprofen, reduce melatonin production levels in the body, so it is best not to take these right before bedtime. Beta blockers also keep melatonin levels from rising naturally at night. Some antidepressants increase the levels of brain melatonin. Benzodiazepines, like Xanax and Valium, interfere with melatonin production. Alcohol and caffeine can also interfere with melatonin production, as can diuretics and calcium channel blockers.
This document contains information relating to general principles of medical care that should not in any event be construed as specific instructions for individual patients. The reader is advised to check product information (including package inserts) for changes and new information regarding dosage, precautions, and contraindications before administering any drug. No claim or endorsements are made for any drug or compound currently in investigative use. No responsibility is assumed by the publisher for any injury and/or damage to any person or property as a matter of product liability, negligence, or otherwise, or from any use or operation of any methods, products, instructions, or ideas contained in any material herein.
This web site is intended for your own informational purposes only. No person or entity associated with this web site purports to be engaging in the practice of medicine through this medium. The information you receive is not intended as a substitute for the advice of a physician or other health care professional. If you have an illness or medical problem, contact your health care provider. You should consult your health care provider with any questions about the nature or effect of products you purchase here. Be sure to read all directions, warnings and other information accompanying any product before using it.
Dietary supplements are not intended to treat, cure, or prevent any disease or illness, and the information regarding these products has not been evaluated by the U.S. Food and Drug Administration.
All in all parents please make sure you know your rights so your son or daughter will get all they are entitled to. For what you dont know the some schools are not likely to share with you. Why MONEY.
Well she went in and did as we suggested, now the school wants to take away the diagnose of Autism and put the label in of Aspergers and want her to pay for the retesting sign.
And they want to suspend all of her daughters services, time to put into place plan b
Everyone knows my daughter, Haley, is on the spectrum, but what most people do not know is that our family struggles daily to just keep afloat. Two years ago I started having pain after working at my first real job since college for only 2 months. That pain grew and spread and more problems arose, and I fought with all I have to make sure she stayed the focus. Friday I recieved a letter from Social Security (after filing 15 months ago for myself) saying that they had determined I too was disabled. That struck me in so many ways. Great, no more state help cause we will both be on SSI..... but more than that it was a confirmation that I am infact disabled. That the jobs out there fashioned to suit my limitations are next to nihl. And the work I picked up to do at home, well... long story short may be a huge mistake health wise. I have been worse this past week than ever in my life. That letter was almost permission to give up. And I hate the idea, but am struggling soo hard and getting no where that it almost seems necessary. Maybe the 8 or so appointments between us per week is enough work. Maybe using every ounce I have in energy to attempt keeping up with Haley is more than enough work. As a single mother, I believed I have to work to make our family work. As a person in daily pain and additional laments, I just want to stay home and hug my daughter, between rampages, as cleaning up after her is all I can seem to handle anymore. And yet, not working I feel so unfulfilled, bored, and depressed. Its a huge catch 22 in my life and I have no idea where to look.
Harrison is a big 10 year old. Most people think he is 12. For many years he has had a tough time shopping in stores, due to SPD issues. It's easier for him if he can be in the shopping cart, which of course, has gotten more problematic as he's gotten older and bigger. We've had some rude remarks from strangers about it, and one cute one from an old man who asked "What aisle did you get that on?" We've been really encouraging him to walk in stores, but let him get into the cart if he really needs to, even if it means we shop with two carts - one for him and one for the shopping. The last few times we've gone to a store, he hasn't even asked to get into the cart, or only asked because he was tired of walking and took "no, you are too big for that now" as an acceptable answer. We usually only do one store at a time, but he was doing so great today that we went to Target for a big shopping and then on to the grocery store, with a short stop for lunch. Eating in restaurants is a hurdle we are still jumping, but he loves the cilantro rice at Qdoba and they have a little outdoor patio. Since he was really hungry and it was a sunny day, we were able to eat out there and then went on to do some grocery shopping. I was doing a little happy dance inside as we cruised around the grocery store and had to go bring him back over to where we were at one point because he was wondering off to look at something. This is a horse of a different color for us, but I'll take that issue any day over the kid who couldn't handle stores. I was beginning to wonder what on earth we were going to do when he was 13 or 14 and still wanted to ride in the cart. I don't think we need to worry about that now. It is such a joy to see him more able to function in the world and it makes all the long drives to therapy and the hiding of supplements in his juice worthwhile.
This Tuesday Chris will undergo surgery on his knee. The MRI showed that it is a bone chip and it had floated back into place but the surgeon needs to go in and reattach it so he won't have problems down the road. The surgery is a two hour procedure and we have prepared Chris as best as we can. God is in control and He is good.
