shannonj - Breathe......
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City: Harpswell
State: Maine
Country: USA
Member since: Jan 23, 2007
Last logged in: Mar 16, 2010
shannonj's Bio
 

My name is Shannon and I have a great husband and 2 amazing kids.

My oldest, Wynn, age 14, has autism and still struggles, after all these years of treatments and therapies, with anxiety and aggression. At his best, he is funny, intuitive and sensitive.

My daughter, 13 year old Haley, is strong and independent, creative and musical. She has been a shining example for Wynn and taught him many of his first words and skills by sheer example.

Steve is my husband of 20 years and partner in this endeavor to be a family in this crazy world of autism. Out of a need we had to have better communication with Wynn's team members, he created a web application called iAbida.com. It has been a project from his heart, and he makes it available to all families, around the globe, for free.

And me? In spite of being a terrible klutz, I have learned the fine art of juggling....motherhood, advocacy, household management and working from home. Foggyrock is my latest project--to fulfill my own need to be associated with other fantastic folks, like you, who I knew were out there.....Thank you for allowing me into your life through this community.

Favorite Compositions (6)

- New closet doors $200
- Repairing four walls with holes - $100 and hours of ...Read more
By stevej on 01.01.70
Comments(6)
My son Wynn has autism. As a result, his social skills are stunted. Neverl...Read more
By shannonj on 01.01.70
Comments(13)
Every once in a while, the planetary structures all come together in just th...Read more
By shannonj on 01.01.70
Comments(2)
My 12 year old son struggles, for some reason, with understanding the difference...Read more
By shannonj on 01.01.70
Comments(5)
I’ve heard the weather reports and recognize that it is surely inevitable that I...Read more
By shannonj on 01.01.70
Comments(13)

shannonj's Compositions

Roller Coaster
by shannonj on 11.12.07 - public - 1723 visits

My 12 year old son struggles, for some reason, with understanding the difference between reality and cartoons. Around age 9, he became obsessed with making a “Wynn Show” where he would be the star of his own cartoon. He would regularly ask me to film him “wrestling lions” or “chasing the bad guys” but would then be terribly disappointed when the footage showed him in real life and not as the cartoon hero he imagined.

This weekend, we had yet another conversation regarding cartoons. He has given up on making his own “Wynn One” or “Wynn Two”, but still has many unanswered questions. As we walked outside, hand-in-hand, he started out with, “Mom, I am real or a cartoon?”

“You’re real.”, I replied with confidence.

“So, am I based on a true story, then?” he queried.

His question took me by surprise. I didn’t know what he meant and certainly didn’t know how to answer. Instinctively, I told him that he was definitely based on a true story, and was relieved when my answer seemed to satisfy him.

Later, I pondered his question again. Was his life based on a true story? Is this bright-eyed boy, on the verge of his teens, the true story that I envisioned when he was merely a wish in my heart? Honestly, I’d have to say no. He’s real, that is for sure, but his story is not based on anything I could have ever imagined.

Never did I think I would spend my son’s toddler years in waiting rooms surrounded by other children with sad stories and their frail and fragile parents. It didn’t cross my mind that my son would ever watch the big yellow bus go by from the window of his special needs van. I thought I would cheer from the sidelines one day, but not through a two-way mirror with a psychologist jotting in a notebook as my son lined up cars in the room full of toys. And who knew that my biggest fight would have nothing to do with finishing homework, or pulling up those B’s, but everything to do with IEPs, in-home support and “use your words”?.........

No, I wouldn’t have planned a life like this for my son....ever. But in reality, no parent gets to plan. Every mom gets disappointed and heart-broken at some point, in some manner. The way I see it, we’re all just along for the ride. It’s just that some rides have more twists and turns then others......And I’ve always been a sucker for a roller coaster, anyway. Weeeeeeeeeeeeeee!

Comments(5)

joansull
Posted on Tue, 15 Apr 2008

Your post reminds me of my favorite line from the movie "Parenthood" where the grandma says: //// You know, when I was nineteen, Grandpa took me on a roller coaster. Up, down, up, down. Oh, what a ride! I always wanted to go again. You know, it was just so interesting to me that a ride could make me so frightened, so scared, so sick, so excited, and so thrilled all together! Some didn't like it. They went on the merry-go-round. That just goes around. Nothing. I like the roller coaster. You get more out of it.

Guichetta
Posted on Sun, 20 Jan 2008

Exactly!!! Live to learn don't learn to live.

Carol
Posted on Mon, 12 Nov 2007

"Truth is stranger than fiction." Not a one of us could have imagined what life with our kids would be like. Disheartening at times, but we've been given a greater appreciation for the good. Hubby and I have celebrated many small steps forward and grieved many steps backward. Carol

carmel66
Posted on Mon, 12 Nov 2007

I think every parent feel that feeling of "I did not sign up for this" or "this is not what I imagined" at some point. When I returned to work after Carson was born, my boss' boss called me into his office and sat me doewn and said with a big bright smile "I understand you have a special child" (we found out that Carson had dwarfism a few minutes after he was born). He himself had a son with Downs. I explained how it was fine, I just had to adjust my 'visions' of our life (little did I know). He told me that I was lucky that happened with my first - that it was a valuable lesson to learn. We all have our 'dreams' for our children, but they all have their own lives and that is hard." I will always be thankful that he took the time to lend me his view --- just passing it along. Cathy

Angela
Posted on Mon, 12 Nov 2007

Weeeeeeeee! Yes off we go! I liked roller coasters a long time ago. The ones that were truly fun and made your stomach turn and twist with glee... I have always been until lately an optimist - always... and I have struggled with that these past few weeks. Too many levels of advocating intensified by the military aspect of our lives... Dang if you didn't help me to see - I may not like the stomach twisting and turning - but I am ALWAYS up for the challenge of it all... Instinctively I move forward as we all do and I can say for certain; instinct has never steered me wrong for my children, and I feel yours has done the same for Wynn. Makes me think of Margery Williams... Real... Yeh and it's a Real Ride! Thanks for "twisting" and "turning" it a bit more optimistic for me than I've felt in a few weeks :-D Ang

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