shannonj - A Hopeful Heart
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City: Harpswell
State: Maine
Country: USA
Member since: Jan 23, 2007
Last logged in: Dec 01, 2008
shannonj's Bio
 

My name is Shannon and I have a great husband and 2 amazing kids.

My oldest, Wynn, has autism and still struggles, after all these years of treatments and therapies, with anxiety and aggression. At his best, he is funny, intuitive and sensitive.

My daughter, 12 year old Haley, is strong and independent, creative and musical. She has been a shining example for Wynn and taught him many of his first words and skills by sheer example.

Steve is my husband of 19 years and partner in this endeavor to be a family in this crazy world of autism. Out of a need we had to have better communication with Wynn's team members, he created a web application called iAbida.com. It has been a project from his heart, and he makes it available to all families, around the globe, for free.

And me? In spite of being a terrible klutz, I have learned the fine art of juggling....motherhood, advocacy, household management and working from home. Foggyrock is my latest project--to fulfill my own need to be associated with other fantastic folks, like you, who I knew were out there.....Thank you for allowing me into your life through this community.

Favorite Compositions (6)

- New closet doors $200
- Repairing four walls with holes - $100 and hours of ...Read more
By stevej on 01.01.70
Comments(5)
My son Wynn has autism. As a result, his social skills are stunted. Neverl...Read more
By shannonj on 01.01.70
Comments(10)
Every once in a while, the planetary structures all come together in just th...Read more
By shannonj on 01.01.70
Comments(2)
My 12 year old son struggles, for some reason, with understanding the difference...Read more
By shannonj on 01.01.70
Comments(5)
I’ve heard the weather reports and recognize that it is surely inevitable that I...Read more
By shannonj on 01.01.70
Comments(13)

shannonj's Compositions

Good Night, Sweet Dreams...Good Night, Sweet Dreams...GOOD NIGHT, SWEET DREAMS ALREADY!
by shannonj on 12.28.07 - public - 213 visits

For some reason, my son likes to do most of his talking after he has been tucked into bed at night. He can be exhausted to the point of slurring his words beyond comprehension, yet he still has a million and one questions before he rolls over and closes his eyes.

His bedroom is on the second floor and located at the far corner of the house. My kitchen/office is on the first floor, and is located at the opposite corner from his room. So essentially, when he is in bed, and I am on the computer, or cooking or washing dishes, we are geographically as far apart as we can get in this house.....And yet, every night, after softly tip-toeing down the stairs, longing to dunk my hands into the warm soapy water (yes, even washing dishes can seem like a vacation sometimes), I hear the sleepy questions begin. "Is today Thursday? So that means tomorrow is Friday? Then Saturday? Then Sunday?....How many Tuesdays did we have to wait for Christmas? Why does Christmas come only once a year? Is Santa real or just in my dreams? Will I dream tonight? Is Disney the place where dreams really do come true? Remember when you put sunscreen on my skin at Disney and I screamed?....." You get the picture.

Now, honestly, I don't really dread the questions so much. They help me know what is important to him, and remind me what an amazing memory this kid has. And when I do get irritated, I try hard to remember the days when all he did was scream....when I was the one talking all day long, just to expose him to language, and give him a word for every object in his world...And then the day, driving in the car with both of my children asking questions to me at the same time with such a frenzy that for the very first time in his life I said, "Wynn, please quit talking."...and then had to catch my breath at the significance of that phrase, and how it meant we had reached a new level in this crazy journey....So, no I don't resent his questions.

However, I can't hear him very well while I'm in the kitchen, and when I do try to answer him, I've usually not heard the question correctly, and therefore give the wrong answer--which is quickly proceeded by his size 9 feet plodding across his bedroom floor, and stopping at the edge of the banister as he hollers back in reply. Which then means that I've got to dry off my hands, dash upstairs, proceed through all the nightly rituals again, and once back downstairs, try to answer the same question "the right way"!....After 12 hours "on call", so to speak, I'm not usually up to the challenge, and often end up just hanging around outside his door until he falls asleep.

But last night, my husband had a great idea. He brought out a wooden table, sat my daughter's new 1000 piece puzzle (quickly abandoned for beads and chapter books) and encouraged me to "just relax here by the fire and put together this puzzle.".....Grabbing a cup of hot tea, I was quickly absorbed in the task, but also discovered, to my shear joy, that I could sit down and do something relaxing, but also easily hear and answer correctly all of Wynn's questions. Puzzles require some skill and concentration, but one can usually have a conversation at the same time.....and I did. So, while connecting a bridge overlooking the Sydney Opera House, I also waxed eloquently about Teenage Mutant Ninja Turtles and tomorrows breakfast menu.
And one sleepy boy fell fast asleep with the weight of the world removed from his shoulders because each question was answered just right.

Comments(4)

janneane7
Posted on Fri, 28 Dec 2007

Shannon Have you ever used visual supports for Wynn? It seems like that might be of great help for at least some of his questions. Andy can go down the list of questions (stated in the form of "I WANT...!") until I am ready to pull my hair out. It is so nice to say "go check your board", which he does, and gets his own answer. Andy's board is a dry erase board with the day of the week written across the top in sharpie and with things in his schedule for the week written below each day in dry erase marker. (He is a horrible reader but it works AWESOME for him!) I write different activites/appointments etc in different colors so he can seperate one from the other if there is more than one thing list for a given day. We have been using this with him since he was 8 years old (with pictures and words then) and switched to all words when he was about 12 because I was determined he learn to read at least a few words. I couldn't live without this board!!! I know it won't help at night when he is in bed but it might during the day plus it teaches great independence skills. Jan

Carol
Posted on Fri, 28 Dec 2007

Gosh Shannon, I also photographically remember the day I called my Mom and told her our prayers had been answered because I had gotten to the point where I wished that Emile would cease talking for a few minutes. I also remember that amazing moment in the car when Emile asked his first question - think he was in early grade school. We get the "million questions" too. They are always questions that he knows the answers to. We can get them at any time - not just bedime. Fortunately when Emile goes to bed, he is asleep in about 2 minutes flat. We hear from him at night only when he is sick - and he's really sick when that happens.

shannonj
Posted on Fri, 28 Dec 2007

Thanks for the compliment...I think the family is pretty special, although today, when I finally got to leave the house to run some errands, with my precious husband in charge of the chaos at home, I told him that I just might not be coming home! He knew I was joking and we had a good laugh because he was wishing that he was the one driving away!......

Wyndie
Posted on Fri, 28 Dec 2007

Awww what a precious family you have Shannon! Wynn sounds like such a treasure and your husband is just brilliant to think of such a great solution!!

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