Dana - "for every locked mind there is a key to find"
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City: Poconos
State: PA
Country: USA
Member since: Jan 09, 2008
Last logged in: Nov 18, 2008
Dana's Bio
 

Hello,
I am a stay at home mom to 4 wonderful children. i would not trade the time i get to spend with them for anything. The kids are growing up so fast it is unreal. My oldest is in second grade this year, my little me...lol..(she looks just like me) is in kindergarten, and then my baby girl was 4 in November, and my baby boy was 3 in December...He is the reason for joining this site.He is in the process of being evaluated for Autism.So far all they will tell me is that he has developmental delays, Gross motor delays, mixed receptive/expressive language disorder, sensory issues,low muscle tone...and then they say.."Early signs of Aspergers" or "Possible PDD-NOS" , we take him back again this month..i am hoping to hear something other than bring him back in 3 months..:) and his regular ped, said he thinks hi is on the higher end of the spectrum. and his speech therapist said she thinks he might have apraxia...so there you have it.....my introduction....:)...i am hoping to make some friends who understand without a word....:)

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Dana's Wit & Wisdom

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You know you have a child with special needs when..........
on 01.10.08 - public

You know you have a child with special needs when..........

You compare ER's instead of grocery stores. You compare your child's oxygen saturations. You view toys as "therapy.' You don't take a new day for granted. You teach your child HOW to pull things out of the cupboard, off the bookcases, and that feeding the dog from the table is fun. The clothes your infant wore last fall still fit her this fall. Everything is an educational opportunity instead of just having plain old fun. You cheer instead of scold when they blow bubbles in their juice while sitting at the dinner table (that's speech therapy), smear ketchup all over their high chair (that's OT), or throw their toys (that's PT). You also don't mind if your child goes thru the house tooting a tin whistle. You fired at least 3 pediatricians and can teach your family doctor a thing or two. You can name at least 3 genes on chromosome 21. (You really know your toast if you can spell the full names correctly) You have been told you are "in denial" by at least 3 medical or therapy professionals. This makes you laugh! You have that incredible sinking feeling that you've forgotten SOMETHING on those few days that you don't have some sort of appointment somewhere! You get irritated when friends with healthy kids complain about ONE sleepless night when they're child is ill! Your vocabulary consists of all the letters OT, PT, SP, ASD, VSD, IFSP, etc. You keep your appointment at the specialist even though a tropical storm is raging because you just want to get this one over with.....you waited 8 months to get it.....and besides, no one else will be there! Fighting and wrestling with siblings is PT. Speech therapy occurs in the tub with a sibling. When potty training is complete, you take out a full-page public notice in the Washington Post. When the Doctors/Specialist/Hospitals etc. all know you by your name without referring to your chart. You keep a daily growth chart. You calculate monthly statistics for the number of times your child vomits, and did this for more then one year. You phone all your friends when your child sits up for the first time, at age two. With a big smile on your face you tell a stranger that your four year old just started walking last week. Her medical file is two inches and growing. You have a new belief.....that angels live with us on earth.

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