State: CA
Country: USA
Member since: Jan 06, 2008
Last logged in: Oct 27, 2008
My name is Andrea. I have a four year old son, James. He was diagnosed with mild autism when he 2.5 years old. I also have a 5 months old baby girl named Sophie. If she comes out half as AMAZING, KIND, and WONDERFUL as James... I will be the luckiest mom in the world.
Matthew is my husband. He is from England and I am from Argentina. What a mix! We have been married for five years. We live in Big Bear Lake, CA. Matthew is a production designer for commercials in Los Angeles. When he works, he stays in Los Angeles.
We have started the DAN! protocol at the beginning of December. Wow... it is so much hard work and $$$$$$$$$$$$$$$$$$$$$. If anyone else is doing it or has any advice... I'd love to hear from you!!
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yayarocks's Compositions
by yayarocks on 01.10.08 - public - 231 visits
My son James has been with a DAN! dr. since December 10. Our next appt. is on January 24. These are the therapies/treatments/enzymes/etc. that they have him on:
-gfcf, yeast free diet
-methyl B12 injections
-Kirkman Super Nuthera Vitamin supplement
-Kirkman Isogest enzymes
-Calcium supplement
-DMG
Next Sunday he starts on the melatonin. My doctor is also beginning chelation next week via suppositories and the drops on his forearm.
Does anyone have a DAN! dr? What were your experiences (good and bad) regarding this road to biomedical intervention? Are there other methods of biomedical intervention?
I'm a bit nervous about the melatonin. I'm not quite sure why. In order to get him to take all of these supplements, I have to slip it into his sippy cup! I feel like I'm drugging my kid!
I guess I'm hoping to hear that "Yes! This changed my child!" or "It's worth every penny because my child is recovered!"
I would REALLY appreciate any and all advice or comments!
Thanks, Andrea
Comments(8)
4muskateers
Posted on Mon, 4 Feb 2008
HI, SWEETIE We have done the Dan portocol for a year, we saw some changes, but I felt like you with all the drugs. So I talked with them and we decided I was safer using all natural suppliments. We are still doing all you are except for the diet. Julian is o.k. with wheat, but not dairy. We use the emzymes from Dr. Houston with Huston Nuetricuticals, hsi are the only ones that look for the gluten or casin in the body. www.houstonni.com to replenish the body we use Juice plus capsules...they can be opened and add to his food/drink. google juice plus. How was his yeast..did he have an over growth?? or cansdida?? as for chelation we were going to give it a try, intavenously, but I took Julian to the Sierra Intergrative Medical Center in Reno, Nevada, they do noe give anything oral or other wise with out testing for allergic reactions. So the did a skin bubble test..similar to a TB test and Julian's arms blew up at the site on injection with the DMPS, and DMSA. I have a letter that states he is not to be given niether one of these chelators and he ws o.k. with EDTA, but by this piont I was not comfortable anymore. So we choose to chelate naturally. and we have had great success. Our numbers have changed from being in the 97%tile to down to the 16%tile. So with the desicion to go naturally healing is taking longer, but we have no side effects at all. His liver is fine, we continue to do liver detoxes, because of the chelation, and the spleen, lungs, pancrease?, are all functioning the way they should. We see Dr. Woeller form Temecula, CA. He is really close to San Diego. Oh! we do Methyl B 12, but by tablets. you can e-mail me or call me at for more info on these. denny_mima@hotmail.com 559-662-0651 anytime. Your guy is still little, there is so much hope for these children now, it is not like it was in 1997. check out the info I put out on this site.
TBrainsMom
Posted on Sun, 3 Feb 2008
Hang gang I feel like I am in the dark someone help me understand the DAN Dr. See years ago they did not speak of autism just speech delay and mental retardation. There are so many treatments that are out there even with our level of progress I wonder if trying some would harm him or make him even better.....but I tell you what if I had a chance to make him better or give that chance to you all...I would give it to you all because I still struggle with with being uncomfortable at times because of the world's responses and feeling skeptical about putting his story out with fear of rejection but I love the person he is right now and we pray he does not regress. I believe this is God Project and we have to push past the uncomfortable feelings and get the things we need in this community!