Brendan has said a ton of new words lately, some include: picture, animal, I LOVE YOU, hug, hand, feet, page, easy, busy, and I think he said his name (Brendan)! Also, the day before yesterday, he actually sat through a haircut! At the beginning, he freaked out some, but then he was just fine. He is becoming a different kid. I've gotten all sorts of compliments lately, like he seems so calm and more focused!
Want to start Special Olympics program for adults with Asperger syndrome. Let me know what you would like. Just some suggestions -- table tennis, flag football (new sport), basketball, floor hockey. Get exercise, meet new friends, have fun! marylaresch@gmail.com
Any adults who live in New Jersey? Please contact us with what your interests are, county of residence, if you want to meet with others. We can set up place to meet for lunch? marylaresch@gmail.com
FOR IMMEDIATE RELEASE
Contact: Rebecca Estepp Claudine Liss
858-829-6454 310-970-2485
MilMom2000@... dineliss@...
McCain Supports Parental Vaccination Choice and Prioritizes Vaccine
Safety
Obama Silent Despite Repeated Overtures From Parents
Poway, CA, October 23, 2008 - Rebecca Estepp is a military spouse and
the mother of two boys, including a vaccine-injured child with
autism. Her husband, a Marine, has served three war-time deployments
in the past five years. "You would think the war would be the most
important issue to me, but it‟s not. The war will be over at some
point but the effects of vaccine damage will last for generations."
Estepp cites the neurotoxins injected into American babies and
expresses deep concern about the injury and damage they may be
causing, saying "It weighs heavily on my heart."
For these reasons, Estepp made and sent a two-minute video
entitled "Vaccine Safety Requests For Our Next Commander-in-Chief" to
the two Presidential candidates in May 2008. She made a plea for our
next President to issue two Executive Orders within the first one
hundred days of entering office; the first, removal all mercury from
all vaccines by January 1, 2010, the second, a moratorium on the
addition of new vaccines to the recommended list for children until
the current vaccine schedule can be proven safe. Says
Estepp, "Children deserve to be protected from diseases that can harm
or kill them but we need to be sure that in our efforts to prevent
disease, we haven‟t created lifelong chronic illness and
disabilities."
On October 20th, Estepp received a detailed response from Douglas
Holtz-Eakin, a senior policy advisor to the McCain campaign. Vaccine
safety is officially on the McCain agenda. If elected, McCain said
he "will work with all agencies to take all necessary steps in an
expedient manner to ensure safe vaccines for every American family."
And, significantly, McCain also endorsed parental vaccination choice.
In response to the new vaccine moratorium request, McCain
offered: "The key to health care reform is to restore control to the
patients themselves." The full text is provided in the October 23rd
post on Age of Autism (AoA) www.ageofautism.com
In contrast, Team Obama has declined to officially clarify its
position. Estepp is disappointed: "When asked about vaccine safety,
he wrote a general autism position statement and didn‟t even mention
the word vaccine." A copy of his letter to Rebecca Estepp is provided
in the same AoA post. The words "vaccine safety" are not found in any
Obama campaign materials or speeches.
Taking matters into her own hands, New Jersey parent Claudine Liss
attended an Obama fundraiser with the express intention of getting an
answer. Liss explains, "I shook his hand and would not let go until
he answered my question. He looked right at me and said, „I am not
for selective vaccination. I believe it will bring back deadly
diseases, like polio.‟" Liss and many others are declining to
vaccinate their children using the CDC-recommended schedule. New
Jersey parents are furious about the first-ever mandated flu shot
required for day care and preschool. Seven hundred people rallied in
Trenton last week in support of vaccination choice. The freedom of
choice issue resonates deeply and has made national news, with
coverage on Fox News TV, ABC World News Tonight and an Associated
Press article that was picked up by dozens of papers across the
country.
Estepp extends a final plea to Senator Obama to clarify his
position: "This is a party-neutral issue and many of our parents are
waiting to make up their minds. Senator McCain says parents have the
final say in how they vaccinate their children. Senator Obama appears
to disagree. I sincerely hope that Senator Obama misspoke that night
in New Jersey and he lets us know before November 4th."
My 6 year old, I do believe was born about 40 years to late. He has sits ins....well, some what sit ins. He goes into this one room in the a.m. and plays with his toys. The problem is, he sits with his back to the door. I cannot get in the room to get him ready for school! Maybe I should make some fresh cookies in the a.m. and lure him out with that fresh aroma? I wonder if he knows what he is doing? Part of me thinks he does, then part of me is not sure. I find it amusing.
