State: North Carolina
Country: USA
Member since: Jun 06, 2008
Last logged in: Mar 17, 2010
I"m an outgoing mom of four, one of which is in college and I'm in college too getting a human service's degree. My youngest Colton goes to a special need's school in my area, does O.T., and is about to start therapuetic horseback riding again. We are detoxing him with a foot bath at our Dan doctor right now and with the spice Celantro. I love singing, jazz music, painting on glass, ice skating, and working out at our local Y. We are presently going for hyperbaulic treatments on my son, this profile statement will keep those informed of how it is going, those who are interested......
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striving's Compositions
by striving on 07.02.09 - public - 117 visits
This morning I felt hopeful and now I don't
I was told today that my son not only has autistic tendencies but is also considered moderate to severe MR
I feel very little hope now
How can a person go from hope to hopelessness in just a few short hours?
Someone tell me how to feel hope now, how to keep trying now
Comments(8)
jewelryjenny
Posted on Fri, 3 Jul 2009
Wow, there sure is a lot of good encouragement in the comments before me. I was thinking just now, maybe it would be a good idea to start keeping a journal of all the good times so when we get discouraged we can look at it and remind ourselves. I know for me looking for things to be thankful for helps me change my perspective. Sometimes what you're thankful for seems pretty ridiculous, but hey, it helps! Singing helps me too. I feel rather puny saying that after such great words from other women who have been through much more than I have, but I wanted to throw it in there just in case. I think coming to Foggyrock and getting out your frustration to people who understand also helps. There are so many kind, generous, encouraging, sweet people here!
mercurymom
Posted on Fri, 3 Jul 2009
Honesty..more people see MR when they see autism..even if it's not there...and I dare say it isn't. My son was called MR by many...but not today! Today he is called smart and cunning. Give it time, as the autism gets better the smarts bloom!!
tambara
Posted on Fri, 3 Jul 2009
I am thinking about you tonight.. MR, it sounds huge.. it sounded really big to me the first time I heard it 11 or so years ago now.. Back then I didn't even know what autism was.. Everyone is right, he is the same today as yesterday. With you as his mom he will only get better. In some instances more labels means more services he will be eligible for.. I hope your ok..:)
4muskateers
Posted on Fri, 3 Jul 2009
Sweetie HOPE and FAITH is all we have...I was told Julian would never be able to do all he does...Well now do excactly what I did, I made a copy of the report, and put it away...I bought white out and on all the negative parts that stated he can't do or never will do I whited those out...wrote in everything positive and yes he will and yes he can and reminded myself that GOD will change the report one day...and HE did just that, in 2008 Julian was re-evaluated and found to have some characteristics of autism...(before he was said to be serverly autistic)...they dropped the MR all together...(before he was said to be sereverly MR)...with the help of white out I put in what I knew GOD would help Julian do, and I wasn't even all that crazy about GOD yet, I knew of Him...but I didn't know Him and didn't care too either...BUT...Julian brought me around, I wouldn't give up on HOPE and FAITH of the unseen for anything...GOD~Jesus~and the~Holy Spirit have my number and I have THEIRS...you have them too.
AutismCaregiver
Posted on Thu, 2 Jul 2009
Wow! I have a sinking feeling in my stomach as I read your post. I understand how you feel. I thought my son was just fine and then they told me he mostlikey had autism. then came the "severe autism" then came the "MR". Then came the "bell curve" that he was not even on at all.... But you know what? They had no idea how much of a miracle and angelic presence my son truly is. They just have no idea how to "tap into the intelligence of your son". They have not learned how to truly get an accurate picture of what is going on in your son's brain. The typical tests do not give an accurate reading of intelligence for children with Autism. Your child is still the same as he was the day before. He is still the beautiful and wonderous gift from above that has come to help make this world a better place for everyone. Just watch and see! Watch and see how many people's lives are changed for the better because of your son being in their lives. Just wait and watch! Dawn AutismCaregiver
Nellie_Rose
Posted on Thu, 2 Jul 2009
I can't say that I know how you feel but I think I can at least understand. Sometimes I get angry, for my daughter and for myself. Sometimes I ask why, why her? Why me? Often I think about how, without an autism diagnosis, it would be smooth sailing for us. That's probably not true but I'll confess my mind goes there when I my friends tell me about their children. It's so self centered, I know. It doesn't sound like that's where you are but when I get to that place or I feel hopeless and helpless I think about this quote: "God doesn't give you the people you want, He gives you the people you need. To help you, to hurt you, to leave you, to love you and to make you into the person you were meant to be." Then I realize that I don't know the outcome of this and I don't know the reason for any situation or difficulty that arises in my life. Each day is about trying to be greatful for not just the "good" things but for the "bad" that will have more to do with who we are as people than any good fortune ever could. I have to trust that everything will be okay and that, if nothing else, I will become the type of person who loves fully and unconditionally and my daughter will become the type of person who knows what it means to receive that. There are so many people in the world who don't really know what that is. It's a beautiful thing.
janneane7
Posted on Thu, 2 Jul 2009
Please don't let this get to you. My son was diagnosed as MR and I never even think of that diagnosis, it never even crosses my mind. It is next to impossible to get a valid IQ on a child who has a language disorder, so that number means nothing. My son has had is IQ done 4 times and it has fallen everywhere beteen a 74 which is NOT MR and a 36 which is on the edge of profoundly retarded. These number and the lable of MR in a child with Autism don't mean much in my mind, so please don't let it get you down
PebblePolisher
Posted on Thu, 2 Jul 2009
Please don't let the label MR change how you feel about your son or his outcome. You just keep on keeping on and he will do just fine! MR is just another way of saying that a person learns at a slower rate but they CAN still learn! There is a book I would like to recommend, "MENTAL RETARDATION DOESN'T MEAN STUPID!" This is an awesome book and it will give you great insight to what the label really means and what you can do to help your child! :)) PS It will be ok :) **hugs**