Wyndie
Posted on Tue, 15 Jan 2008
While we did the majority of our healing before we had a DAN!, it's definately easier with one! We have done so many things and they all worked in conjunction to make chelation effective. there are many protocols out there so do your homework first and make sure you are comfy with the one you choose! As a side note, we did not feel they were ready to chelate until they had mucho mineral support and antioxidants on board. Chelation can be draining to the body so be sure you have your stuff in place. :) Best of luck! I hope you see the healing you long for.
Mom on a mission
Posted on Sun, 13 Jan 2008
I've been taking my son to a DAN doctor for 5 years. I definately believe in what they are doing. We have seen so much success over the years. Diet was key and so was the leucovorin and b-12 injections. We now do a nasal spray. I broke down last week and put my son on celebrex, actos, singulair and vit A. I have resisted the doctor on this for over a year, but my way has not completely healed him. He still stims and I am looking to resolve this. I will post what results I see on this new protocol. I need your prayers that I will not cause my son any harm on these meds. It scares the hell out of me, but we are so desperate to heal him. I feel that it was my fault for letting him be vaccinated in the first place and now I have to fix him. Wish me luck! Chelating really benefited my son too. I do believe that these children have the potential to heal. WE can't give up. It is a long haul, but well worth it. I keep all of you in my prayers each night. I know how tough it is, but hang in there. Jennifer
skyey
Posted on Sat, 12 Jan 2008
What kind of suppositories and drops? There are several kinds of chelation, some safer and more effective than others. Has he had a hair test for metals?
shannonj
Posted on Fri, 11 Jan 2008
I think it is important to find a doctor that you are comfortable with. I agree that it is best to go slow with the treatments--and make sure that you can voice your opinions with your doctor. Most are not going to push you to do something that you are not comfortable with (although we had one doc that we eventually left because of that very thing) so just make sure that you communicate well. And educate yourself along the way so that you understand the treatments and can discuss them with a good foundation....
Jennifer72
Posted on Thu, 10 Jan 2008
I've looked into getting a DAN Dr but haven't taken that step yet. I'm nervous about finding one that will take their time and do what's right for Caleb. I had read to be wary of some of the DAN Drs because there are some that will push every treatment available without pause. I'd rather go slow and see what work and what doesn't. You've only been going since Dec 10th and you're already on that many therapies? Eek, I'd be frantic.
carmel66
Posted on Thu, 10 Jan 2008
Hi Andrea. It is nerve wracking. I feel like I need to be very selective about who I talk to about our treatments. But I have found some very supportive folks. We had our first DAN appt in August and are moving much slower. I guess that is the way our DAN likes to work and we agree. We do one thing at a time and see what happens - then we know what to attribute to the success or regression or whatever. We did a lot of supps - but had to back down. We saw an increase in tooth grinding and ODC behaviors. It could have also been a virus - we notice these things happen when his body is "chewing on" a cold virus. My boy also has chronic constipation. Testing showed his pancreas is not functioning well and he's missing many enzymes and a couple of hormone type things. We have done secretin injections twice. The results have been wonderful for his bowel - regular, normal looking poops almost daily. We will start it transdermally in about a week so that we don't have to keep doing injections (my son has tough arms and veins for injections). We also do Epsom Salt baths - wonderful for his bowel and calming as well. We will start enzymes after the TD Secretin has a few weeks to run, regulate his supps and then start chelation. It feels like it takes forever - but we are in this for the long haul and don't want to overload his fragile system. He also takes hi amounts of EFA and Vitamin E - which we have not stopped. He started speaking last year after we added the E and L-Carnitine. He hasn't stopped since. I would be more than open to trading info with any folks out there on the road to biomed. info trades with moms and dads has gotten me this far, and I'm more than thankful. Cathy
