momof2boyz - The Actuality of Autism
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City: VIRGINIA BEACH
State: VA
Country: USA
Member since: Jun 10, 2008
Last logged in: Mar 09, 2010
momof2boyz's Bio
 

I'm the proud mom of 2 boyz! Yes, "boyz," because for me, the alternate spelling with a "z" describes their wild, crazy & fun nature! There's never a dull moment in my life with these two alongside me!


My oldest, 15, has Autism (dx:PDDNOS). It's been 12 years of sheer hell while  fighting for a correct dx., advocating, finding the right educational setting, enduring the social/psychological abuse from other parents/kids, who were part of my son's school day, and defending him from these and some "teachers" (if I can really call them that), who totally abused my son in his initial school settings. For four years I was made to feel like I was the problem--a difficult, intrusive mom, making "unrealistic" requests, asking for "unrealistic accommodations" of teachers/educational specialists, school psychologists and administrators. My strong, direct, adamant, no-holes-barred fight to defend my son and his "rights" for a fair and safe educational setting that would meet his needs and make him feel loved, appreciated and safe, finally ended with an appropriate school placement in 2004. It's amazing to me that we have to call it his "rights" because for me, this is how all children should be treated--with love, care, concern, respect, decency. Society has lost its respect for children!

My younger boy, 12, is a FANTASTIC brother! He has defended, played with, taught, assisted his brother in so many ways, he will never fully understand how much I love him for playing such an important role in his brother's life. I'm fortunate that both get along so well. Now, grant it, he does get angry and frustrated with his older brother at times. But I try to teach him the why behind his brother's behavior, his condition, and why treating disabled people with kindness, love and respect is crucial. I want him to grow into a compassionate adult, capable of reaching out to others who need an extra lift in this crazy world. I consider it my God-given responsibility to ensure he grow up to be a compassionate person that can turn around and serve in his community.


My suggestion to parents new to the World of Autism is this: READ, READ, READ! Get your hands on every book, article, online resource you possibly can. DO NOT depend on "professionals" to do this for you. Only YOU can be your child's advocate and know what tx. will be the most effective and successful. And don't let other parents and their ideas "get in your way." Yeah, that's right! You heard correctly. We can get in each other's way from time to time. Not all the same methods, treatments or procedures work for every autistic individual. You have to find out what works FOR YOU! To share these experiences here is encouraging, enlightening and wonderful. Remember to be true to yourself & your gut instinct for your child(ren). In the end, your life is what you make of it. Here's to making the most outta all our circumstances.

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Toxic Substances Control Act
by momof2boyz on 02.04.10 - public - 57 visits

It was a busy day for the autism community on Capitol Hill today, with activity in two very important areas – Toxic Substances Control Act reform and restraints and seclusion in schools.

On the first front, the Learning and Developmental Disabilities Initiative (LDDI), a coalition of health and developmental disabilities organizations including the Autism Society, released the first-ever biomonitoring report identifying toxic chemical pollution in people from the learning and developmental disability community. A total of 61 chemicals (out of 89 tested) were found in the 12 participants – including Autism Society Vice President of Public Policy Jeff Sell.

The report was released in conjunction with today's Senate Hearing before the Environment and Public Works Subcommittee on Superfund, Toxics and Environmental Health to examine current science on public exposures to toxic chemicals. The Toxic Substances Control Act (TSCA) is the primary federal law governing chemical safety, and has never been significantly amended since its adoption in 1976. Learn more about the study, and find out more about environmental health and autism.

Also this morning, the Preventing Harmful Restraint and Seclusion in Schools Act (H.R. 4247) passed out of the House of Representatives Committee on Education and Labor by a vote of 34-10. H.R. 4247 would establish the first federal standards to protect students from misuse of restraint and seclusion, and ensure the safety of everyone in the classroom. The bill will now head to the House floor for a full vote. Help keep this bill strong – take action today!

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