Some banks weigh use of rescue for buying up other banks....
According to the article,"the primary purpose of the government's $250 BILLION initiative, is to issue new loans". JP Morgan, Chase, BB&T, Zions Bancorporation are considering to make this decision. So maybe they can purchase HBOT's for children with autism?
Sorry, I tried and tried to respond to the Jenny post, but it wouldn't load...here is my take...
I am truly sorry you feel as you do towards Jenny. I am one of the original members of Generation Rescue, one of the Mom's who was out there talking, trying to get the press to hear us, working with parents to recover, yes I said it and I mean it, recover their children, helping raise money to pay for the ads Generation Rescue ran. I am nobody, but I did what I could. Then long comes Jenny, we helped her as we do ANYONE that ask for help. It was not just she had the money to recover her son, all the money in the world was not the answer, knowing WHAT to do was! Many people do bio-med on a shoe string, I know, I am one. (BTW, she took out a loan to pay for this, she isn't as rich as you think, then shot a commercial where she faked looking happy and sexy during the takes all while dying inside wanting to be with her son, not at work, but like all of us, she did what she had to do to pay the bills.)
When things worked for Evan, rather than crawl in a hole and go enjoy her life with her son, she chose to stand up for me, tell my son's story when she went public. Jenny is not just telling her story, but the stories of many, many of us. Yes, we needed that shot in the arm to get the word out, children ARE recovering, it can be done. She has gotten press where we never could. Thanks to Jenny, I can now walk into any new paper office or tv station with my credentials and people fall over me wanting an interview. How sad it took Jenny to open doors I was banging on for years, but she did it and I just riding her coat tail with pride. I couldn't care less HOW doors opened, or who did it, I just care I can get to the press now.
You do need to read Warrior Mother's. You will find that Jenny gave voice to many parents that would never have been heard if not for that book. You will find people just like yourself and like me...the unknowns who fight and make it...and the last story...you will read the courage of a family that lost their child to vaccine damage. We NEED to be heard over vaccines, too many too soon and the results are sick, disabled children. We are being heard too, now, fifteen years after my son was damaged for life.
I too had to quit my job, separated from my husband, cope with mounting bills and poor guidance on this walk. That's why I am with GR today...I know this journey and I can cut red tape for parents and I can help couples get therapy to cope and I can help with the money issues with ideas that helped us. That's why Jenny is with GR as well..because she has been there, not to bring glory to herself..but to HELP OTHERS! How many people have helped their child thanks to her?? I don't know..but I do know one recovering right now and the Mom gives Jenny the credit for reaching her. This Mom call ME after reading Jennys book and finding my name on the website and ask for help. I know the impact Jenny had on that family where the standard medical community did nothing for this child. One child is worth all the unkind remarks to me...and to Jenny..just ask her, she is quite open, funny, loving and very caring about autism and our childern.
Give yourself a break from her face on the news stands and when you are feeling better, please pick up a copy of Warrior Mothers, and learn about other unknowns out there...in the battle....normal people..ones you will relate to.
This is my response to a topic in a forum but I really need to share it with others, to me it is that important.
I am sorry to admit I do not have time to read everyone's posts, however, I saw "Jenny McCarthy" and that infuriated me enough to post a thought. My opinion of Jenny McCarthy is not a good one. I feel as if Jenny has used her place as a very rich public figure to almost "show off" in some way. Isn't it amazing that someone in the spotlight, with all that money, would be able to help her child on the spectrum "recover". What about the nannies that work for her, do they get credit for helping?
What about all of us "regular middle class moms". Those of us who will never be on Oprah or Regis and Kelly telling our story, yet our story is just as important, and possibly just as phenomenal, as Jenny's. Those of us whose lives have been consumed by our fight for our child, while still being a regular loving devoted mom, not only to our "special" child but to our other children also. Some of us, like Jenny AND ME, and MANY OTHERS, have had a failed marriage during all of this also. Some of us, like Jenny, AND ME AND MANY OTHERS, have found an amazing man who, despite all of the extras that come along with our lives, they choose to spend their lives with us, joining our battle. They may not completely understand it yet, but they are there by our side nonetheless.
What about all of you fathers out there? How many of you, who are just regular middle class dads, have been in the exact same position as Jenny, me and all of us moms? What a shame it will be when there is a famous dad to do like Jenny has done. She didn't bring more attention to Autism as much as she did to herself.
