shannonj - One Brave Mama
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City: Harpswell
State: Maine
Country: USA
Member since: Jan 23, 2007
Last logged in: Oct 06, 2008
shannonj's Bio
 

My name is Shannon and I have a great husband and 2 amazing kids.

My oldest, Wynn, has autism and still struggles, after all these years of treatments and therapies, with anxiety and aggression. At his best, he is funny, intuitive and sensitive.

My daughter, 11 year old Haley, is strong and independent, creative and musical. She has been a shining example for Wynn and taught him many of his first words and skills by sheer example.

Steve is my husband of 19 years and partner in this endeavor to be a family in this crazy world of autism. Out of a need we had to have better communication with Wynn's team members, he created a web application called iAbida.com. It has been a project from his heart, and he makes it available to all families, around the globe, for free.

And me? In spite of being a terrible klutz, I have learned the fine art of juggling....motherhood, advocacy, household management and working from home. Foggyrock is my latest project--to fulfill my own need to be associated with other fantastic folks, like you, who I knew were out there.....Thank you for allowing me into your life through this community.

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shannonj's Compositions

THE NATIONAL AUTISM ASSOCIATION LAUNCHES NEW SAFETY PROGRAM; PROVIDES IMMEDIATE PROJECT LIFESAVER FUNDING TO COUNTIES NATIONWIDE
by shannonj on 07.22.08 - public - 116 visits

The National Autism Association (NAA) has announced the launch of a new program aimed at providing families and counties nationwide with safety tools for children with autism. The FOUND Program is the organization’s third direct-assistance program, which will immediately fund $54,400.00 to provide at least eight counties with Project Lifesaver equipment and tracking watches.
Project Lifesaver is a nationwide tracking program established to locate and rescue missing persons, namely those with cognitive impairments and developmental disabilities. Since 1999, 1709 missing persons have been found through Project Lifesaver. In the past six weeks, ten missing persons with autism have been rescued. “It’s a brilliant program with a 100% recovery rate,” says NAA Executive Director Rita Shreffler. “Some Sheriff offices simply do not have the funding and we hope our new program will eventually fund every county in the nation with this lifesaving equipment.”
Shreffler noted that the funding to launch the program came unexpectedly from a website called ‘Pixie’s Train Ride.’ The site has raised over $53,000 for NAA. Phyllis Cahoon, creator of the site and grandparent of a child with autism stated, “I’m thrilled that the generous contributions from visitors to my website will help protect the lives of children like my granddaughter who are at risk of wandering.” Cahoon is the mother of NAA President Wendy Fournier.
Since 2005, at least 14 children with autism under the age of 12 have died as a result of wandering. According to a study published in the Journal of Autism and Developmental Disorders (Shavelle, et al, 2001), elevated death rates among those with autism were in large part attributed to drownings. An online survey conducted by NAA showed that 92% of children with autism are prone to wandering. Board member Becky Grant-Widen of Maine believes all children with developmental disabilities deserve access to this equipment. “This is such a needed program for our community.”
Along with funding at least eight counties, NAA has also created generic fundraising tools for communities to download and use to raise funds in their own county for Project Lifesaver equipment. The FOUND Program will also provide advocacy in Washington for a federal bill offering guidance and funding to states.
To download fundraising tools or donate to The FOUND Program through NAA, visit www.nationalautism.org. Donors have a choice to adopt an entire county for $6800, or a partial county for any given amount.
To learn more about Project Lifesaver, visit www.projectlifesaver.org. Pixie’s Train Ride can be found at www.pixiesplace.com/trainride. Parents and caregivers can also find safety tips on NAA’s site at http://www.nationalautismassociation.org/safetytoolkit.php.

Comments(3)

Gavinsmom
Posted on Wed, 30 Jul 2008

This is great and I hope they expand it!! I just enrolled Gavin in swimming lessons because of the high incidences of children with autism that wander off and drown. Sadly, when I worked on a movie doing makeup last month a woman on set had a tragic loss in her family when her nephew of four with Autism drowned after wandering off several years ago and the mother(her sister) still can't forgive herself. We also had an eighteen year old boy with Autism in the area wander off after an argument with his mother and was thankfully found unharmed the next day in a ditch next to a creek. I really hope that more counties follow suit and make this available so no one else has to suffer a preventable loss.

4muskateers
Posted on Tue, 22 Jul 2008

great news maybe now the bigger county next to us will follow our example.

Motherof4
Posted on Tue, 22 Jul 2008

Great, great news, Shannon! Thank you for posting this!

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