carmel66 - Bring on the labels
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City: North of Boston
State: MA
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Member since: Oct 24, 2007
Last logged in: Sep 30, 2008
carmel66's Bio
 

I am mom to a wonderful 7 yo boy with dwarfism, autism and apraxia. He is the light of my life. I also have a 3.5 yo daughter who is NT and full of life. It's like being a mom for the first time - all over again. I have a great husband and we own our own consulting company. Yeah - life is a little hectic here.

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What About Recovery?
by carmel66 on 01.15.08 - public - 157 visits

Recovery's definition is the "returning to normal". What is normal - to anyone, let alone our loved ones?

With every gain my son makes, a new side of his personality comes through. Some of these glimpses of his soul are completely heartwarming and lovely. Some are not so wonderful - impatience, daring. Funny - we attribute the wonderful personality traits to his "real" personality, but the negative ones to "yeast" or "needing supplementation". Do they make a supplement for my daughter and her terrible twos (soon to become terrible threes)?

I will continue to help my son become the best man he can be - either through therapies or supplements or "time outs" or long talks. People talk of trying to fix your child b/c you don't accept his autism. I accept it - but if I had cancer I would accept it and look for an answer to help my odds of being around to interact with my family. I'm looking for an answer to help my son interact with his family, friends, community.
He is already accepted, loved and included. Our goal is for him to be able to communicate to us his love and acceptance of us.

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Comments(3)

Guichetta
Posted on Thu, 24 Jan 2008

I am currently takeing a class on loss counselling. Parents of a child affected with ASD hav much grief and loss to work through. The really interesting thing that I got the other day is that acceptance is not a state or stage. I t is described a a spectrum (image that :)). We are always in mix of denial and acceptance. And as you put very weel that acceptance is not submission.

Wyndie
Posted on Wed, 16 Jan 2008

I had to laugh at supplementing your dd out of her terrible twos. It really is hard to tell when it's yeast or just natural personality. ;) I like your cancer analogy. Just b/c you love a person who has cancer, doesn't mean you don't do everything you can to help them. Your little guy is blessed to have a mommy like you. Being loved and accepted is the most precious gift we share with our children.

shannonj
Posted on Wed, 16 Jan 2008

Everybody needs to feel loved and accepted. That is probably the very first gift we should give to our children.

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