State: MA
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Member since: Oct 24, 2007
Last logged in: Dec 01, 2008
I am mom to a wonderful 7 yo boy with dwarfism, autism and apraxia. He is the light of my life. I also have a 3.5 yo daughter who is NT and full of life. It's like being a mom for the first time - all over again. I have a great husband and we own our own consulting company. Yeah - life is a little hectic here.
Favorite Compositions (0)
carmel66's Compositions
by carmel66 on 08.29.08 - public - 98 visits
We have an invite to join a friend and her son at the beach tomorrow. Not a big deal - the beach is a five minute walk. I really like her (the mom) and her son is quite nice too. I'm just so tired of having to work at social functions. I think you might all understand. Helping my son interact or act appropriately. Helping her son understand that my son can hear him (so don't talk louder or slower) he just isn't able to respond the way you might expect him to respond. Being forced to draw subways on the sand and not being able to have a conversation with my friend. Being reminded (yet again) of what a healthy seven year old boy looks like and plays like... I don't know if I have it in me. I'm exhausted from explaining and playing and working and structuring and keeping up a brave front and...ugh. This friend, and most friends, understand and are kind - but so much work goes into an outing like this. I don't want to be antisocial, I want people to think of doing things with us - I'm so torn. Not just about tomorrow - about all of these types of events in general...
Comments(5)
Motherof4
Posted on Fri, 29 Aug 2008
You've got some great advice here. I agree with all of them. It is worth it, even when it's hard. But, I totally understand how you feel. I've been there, too.
MyEverest
Posted on Fri, 29 Aug 2008
Have fun! Don't let the dx win. Thats what I call my son's autism diagnoses. After reading your comp, it gave me an idea. I am going to make an All About Me Book for my son. So when new friends come around, we can all look at it together. I had to stop comparing my son to others and this just happened recently. I have a friend that has a son with schizophrenia. After listening to my friend and all that she has to go through with her son, my mind completely changed. Now I think that dealing with autism is like a trip to Disneyland. We don't know how good we have it until we meet someone in worse circumstances. I don't mean to preach. I just wanted to share a lesson I learned. God bless. Good friends are hard to come by.
mercurymom
Posted on Fri, 29 Aug 2008
HUGS...man it's so hard...over time..I just got used to watching John's age group out grow him and where he should be. Believe it or not, I can now actually enjoy that age group, talk to the teens and have fun being with them. They are nice to John, talk to him, hug him, and treat him with respect. Still...yea it hurts. My best friend and I gave birth to son's on the same day...it's hard to love her son so much..and not think "That's what John should be like." I hope you have a wonderful day...and yes..it is so worth it..it really is.
AWETISM
Posted on Fri, 29 Aug 2008
I would say yes it is so Worth it. I have stayed at home time and time and time again. My son is almost 9 and I have 2 other boys 3 and 11. Yes it is work that is for sure, I only wish I had gotten out more when my son was younger , I think to myself often that he would handle outing better if I had done this. I so wish you the best day ever! Quincy
KevinLivsDad
Posted on Fri, 29 Aug 2008
I hear you, in the same boat. But, I almsot always gain more than effort put in. Sucks on the NT reminder too. I don't know how to deal with that one yet either maybe that comes with experience & stronger character.
