TBrainsMom - Think Outside the Diagnosis!
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State: Maryland
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Member since: Feb 02, 2008
Last logged in: Jul 10, 2008
TBrainsMom's Bio
 

Hello I am Miss Tee, the proud Mom of Double Agent TBRAIN.  TBRAIN is a pre-teen that dubs as an Aspie & an Epie and is the Co-Founder of the Hidden Inspirations Project (HIP) Kids a non profit initiative based in PG County Maryland to represent students mildly impacted by hidden disabilities such as Aspergers Syndrome, Autism, Epilepsy, ADD/ADHD, Diabetes, Asthma, Speech Differences, etc. that cause barriers to learning and establishing social relationships with typical peers.  


TBRAIN has maintained a 4.0 GPA all nine out of ten semesters since the sixth grade.  He is the Alto & Tenor Sax 1st chair in the school's symphonic band and received a rating of  " 1 " at the 2008 PG County Solo & Ensemble Festival for his Tenor Sax performance (Level III music).  He was recently awarded the 2008 Martin Luther King Foundation of PG County's Student Leader Award for personal achievements and community service.  As the lone tenor sax player, he performed at the Strathmore Music Hall as a member of the District Metropolitan Youth Orchestra.


These are remarkable achievements alone; however, Trenton's specialists at Children's Hospital are baffled by his continued success because he manages two major medical conditions:  1) Aspergers Syndrome (Age 10) and 2) Epilepsy (Age 9).  See www.gazette.net search "Gilstrap" click on Son inspires Brandywine woman to action.  Trenton with his fearless, confident and kind hearted spirit has inspired our family to start a non profit organization called Mind Expansion Community Service (MECS), Inc. by pushing against his medical challenges and standing up to represent a unique group of students that are mildly impacted by hidden disabilities.  There is support for the moderate to severe groups but not those that are mildly impacted. 




Trenton's dream is to bridge the social gap between typical and differently-abled students through awareness and social networking.  Our program merges music (universal language), science (brain and body functions), socio-medical conditions (Autism, Epilepsy, Asthma, Diabetes, Speech Limitations, etc) and social sensitivity (accept and respect differences) to reduce peer to peer "social tension", i.e. teasing, bullying, isolation, incorrect labeling, etc to fight myths that surround these socio-medical differences, i.e. speech impairments translate into mental retardation, seizures are signs of mental illness and possessions of the spirit, etc.

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Them Take Them Out - Foo Foo on them!!
by TBrainsMom on 02.06.08 - public - 107 visits

Take them out and foo foo on the other people...try to search for family friendly places and frequent that place. Always be ready for a doggie bag and the fact the you have to keep saying INSIDE VOICE. My son will be 14 this year and we still have to coach the inside voice and the topic of discussion and what is appropriate in which setting(pre-teen) along with his secret fear of GUM...Can you imagine my son at a Black Tie Event..a 6'0" tall young man is going around the table turning over chairs inspecting for GUM...LOL! Sometimes, I can coach him to accept it and other times when he is tired I just can not and I just block out the stares and coach my BABY to change!
My son says..Mom, think about how your mind wondered after watching Animal Planet's The Micro World Series..bed bugs, dust mites,parasites, etc. & how you did not sleep well for a few days?? You know that series was fascinating to me and I could not underdstand why it was such a big deal the micro world is living and has a purpose....used GUM does not have a purpose under chairs! LOL

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Comments(5)

4muskateers
Posted on Wed, 6 Feb 2008

I thaught this was interesting, it used to drive my mom nuts when we went out beacuse I would look for the gum too. I just knew it didn't belong where I was sitting. No I am not on the spectrum.

carmel66
Posted on Wed, 6 Feb 2008

We head out with our son all the time, but he is the exact opposite of your son (very small) but we have learned to brave the stares. I love how your son drew you such a wonderful analogy...

shannonj
Posted on Wed, 6 Feb 2008

Such good advice and insight...We have much to learn from our kids.

Motherof4
Posted on Wed, 6 Feb 2008

I never thought of used gum that way before... Of COURSE it drives him crazy! I love it that he was able to tell you so succinctly how used gum is to him as the micro world is to you. What a great kid you have!

AWETISM
Posted on Wed, 6 Feb 2008

thanks for posting this I loved it the first time when you sent it to me!! And yes FOO FOO on them!!!

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