Okay Jenny, pat yourself on the back. But instead of patting myself on the back I will wake up every day to take care of ALL of my children, all of whom are equally important, to me, and to society. I will follow our routine so as to help ALL of my children have a good day. I will drop two of my kids off to school, go to my measly 3.5 hour a day job as a cafeteria aide, since my 40+ hour a week job with the Postal Service just didn't work for David, even when it worked for my other children. My husband will work double shifts as an officer so that we can afford for me to no longer work at the Post Office.
All of this I will continue to do with a smile in my heart and on my face. I wouldn't trade my life for any amount of money in the world. I will continue to thank my Lord and Savior for these blessings he has bestowed on me for He thought I was perfect for this job.
I am a retired/disabled attorney and I raised my grandson for his first 7-years. (He is 9-now). His mother (my daughter) lived with me too, however, she is an alcoholic and had very little to do with him. About a year and a half ago, my daughter became extremely violent, hateful and hurtful to me and I had to get away from her. However, I couldn't leave my grandson with her. So, I contacted his father (who lives in anther state) who dropped everything and came immediately to get him. He has been with his dad, step-mother and half-brother ever since. He is being well taken care of. My problem is that his step-mother doesn't answer the telephone and I rarely get to talk to him. (His dad is in the military and not home all the time). I have never had a problem with his step-mother, so I don't understand why she doesn't let me talk to him. I have visited twice since he has been gone - last summer for 2-weeks and this summer for 5-days. I telephone every week-end and always have to leave a message but never get a return call. I haven't talked to him for over 2-months. He is my "heartbeat" and I miss him terribly. All I want to do is talk to him. I send cards, packages (to his brother, too) and never get a call. I have written his step-mother a letter asking her to call me, but no response. Does ANYONE have any suggestions as to what I can do. I am desperate to talk to him. He is the "Light of my Life". Help! Thanks!
I have been MIA for quite some time. First with the death of my brother in-law. He was a diabetic and on dialysis. He was only 54. I am not particularly close to this sister but went down and spent time with her and attended the funeral. During the middle of all this Chris fractured his knee. He was playing flag football in gym and he said his knee popped. He doesn't think he fell but can't remember. He got off the bus limping and limped the rest of the afternoon. I should have known it really hurt (he tends to play it up when it doesn't really hurt that much) when we went shopping at the outlet mall and he opted to stay in the car. When it was time for bed we started crying and said his knee really hurt. We took him to the ER where the doctor could have been Christina Yang from Grey's Anatomy she was so gruff with him. She looked at his knee, twisted it this way and that, announced it was a sprain and sent us home with instructions to elevate it and ice. We kept him home from school the next day. I headed to my sister's since that night was the visitation and the following day was the funeral. Chris talked Jarl into taking him to the pumpkin farm that night. By Sunday night his knee was swollen and he said it really hurt. We decided to take him to our doctor on Monday. Since Jarl is off he got the job. Our doctor was shocked the ER doctor did not order x-rays so he did. We were very upset when they showed a fracture to his knee. (yes we're going to take some sort of action but not sure what). Our doctor referred us to a orthopedic specialist but wanted Chris not to put any wait on it until we saw the specialist. They wanted him to do crutches but he is definitely my son as he has no coordination and we knew he could hurt something else if he was on crutches. So we went with a wheelchair. Now he can run over people and things instead of falling over them. We saw the specialist on Tues the 7th and he ordered a MRI. We had that done on the 9th. Chris did very well with laying still for them. I was a bit nervous about it, but he amazes me sometimes. THe specialist wanted Chris to stay off of it so he is still using the wheelchair. He has gone back to school and hasn't had much problem getting around. The biggest problem we have is getting him to and from school. Jarl always takes him to school so that was already solved. but he rides the bus home in the afternoon. I was leaving work 45 min early to get him but I knew I could not do that all the time and besides lifting the wheelchair in and out of the van was killing my back (and my chiropractor is out sick herself) Now Jarl just takes a late lunch and picks him up and runs him home. We met again with the specialist yesterday (Thurs the 16th) and he said there is a bone chip. Chris needs surgery to go in and reattach the chip. He will have to be off of his leg for an additional six week. The specialist told us he would be ready for sports in three months which I wanted to say- that surgery is going to be good since he doesn't do sports!! Jarl and I both like this surgeon alot as he is very good with Chris. We gave him a heads up before he met with Chris the first time and asked that he not say anything in front of Chris. He was awesome with Chris and spoke to Jarl in his office while I stayed with Chris. Surgery is scheduled for the 28th so we're in for the long haul. I pray that things go well and that Chris's frustration of being in a wheelchair is mild. I'll keep you posted
