State: CA
Country: USA
Member since: Dec 29, 2007
Last logged in: Sep 08, 2008
I am the dad of my 4 y/o daughter Liv. She was dx in August of 07. Liv is my only child. If you stop by my page leave me a post below. God Speed to you all.
I am in my mid 30's recently divorced (unrelated to autism & pre-regression). Liv & I enjoy the outdoors as much as possible. This summer I hope to take her camping with me. BTW, I am the worst speller of all time please take a laugh at how I spell ;)
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by KevinLivsDad on 07.07.08 - public - 135 visits
This 4th of July I was reminded of how different Liv has become since coming down with autism?
Last year she watched the fireworks with delight & amazement. Calling out the colors & asking to see another spider one... This year we had to retreat to the car as Liv was screaming in terror due to the noise & whatever else Autism stole from her. She was climbing up my back and fraying about as we walked to the car. With the windows up & trapped in traffic there was no enjoying the fireworks this year. It was as if we where torturing her. So different than just a year ago.
Growing up did you ever hear of children suddenly loosing capabilities & morphing into totally different people. I never heard of that & I am sure if it had happened in my community we would of heard of the horror. Because it would have been perceived as just that, a horror. I asked my mom... Had this phenomena ever happen in your generation or do you remember anything that resembled regressive autism? She said no....never
So, WTF is going on?? This is the stuff that Robin Cook novels are made of. I can't think of anything in real life that exhibits this science fiction horror we ARE EXCEPTING as a society. This is the stuff that spooky nursery rhymes are made of who's allegories cloaked in children's play remind us of horror. When is the spooky nursery rhyme about regressive autism going to come out? When is the the troll that steals our children's souls going to be crushed???
Comments(10)
slhh130
Posted on Tue, 8 Jul 2008
You are totally right! It sucks so bad! I know. We had a bad regression this year. My son had seizures at fireworks because he was up so late. He loved what he saw of the fireworks. I have to watch my son's friends that one year ago he was doing better than be mainstreamed while he is going to a contained classroom. I do think that is what is best for him but the goal in the back of my mind for years was to mainstream him by kindergarten. Oh well new goals, right? I just sit here and watch bits of my son disappear. He was such a sweet loving gentle boy. I miss my son! Its not fair! I hate watching everyone with their perfect "typical" kids sometimes and it makes me mad that I do not even have one!
Jake9068
Posted on Tue, 8 Jul 2008
EmilyL said it veery well. It did happen years ago. It is mentioned in my pharmacy school books and in my ancestors medical books from the early 1900's. Disabled people were hiddened then and it wasn't talked about. I believe our genetic makeup in combination with the environment we now live in has made it worse. I believe vaccines contributed in some cases but is not the sole cause; it is so much more complicated than that.
Zurama
Posted on Tue, 8 Jul 2008
Obviously it was the vaccines. A perfectly normal child doesn't just regress, out of mere coincidence. I know how much it pains you to watch her regress, but just remember that you are with her and you will be there to get her back. We will be here to cheer you on.
kathy630
Posted on Tue, 8 Jul 2008
I am so sad that Liv didn't enjoy the fireworks. Just give it time. I know that you have heard that so much that you are probably sick of hearing it. But sometimes time can heal alot. Give Liv a big hug for at least trying. And give yourself a pat on the back for being such a concerned Dad. Take care.
frogfoot1969
Posted on Tue, 8 Jul 2008
I am so sorry she had such a horrible time. That is what I expected this year as it was last year but Seoc did great this time. I hope Liv will also overcome it and be able to enjoy it next year. I am one of the fortunate ones because my son never regressed (he has infantile autism) and I can't imagine the horror of seeing that happen to your child.
shannonj
Posted on Tue, 8 Jul 2008
We watched with horror as Wynn lost his beautiful words and then went through a phase why he forgot how to use his hands. It was so frightening to not know what skill he was going to lose next....But with time, and therapy, he stopped regressing, learned to talk and use his hands again. He'll never be that same careful child again, though, and I grieve for his lost years..... I'm sorry that other parents like yourself understand this same pain.
carmel66
Posted on Tue, 8 Jul 2008
It's so hard to look back a year and see a regression. Get mad and make it a productive anger and figure out what works for Liv. Then one 4th of July in the future you'll realize that she's enjoying all the hoopla again. It can happen - not overnight - but it can. Hang in there...
mercurymom
Posted on Mon, 7 Jul 2008
It's called vaccine damage. It took my son John just like it did Liv...and I relive it over and over in my mind... Last week a Mom called me, her son is now 20 months. At 15 months he was pointing and saying a few words including Momma.. After vaccines he got very sick, MD told her what they tell us all..it's normal..but when he finally got well 8 days later..he was NOT the same child. He can no longer point, or say any words...he is regressing before her eyes... her words.."It was like someone just took him out of his body!" yea, I know..I hear it every week..sigh.. I truly believe its a genetic trigger that gets pulled via a combination of toxins, virals, and vaccine garbage...I am TIRED of the cover ups over this. FYI...as I work with the everyday..the kids of the 90's got it worse as a rule...less mercury kids are doing better...not as badly effected and easier to recover...as a rule..but not set in stone there...mm
minnakay
Posted on Mon, 7 Jul 2008
I know. Genetics don't cause epidemics. apparently our government does.
Motherof4
Posted on Mon, 7 Jul 2008
You're right, it's horrible, terrifying. I think it did happen years ago, but was so rare, everyone thought it was a fairy tale-- there are stories about "changelings," one day the child is fine, the next day, the original child is gone, stolen by fairies. You must be in terrible pain. As I've mentioned, we didn't go through this same series of events with Daniel. I think there's so much, so many kinds of pollution out there. Coal-fired power plants belch out mercury and other toxic metals. Pesticides and herbicides drench our foods. Yes, our immunizations contain thimerosal, and there are still more factors that we don't see, don't yet know. I'm not sure what else we can do, besides grow our own food as much as we can and lobby our legislators for better environmental responsibility, better medical care, more research. Meanwhile, we mop up the mess in our own lives, and our childrens' as well as we can.
