shannonj - A Hopeful Heart
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City: Harpswell
State: Maine
Country: USA
Member since: Jan 23, 2007
Last logged in: Dec 01, 2008
shannonj's Bio
 

My name is Shannon and I have a great husband and 2 amazing kids.

My oldest, Wynn, has autism and still struggles, after all these years of treatments and therapies, with anxiety and aggression. At his best, he is funny, intuitive and sensitive.

My daughter, 12 year old Haley, is strong and independent, creative and musical. She has been a shining example for Wynn and taught him many of his first words and skills by sheer example.

Steve is my husband of 19 years and partner in this endeavor to be a family in this crazy world of autism. Out of a need we had to have better communication with Wynn's team members, he created a web application called iAbida.com. It has been a project from his heart, and he makes it available to all families, around the globe, for free.

And me? In spite of being a terrible klutz, I have learned the fine art of juggling....motherhood, advocacy, household management and working from home. Foggyrock is my latest project--to fulfill my own need to be associated with other fantastic folks, like you, who I knew were out there.....Thank you for allowing me into your life through this community.

Favorite Compositions (6)

- New closet doors $200
- Repairing four walls with holes - $100 and hours of ...Read more
By stevej on 01.01.70
Comments(5)
My son Wynn has autism. As a result, his social skills are stunted. Neverl...Read more
By shannonj on 01.01.70
Comments(10)
Every once in a while, the planetary structures all come together in just th...Read more
By shannonj on 01.01.70
Comments(2)
My 12 year old son struggles, for some reason, with understanding the difference...Read more
By shannonj on 01.01.70
Comments(5)
I’ve heard the weather reports and recognize that it is surely inevitable that I...Read more
By shannonj on 01.01.70
Comments(13)

shannonj's Compositions

Bon Voyage
by shannonj on 08.16.08 - public - 267 visits

If you have ever traveled with an autistic child, you could have probably written this article yourself....Thank you to Barbie Hines for sharing this very real experience with the honesty of the autism that we all live with. Share the entire article with those in your life who don't "get" it...or who think you are exaggerating....

Here is an excerpt and the link to the entire post:

As soon as we entered the cabin, Jimmy panicked.

He jumped into my arms. He started grabbing seats, trying to push us out of the cabin. I struggled into our seats. It took every ounce of strength I had to keep Jimmy on my lap. Jimmy is 48 inches tall. I am 58 inches short. He wanted out of that cabin. He fought with all his might.

I pulled out all the tricks. I was singing his favorite songs in his ear. I tried stimming on his ‘stim’ toy. My husband ran over with the portable DVD player (my husband and daughter, Reagan, were on the other side of the plane). I tried the back rub the chiropractor taught me. I tried foot rubs, which always work during stressful times. I sprayed ‘rescue remedy’ in his mouth. I pulled out the emergency candy stash – food coloring, preservatives, the works! His anxiety only increased. After about thirty minutes, I could barely hold him. A woman sitting behind me offered to switch seats with my husband, who was standing up in his seat, watching us, with a panic-stricken look on his face. I thanked her, and my husband and daughter quickly moved behind us.

Sweat was dripping down my face. If I released my grip on Jimmy, he would get away. My arms were quivering (why did I quit working out?). My poor boy had a facial expression I had never seen on him before. He looked scared to death. His breathing was now sounding different. He wasn’t screaming anymore, just sort of gasping. My daughter stuck her chubby, little 3 year old face between the seats and scolded, “Jimbo, sshhhhh! Me playin’ Leapster!”

A flight attendant came over and said, “You will need to tell us if there is anything we can do to help. We cannot take off like this.” I replied, “I understand. Can you give us some more time?” Shortly thereafter, the pilot announced our flight would be delayed by approximately thirty minutes, and he apologized for the delay. Great, we are now “the delay”. Something new for us. My nephew may have graduated in the top 2 percent of his class this year, but could he ground a plane of 350 passengers?


http://www.ageofautism.com/2008/08/this-is-autism.html

Comments(8)

amr3573
Posted on Tue, 14 Oct 2008

That was my flight fear when we left Maine and flew to Arizona, a 6 hour flight with an hour layover at JFK. We luckily didn't have such an ordeal, although, minus the Vallium, I was prepared for Einstien mentioned in the continuation of your blog!!

MAEProject
Posted on Mon, 18 Aug 2008

I don't to fly either. Haven't in years. If I was going to fly with Addie, it surely wouldn't be to Hawaii! That's a long trip, that a lot of adults wouldn't want to take.

Zoe
Posted on Mon, 18 Aug 2008

I use to fly but don't now, I have panic attacks too. I have not attempted traveling with my daughter yet even though it was presented to us this summer to go to florida but I turned it down. I have taken long driving trips which she seems to do ok with with but its steel hard. I am worried about how she will handle the plane ride. There is no getting off and I have seen her devestated before and the terror in her eyes that scared me so I don't know when I will attempt going on a plane. We would both need a pill!!

carmel66
Posted on Sat, 16 Aug 2008

Read the rest of the post - it's an excellant story and a testament to all ASD parents ability to cope and come up with a solution. And shows how far a sense of humor (and adventure) will get you. Cheers.

Motherof4
Posted on Sat, 16 Aug 2008

Poor guy!! The first times Daniel went on a plane, he was 4 and 5, and it was still a huge workout! It's good that the staff were at least a little understanding of the situation, but I do understand that it would make them nervous to take off with a panicked child erupting in the plane.

Simranmg
Posted on Sat, 16 Aug 2008

I feel for her. My airline trips w/ Akshay have been 50/50. He loves the take off and landing, it's the in between he's not so crazy about.

Robbiesmom
Posted on Sat, 16 Aug 2008

My heart goes out to that poor family. God blessed us with a very good little traveler, and one day I hope to get Robbie on a plane to visit family. I just pray he stays a good little traveler.

frogfoot1969
Posted on Sat, 16 Aug 2008

I can't imagine what it is like for someone with sensory integration disorder, all the people crammed together, the noises, the smells, I can feel the panic and the need to flee the situation but there is no where to flee too. I don't like to fly, I don't like the confinement the idea you can't escape. I have panic attacks and have to take a valium or a few drinks to fly. Poor guy.

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